Innovating public engagement and patient involvement through strategic collaboration and practice

被引:43
|
作者
Holmes L. [1 ]
Cresswell K. [1 ]
Williams S. [1 ]
Parsons S. [1 ]
Keane A. [1 ]
Wilson C. [1 ]
Islam S. [1 ]
Joseph O. [1 ]
Miah J. [1 ]
Robinson E. [1 ]
Starling B. [1 ]
机构
[1] Public Programmes Team, Manchester University NHS Foundation Trust, Nowgen Centre, 29 Grafton Street, Manchester
基金
英国惠康基金;
关键词
Diversity; Health research; Inclusion; Patient and public involvement; Public engagement;
D O I
10.1186/s40900-019-0160-4
中图分类号
学科分类号
摘要
Background: Patient and public involvement and engagement is an important and expected component of health-related research activity in the UK. Specifically within the health research sphere, public engagement (usually defined as raising awareness of research) and patient involvement (usually defined as actively involving people in research) have traditionally been seen as separate but have much to gain from working together towards a common goal of better health outcomes for all. Methods: This paper describes a unique approach taken by the Public Programmes Team: a small interdisciplinary team of public engagement specialists, with backgrounds in science, community development, public engagement and involvement, policy, ethics, communications, industry, museums and creative practice, embedded within translational research infrastructure and delivery in Manchester in the North West of England. We propose a new model of professional practice - a 'cycle' of engagement and involvement - innovating across the complementary fields of public engagement and patient involvement, and working inclusively and in partnership with people in health research. Further, our approach capitalises on strategic collaboration offering economies of scale and a joined up way of working. Our ambition is to boldly experiment, learn and reflect, responsibly and based on evidence and partnerships, using methods of engagement that address issues of social justice. Results: Here, we report on preliminary case studies exemplifying the impact of our approach, and data relating to achievements and learning between April 2017 and March 2018. Informed by our findings, we propose that our approach has the potential to be replicated elsewhere. Conclusions: Our practice and the beginning of its evaluation lead us to believe that our way of working and model of professional practice - the 'cycle' of engagement and involvement - is effective in: addressing our vision of making health research relevant and inclusive for everyone; and embedding and joining up public involvement in a busy and fertile translational health research ecosystem. © 2019 The Author(s).
引用
收藏
相关论文
共 50 条
  • [41] Cultural animation in health research: An innovative methodology for patient and public involvement and engagement
    Kelemen, Mihaela
    Surman, Emma
    Dikomitis, Lisa
    HEALTH EXPECTATIONS, 2018, 21 (04) : 805 - 813
  • [42] Developing patient and public involvement and engagement (PPIE) in diabetes research: a local approach
    Preston, Johanna L.
    Berryman, Victoria R.
    Hancock, Angela
    Pattrick, Melanie
    Worthington, Anne
    Hitman, Graham A.
    Hood, Gillian A.
    PRACTICAL DIABETES, 2019, 36 (03) : 81 - 85
  • [43] PEER SUPPORT OF PATIENT AND PUBLIC INVOLVEMENT AND ENGAGEMENT IN RESEARCH: THE 'RUG-BUDDY'
    Higginbottom, A.
    Rhodes, C.
    Campbell, L.
    Blackburn, S.
    ANNALS OF THE RHEUMATIC DISEASES, 2020, 79 : 1297 - 1297
  • [44] What really is nontokenistic fully inclusive patient and public involvement/engagement in research?
    Hilton, Andrea
    Megson, Molly
    Aryankhesal, Aidin
    Blake, Jessica
    Rook, George
    Irvine, Anne
    Um, Jinpil
    Killett, Anne
    Maidment, Ian
    Loke, Yoon
    van Horik, Jayden
    Fox, Chris
    HEALTH EXPECTATIONS, 2024, 27 (02)
  • [45] Thoughts on reporting public and patient engagement and involvement in research in the Journal of Advanced Nursing
    Tobiano, Georgia
    Dale, Craig M.
    JOURNAL OF ADVANCED NURSING, 2022, 78 (12) : E152 - E154
  • [46] Participation and consultation engagement strategies have complementary roles: A case study of patient and public involvement in clinical practice guideline development
    Armstrong, Melissa J.
    Gronseth, Gary S.
    Gagliardi, Anna R.
    Mullins, C. Daniel
    HEALTH EXPECTATIONS, 2020, 23 (02) : 423 - 432
  • [47] Coproduction of a resource sharing public views of health inequalities: An example of inclusive public and patient involvement and engagement
    Parbery-Clark, Charlotte
    Nicholls, Rosemary
    Mcsweeney, Lorraine
    Sowden, Sarah
    Lally, Joanne
    HEALTH EXPECTATIONS, 2024, 27 (01)
  • [48] Patient and public involvement in the development of clinical practice guidelines: a scoping review
    Bryant, Elizabeth Ann
    Scott, Anna Mae
    Greenwood, Hannah
    Thomas, Rae
    BMJ OPEN, 2022, 12 (09):
  • [49] Patient and Public Involvement in health research: evidence on the practice of participant selection
    Lander, J.
    Dierks, M. L.
    EUROPEAN JOURNAL OF PUBLIC HEALTH, 2020, 30
  • [50] Patient and public involvement
    Stewart, D.
    Wilson, R.
    Selby, P.
    Darbyshire, J.
    ANNALS OF ONCOLOGY, 2011, 22 : 54 - 56