Consumers' Views of Direct-to-Consumer Genetic Information

被引：57

作者：

McBride, Colleen M. ^{[1
]}

Wade, Christopher H. ^{[1
]}

Kaphingst, Kimberly A. ^{[2
]}

机构：

[1] NHGRI, Social & Behav Res Branch, Bethesda, MD 20892 USA

[2] Washington Univ, Hlth Commun Res Lab, St Louis, MO 63112 USA

来源：

ANNUAL REVIEW OF GENOMICS AND HUMAN GENETICS, VOL 11 | 2010年 / 11卷

关键词：

genetic testing; health communication; genetic competency; translational research; decision making; health behavior; NONPOLYPOSIS COLORECTAL-CANCER; MANAGED CARE ORGANIZATION; BREAST-OVARIAN CANCER; UNITED-STATES; SCREENING PRACTICES; MARKETING CAMPAIGN; RISK COMMUNICATION; ALZHEIMER-DISEASE; HEALTH BEHAVIOR; SUSCEPTIBILITY;

D O I：

10.1146/annurev-genom-082509-141604

中图分类号：

Q3 [遗传学];

学科分类号：

071007 ; 090102 ;

摘要：

In this report, we describe the evolution and types of genetic information provided directly to consumers, discuss potential advantages and disadvantages of these products, and review research evaluating consumer responses to direct-to-consumer (DTC) genetic testing. The available evidence to date has focused on predictive tests and does not suggest that individuals, health care providers, or health care systems have been harmed by a DTC provision of genetic information. An understanding of consumer responses to susceptibility tests has lagged behind. The Multiplex Initiative is presented as a case study of research to understand consumers' responses to DTC susceptibility tests. Three priority areas are recommended for accelerated research activities to inform public policy regarding DTC genetic information: (a) exploring consumer's long-term responses to DTC genetic testing on a comprehensive set of outcomes, (b) evaluating optimal services to support decision making about genetic testing, and (c) evaluating best practices in promoting genetic competencies among health providers.

引用

页码：427 / 446

页数：20

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