"It Defines Who I Am" or "It's Something I Have": What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?

被引：266

作者：

Bury, Simon M. ^{[1
]}

Jellett, Rachel ^{[1
]}

Spoor, Jennifer R. ^{[2
]}

Hedley, Darren ^{[1
]}

机构：

[1] La Trobe Univ, Olga Tennison Autism Res Ctr, Sch Psychol & Publ Hlth, Melbourne, Vic 3086, Australia

[2] La Trobe Univ, Coll Arts Social Sci & Commerce, La Trobe Business Sch, Melbourne, Vic, Australia

来源：

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2023年 / 53卷 / 02期

关键词：

Autism; Terminology; Autism identity; Label preference; Person-first; Identity-first; PERSON-1ST LANGUAGE; DISORDER; DSM-5;

D O I：

10.1007/s10803-020-04425-3

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

There has been a recent shift from person-first to identity-first language to describe autism. In this study, Australian adults who reported having a diagnosis of autism (N = 198) rated and ranked autism-terms for preference and offensiveness, and explained their choice in free-text. 'Autistic', 'Person on the Autism Spectrum', and 'Autistic Person' were rated most preferred and least offensive overall. Ranked-means showed 'person on the autism spectrum' was the most preferred term overall. Six qualitative themes reflected (1) autism as core to, or (2) part of one's identity, (3) 'spectrum' reflecting diversity, (4) the rejection of stigmatising and (5) medicalised language, and (6) pragmatics. These findings highlight the importance of inclusive dialogue regarding individual language preference.

引用

页码：677 / 687

页数：11

共 50 条

[31] "It's What I Do that Defines Me": Real Life Superheroes, Identity, and Vigilantism
Meade, Benjamin
Castle, Taimi
DEVIANT BEHAVIOR, 2022, 43 (09) : 1088 - 1102
[32] If I stop, then what am I supposed to do? The experiences of sexual intimacy of women who live with provoked vestibulodynia
Schneider, Marthe
Tallaksen, Dag Willy
Haukland, Magne
Haugstad, Gro Killi
HEALTH CARE FOR WOMEN INTERNATIONAL, 2022, 43 (1-3) : 176 - 193
[33] It's how I am . . . it's what I am . . . it's a part of who I am: A narrative exploration of the impact of adolescent-onset chronic illness on identity formation in young people
Wicks, Sarah
Berger, Zoe
Camic, Paul M.
CLINICAL CHILD PSYCHOLOGY AND PSYCHIATRY, 2019, 24 (01) : 40 - 52
[34] Who do you say what I am? Contemporary representations of Jesus and their reflections on Churches
Pinto Basto Lupi, Joao Eduardo
METIS-HISTORIA E CULTURA, 2015, 14 (28): : 33 - 48
[35] It's Just Who I Am . . . I Have Brown Hair. I Have a Mysterious Father: An Exploration of Donor-Conceived Offspring's Identity Construction
Harrigan, Meredith Marko
Dieter, Sarah
Leinwohl, Jenna
Marrin, Laura
JOURNAL OF FAMILY COMMUNICATION, 2015, 15 (01) : 75 - 93
[36] "What am I going to do?" A veteran teacher's journey of teaching writing to newcomer English language learners
Andrei, Elena
Ellerbe, Marcie
Kidd, Brenda
TESOL JOURNAL, 2019, 10 (02)
[37] Who am I? The role of moral beliefs in children's and adults' understanding of identity
Heiphetz, Larisa
Strohminger, Nina
Gelman, Susan A.
Young, Liane L.
JOURNAL OF EXPERIMENTAL SOCIAL PSYCHOLOGY, 2018, 78 : 210 - 219
[38] "Basically, it's that she accepts me as I am": Autistic Adults' Positive Experiences with Psychologists in Australia
O'Brien, Charlotte
Jellett, Rachel
Flower, Rebecca L.
AUTISM IN ADULTHOOD, 2024,
[39] When what I think feel and do depends on who I am: Identity effects on judgment, choice and self-reinforcement
Reed, A
ADVANCES IN CONSUMER RESEARCH, VOLUME XXXI, 2004, 31 : 335 - 338
[40] Who Am I and What Do I Need? Identity Difficulties as a Mechanism of the Link Between Childhood Neglect and Adult Sexual Disturbances
Bigras, Noemie
Bosisio, Myriam
Daspe, Marie-Eve
Godbout, Natacha
INTERNATIONAL JOURNAL OF SEXUAL HEALTH, 2020, 32 (03) : 267 - 281

← 1 2 3 4 5 →