"It Defines Who I Am" or "It's Something I Have": What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?

被引：266

作者：

Bury, Simon M. ^{[1
]}

Jellett, Rachel ^{[1
]}

Spoor, Jennifer R. ^{[2
]}

Hedley, Darren ^{[1
]}

机构：

[1] La Trobe Univ, Olga Tennison Autism Res Ctr, Sch Psychol & Publ Hlth, Melbourne, Vic 3086, Australia

[2] La Trobe Univ, Coll Arts Social Sci & Commerce, La Trobe Business Sch, Melbourne, Vic, Australia

来源：

JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2023年 / 53卷 / 02期

关键词：

Autism; Terminology; Autism identity; Label preference; Person-first; Identity-first; PERSON-1ST LANGUAGE; DISORDER; DSM-5;

D O I：

10.1007/s10803-020-04425-3

中图分类号：

B844 [发展心理学（人类心理学）];

学科分类号：

040202 ;

摘要：

There has been a recent shift from person-first to identity-first language to describe autism. In this study, Australian adults who reported having a diagnosis of autism (N = 198) rated and ranked autism-terms for preference and offensiveness, and explained their choice in free-text. 'Autistic', 'Person on the Autism Spectrum', and 'Autistic Person' were rated most preferred and least offensive overall. Ranked-means showed 'person on the autism spectrum' was the most preferred term overall. Six qualitative themes reflected (1) autism as core to, or (2) part of one's identity, (3) 'spectrum' reflecting diversity, (4) the rejection of stigmatising and (5) medicalised language, and (6) pragmatics. These findings highlight the importance of inclusive dialogue regarding individual language preference.

引用

页码：677 / 687

页数：11

共 50 条

[21] See what I see, do as I do: Promoting joint attention and imitation in preschoolers with autism spectrum disorder
Warreyn, Petra
Roeyers, Herbert
AUTISM, 2014, 18 (06) : 658 - 671
[22] I have no Favourite- Something. For me it is important, what I do at the Moment. Probably Mozart
Znaider, Nikolaj
Prange, Oliver
DU, 2015, (858): : 98 - 98
[23] What I have is what I am: Differences in demographics, suicidal thoughts and behaviors, and firearm behavior and beliefs between firearm owners who do and do not primarily identify as firearm owners
Anestis, Michael D.
Houtsma, Claire
JOURNAL OF PSYCHIATRIC RESEARCH, 2019, 116 : 157 - 165
[24] ISA S84 ... ''I have to do what?''
Gruhn, P
INTECH, 1996, 43 (05) : 42 - 44
[25] ''It's something that I manage but it is not who I am'' Reflections on self-management strategies and stigma in bipolar disorder
Haddock, C.
Suto, M.
Hale, S.
Michalak, E. E.
BIPOLAR DISORDERS, 2009, 11 : 46 - 47
[26] I will proclaim myself what I am: Corpus stylistics and the language of Shakespeare's soliloquies
Murphy, Sean
LANGUAGE AND LITERATURE, 2015, 24 (04) : 338 - 354
[27] Who am I and what do I care about? Supporting civic identity development in civic education
Haduong, Paulina
Jeffries, Julia
Pao, Allison
Webb, Willie
Allen, Danielle
Kidd, David
EDUCATION CITIZENSHIP AND SOCIAL JUSTICE, 2023, : 185 - 201
[28] What am I seen - who do I seem? Hidden discursive processes in the large group of a TC
Zalka, Zsolt
THERAPEUTIC COMMUNITIES, 2021, 42 (02): : 98 - 108
[29] WHO AM I AND WHAT CAN I DO - CHILDRENS SELF-CONCEPTS AND MOTIVATION IN ACHIEVEMENT SITUATIONS
WIGFIELD, A
KARPATHIAN, M
EDUCATIONAL PSYCHOLOGIST, 1991, 26 (3-4) : 233 - 261
[30] "It's What I Have, It's Not Who I Am": A Qualitative Study of Social Support in Education/Employment Settings and Transition Readiness of Young Adults with End-Stage Renal Disease
Rupp, Sophie
Fair, Cynthia
Korycinski, Hannah
Ferris, Maria
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2021, 18 (12)

← 1 2 3 4 5 →