Innovating public engagement and patient involvement through strategic collaboration and practice

被引:43
|
作者
Holmes L. [1 ]
Cresswell K. [1 ]
Williams S. [1 ]
Parsons S. [1 ]
Keane A. [1 ]
Wilson C. [1 ]
Islam S. [1 ]
Joseph O. [1 ]
Miah J. [1 ]
Robinson E. [1 ]
Starling B. [1 ]
机构
[1] Public Programmes Team, Manchester University NHS Foundation Trust, Nowgen Centre, 29 Grafton Street, Manchester
基金
英国惠康基金;
关键词
Diversity; Health research; Inclusion; Patient and public involvement; Public engagement;
D O I
10.1186/s40900-019-0160-4
中图分类号
学科分类号
摘要
Background: Patient and public involvement and engagement is an important and expected component of health-related research activity in the UK. Specifically within the health research sphere, public engagement (usually defined as raising awareness of research) and patient involvement (usually defined as actively involving people in research) have traditionally been seen as separate but have much to gain from working together towards a common goal of better health outcomes for all. Methods: This paper describes a unique approach taken by the Public Programmes Team: a small interdisciplinary team of public engagement specialists, with backgrounds in science, community development, public engagement and involvement, policy, ethics, communications, industry, museums and creative practice, embedded within translational research infrastructure and delivery in Manchester in the North West of England. We propose a new model of professional practice - a 'cycle' of engagement and involvement - innovating across the complementary fields of public engagement and patient involvement, and working inclusively and in partnership with people in health research. Further, our approach capitalises on strategic collaboration offering economies of scale and a joined up way of working. Our ambition is to boldly experiment, learn and reflect, responsibly and based on evidence and partnerships, using methods of engagement that address issues of social justice. Results: Here, we report on preliminary case studies exemplifying the impact of our approach, and data relating to achievements and learning between April 2017 and March 2018. Informed by our findings, we propose that our approach has the potential to be replicated elsewhere. Conclusions: Our practice and the beginning of its evaluation lead us to believe that our way of working and model of professional practice - the 'cycle' of engagement and involvement - is effective in: addressing our vision of making health research relevant and inclusive for everyone; and embedding and joining up public involvement in a busy and fertile translational health research ecosystem. © 2019 The Author(s).
引用
收藏
相关论文
共 50 条
  • [1] Innovating undergraduate pathology education through public engagement
    Nagesh, Navin Mukundu
    Giurca, Bogdan Chiva
    Lishman, Suzy
    VIRCHOWS ARCHIV, 2018, 472 (05) : 853 - 863
  • [2] Innovating undergraduate pathology education through public engagement
    Navin Mukundu Nagesh
    Bogdan Chiva Giurca
    Suzy Lishman
    Virchows Archiv, 2018, 472 : 853 - 863
  • [3] Patient and Public Involvement and Engagement in Nuclear Medicine
    Ribeiro, A. S. F.
    Lee, M.
    Abreu, C.
    MacNeil, J.
    May, K.
    Flux, G.
    Oyen, W.
    EUROPEAN JOURNAL OF NUCLEAR MEDICINE AND MOLECULAR IMAGING, 2018, 45 : S74 - S75
  • [4] Patient and public involvement and engagement: Mind the gap
    Hickey, Gary
    Chambers, Mary
    HEALTH EXPECTATIONS, 2019, 22 (04) : 607 - 608
  • [5] Sustaining patient and public involvement and engagement in research
    Chew-Graham, Carolyn A.
    HEALTH EXPECTATIONS, 2018, 21 (06) : 937 - 938
  • [6] Patient and public involvement: in theory and in practice
    Robinson, A.
    JOURNAL OF LARYNGOLOGY AND OTOLOGY, 2014, 128 (04): : 318 - 325
  • [7] Involvement, Collaboration and Engagement: Social Networks through a Pedagogical Lens
    Seifert, Tami
    JOURNAL OF LEARNING DESIGN, 2016, 9 (02): : 30 - 45
  • [8] Integrating patient and public involvement and engagement in translational medicine
    Shaw, Karen L.
    Calvert, Melanie J.
    Borrow, Persephone
    Chakera, Evelyn
    Chakraverty, Ronjon
    Hughes, Sarah E.
    Khatsuria, Foram
    Kinsella, Francesca A. M.
    McMullan, Christel
    Richardson-Abraham, Julie
    Yarosh, Vlada
    Aiyegbusi, Olalekan Lee
    LANCET, 2024, 404 (10455): : 828 - 831
  • [9] Considerations for patient and public involvement and engagement in health research
    Olalekan Lee Aiyegbusi
    Christel McMullan
    Sarah E. Hughes
    Grace M. Turner
    Anuradhaa Subramanian
    Richard Hotham
    Elin Haf Davies
    Chris Frost
    Yvonne Alder
    Lisa Agyen
    Lewis Buckland
    Jennifer Camaradou
    Amy Chong
    Felicity Jeyes
    Sumita Kumar
    Karen L. Matthews
    Patricia Moore
    Jane Ormerod
    Gary Price
    Michael Saint-Cricq
    David Stanton
    Anita Walker
    Shamil Haroon
    Alastair K. Denniston
    Melanie J. Calvert
    Nature Medicine, 2023, 29 : 1922 - 1929
  • [10] Considerations for patient and public involvement and engagement in health research
    Aiyegbusi, Olalekan Lee
    McMullan, Christel
    Hughes, Sarah
    Turner, Grace
    Subramanian, Anuradhaa
    Hotham, Richard
    Davies, Elin Haf
    Frost, Chris K.
    Alder, Yvonne J.
    Agyen, Lisa
    Buckland, Lewis
    Camaradou, Jennifer
    Chong, Amy V.
    Jeyes, Felicity J.
    Kumar, Sumita M.
    Matthews, Karen
    Moore, Patricia
    Ormerod, Jane
    Price, Gary
    Saint-Cricq, Michael
    Stanton, David
    Walker, Anita
    Haroon, Shamil
    Denniston, Alastair C.
    Calvert, Melanie
    TLC Study Grp
    Brown, Kirsty
    Chandan, Joht Singh
    Gkoutos, Georgios V.
    Jackson, Louise J.
    Lord, Janet M.
    Marshall, Tom
    Marwaha, Steven
    Myles, Puja
    Nirantharakumar, Krishnarajah
    Rivera, Samantha Cruz
    Sapey, Elizabeth
    Simms-Williams, Nikita
    Williams, Tim
    Wraith, David C.
    NATURE MEDICINE, 2023, 29 (08) : 1922 - 1929