"It Defines Who I Am" or "It's Something I Have": What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?

被引:227
|
作者
Bury, Simon M. [1 ]
Jellett, Rachel [1 ]
Spoor, Jennifer R. [2 ]
Hedley, Darren [1 ]
机构
[1] La Trobe Univ, Olga Tennison Autism Res Ctr, Sch Psychol & Publ Hlth, Melbourne, Vic 3086, Australia
[2] La Trobe Univ, Coll Arts Social Sci & Commerce, La Trobe Business Sch, Melbourne, Vic, Australia
关键词
Autism; Terminology; Autism identity; Label preference; Person-first; Identity-first; PERSON-1ST LANGUAGE; DISORDER; DSM-5;
D O I
10.1007/s10803-020-04425-3
中图分类号
B844 [发展心理学(人类心理学)];
学科分类号
040202 ;
摘要
There has been a recent shift from person-first to identity-first language to describe autism. In this study, Australian adults who reported having a diagnosis of autism (N = 198) rated and ranked autism-terms for preference and offensiveness, and explained their choice in free-text. 'Autistic', 'Person on the Autism Spectrum', and 'Autistic Person' were rated most preferred and least offensive overall. Ranked-means showed 'person on the autism spectrum' was the most preferred term overall. Six qualitative themes reflected (1) autism as core to, or (2) part of one's identity, (3) 'spectrum' reflecting diversity, (4) the rejection of stigmatising and (5) medicalised language, and (6) pragmatics. These findings highlight the importance of inclusive dialogue regarding individual language preference.
引用
收藏
页码:677 / 687
页数:11
相关论文
共 50 条
  • [31] It's how I am . . . it's what I am . . . it's a part of who I am: A narrative exploration of the impact of adolescent-onset chronic illness on identity formation in young people
    Wicks, Sarah
    Berger, Zoe
    Camic, Paul M.
    [J]. CLINICAL CHILD PSYCHOLOGY AND PSYCHIATRY, 2019, 24 (01) : 40 - 52
  • [32] Who do you say what I am? Contemporary representations of Jesus and their reflections on Churches
    Pinto Basto Lupi, Joao Eduardo
    [J]. METIS-HISTORIA E CULTURA, 2015, 14 (28): : 33 - 48
  • [33] It's Just Who I Am . . . I Have Brown Hair. I Have a Mysterious Father: An Exploration of Donor-Conceived Offspring's Identity Construction
    Harrigan, Meredith Marko
    Dieter, Sarah
    Leinwohl, Jenna
    Marrin, Laura
    [J]. JOURNAL OF FAMILY COMMUNICATION, 2015, 15 (01) : 75 - 93
  • [34] "What am I going to do?" A veteran teacher's journey of teaching writing to newcomer English language learners
    Andrei, Elena
    Ellerbe, Marcie
    Kidd, Brenda
    [J]. TESOL JOURNAL, 2019, 10 (02)
  • [35] Who am I? The role of moral beliefs in children's and adults' understanding of identity
    Heiphetz, Larisa
    Strohminger, Nina
    Gelman, Susan A.
    Young, Liane L.
    [J]. JOURNAL OF EXPERIMENTAL SOCIAL PSYCHOLOGY, 2018, 78 : 210 - 219
  • [36] "Basically, it's that she accepts me as I am": Autistic Adults' Positive Experiences with Psychologists in Australia
    O'Brien, Charlotte
    Jellett, Rachel
    Flower, Rebecca L.
    [J]. AUTISM IN ADULTHOOD, 2024,
  • [37] When what I think feel and do depends on who I am: Identity effects on judgment, choice and self-reinforcement
    Reed, A
    [J]. ADVANCES IN CONSUMER RESEARCH, VOLUME XXXI, 2004, 31 : 335 - 338
  • [38] Who Am I and What Do I Need? Identity Difficulties as a Mechanism of the Link Between Childhood Neglect and Adult Sexual Disturbances
    Bigras, Noemie
    Bosisio, Myriam
    Daspe, Marie-Eve
    Godbout, Natacha
    [J]. INTERNATIONAL JOURNAL OF SEXUAL HEALTH, 2020, 32 (03) : 267 - 281
  • [40] The Psychosocial Challenges and Care of Older Adults with Diabetes: "Can't Do What I Used To Do; Can't Be Who I Once Was"
    Beverly, Elizabeth A.
    Ritholz, Marilyn D.
    Shepherd, Chelsea
    Weinger, Katie
    [J]. CURRENT DIABETES REPORTS, 2016, 16 (06)