Psychometric Validation of the ViSIO-PRO and ViSIO-ObsRO in Retinitis Pigmentosa and Leber Congenital Amaurosis

被引：0
|
作者：
M. Dominik Fischer
Francesco Patalano
Christel Naujoks
Judit Banhazi
Christine Bouchet
Paul O’Brien
Christine Kay
Jane Green
Todd Durham
Helena Bradley
Nicola Williamson
Melissa Barclay
Joel Sims
Isabelle Audo
机构：
[1] University of Oxford,Department of Clinical Neurosciences
[2] Oxford Eye Hospital,Centre for Ophthalmology
[3] Oxford University Hospitals NHS Foundation Trust,Discipline of Genetics, Faculty of Medicine
[4] University Hospital Tuebingen,Institut de la Vision, CHNO des Quinze
[5] Novartis Pharma AG,Vingts, National Rare Disease Center REFERET and INSERM
[6] Novartis Ireland Ltd,DGOS CIC 1423
[7] Vitreoretinal Associates,undefined
[8] Memorial University of Newfoundland,undefined
[9] Craig L Dobbin Genetics Research Centre,undefined
[10] Foundation Fighting Blindness,undefined
[11] Adelphi Values Ltd,undefined
[12] Sorbonne Université,undefined
[13] INSERM,undefined
[14] CNRS,undefined
来源：
Ophthalmology and Therapy | 2023年 / 12卷
关键词：
Clinical outcome assessment; Inherited retinal disease; Leber congenital amaurosis; Observer-reported outcome; Patient-reported outcome; Psychometrics; Retinitis pigmentosa;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
下载
收藏
页码：1359 / 1386
页数：27
相关论文
共 50 条
  • [1] Psychometric Validation of the ViSIO-PRO and ViSIO-ObsRO in Retinitis Pigmentosa and Leber Congenital Amaurosis
    Fischer, M. Dominik
    Patalano, Francesco
    Naujoks, Christel
    Banhazi, Judit
    Bouchet, Christine
    O'Brien, Paul
    Kay, Christine
    Green, Jane
    Durham, Todd
    Bradley, Helena
    Williamson, Nicola
    Barclay, Melissa
    Sims, Joel
    Audo, Isabelle
    OPHTHALMOLOGY AND THERAPY, 2023, 12 (02) : 1359 - 1386
  • [2] Generation of qualitative evidence to support the content validity of the ViSIO-PRO and ViSIO-ObsRO in Retinitis Pigmentosa and Leber Congenital Amaurosis
    Kay, Christine Nichols
    Audo, Isabelle S.
    Bradley, Helena
    Barclay, Melissa
    Sims, Joel
    Boparai, Kieran
    Patalano, Francesco
    Naujoks, Christel
    Spera, Claudio
    Viriato, Daniel
    Fischer, M. Dominik
    Green, Jane
    Durham, Todd
    Williamson, Nicola
    Banhazi, Judit
    INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, 2022, 63 (07)
  • [3] Development of Novel Patient-Reported Outcome (PRO) and Observer-Reported Outcome (ObsRO) Instruments in Retinitis Pigmentosa (RP) and Leber Congenital Amaurosis (LCA): ViSIO-PRO and ViSIO-ObsRO
    Audo, Isabelle
    Patalano, Francesco
    Naujoks, Christel
    Spera, Claudio
    Fischer, M. Dominik
    Green, Jane
    Kay, Christine
    Durham, Todd
    Williamson, Nicola
    Bradley, Helena
    Barclay, Melissa
    Boparai, Kieran
    Banhazi, Judit
    OPHTHALMOLOGY AND THERAPY, 2023, 12 (04) : 2069 - 2085
  • [4] Development of Novel Patient-Reported Outcome (PRO) and Observer-Reported Outcome (ObsRO) Instruments in Retinitis Pigmentosa (RP) and Leber Congenital Amaurosis (LCA): ViSIO-PRO and ViSIO-ObsRO
    Isabelle Audo
    Francesco Patalano
    Christel Naujoks
    Claudio Spera
    M. Dominik Fischer
    Jane Green
    Christine Kay
    Todd Durham
    Nicola Williamson
    Helena Bradley
    Melissa Barclay
    Kieran Boparai
    Judit Banhazi
    Ophthalmology and Therapy, 2023, 12 : 2069 - 2085
  • [5] Qualitative exploration of the visual function impairments and impacts on vision-dependent activities of daily living in Retinitis Pigmentosa and Leber Congenital Amaurosis: content validation of the ViSIO-PRO and ViSIO-ObsRO measures
    Christine Kay
    Isabelle Audo
    Christel Naujoks
    Claudio Spera
    M. Dominik Fischer
    Jane Green
    Todd Durham
    Nicola Williamson
    Helena Bradley
    Melissa Barclay
    Joel Sims
    Judit Banhazi
    Francesco Patalano
    Journal of Patient-Reported Outcomes, 7
  • [6] Qualitative exploration of the visual function impairments and impacts on vision-dependent activities of daily living in Retinitis Pigmentosa and Leber Congenital Amaurosis: content validation of the ViSIO-PRO and ViSIO-ObsRO measures
    Kay, Christine
    Audo, Isabelle
    Naujoks, Christel
    Spera, Claudio
    Fischer, M. Dominik
    Green, Jane
    Durham, Todd
    Williamson, Nicola
    Bradley, Helena
    Barclay, Melissa
    Sims, Joel
    Banhazi, Judit
    Patalano, Francesco
    JOURNAL OF PATIENT-REPORTED OUTCOMES, 2023, 7 (01)
  • [7] Psychometric validation of patient-reported outcome (PRO) and observer-reported outcome (ObsRO) measures in Retinitis Pigmentosa and Leber Congenital Amaurosis
    Audo, Isabelle S.
    Williamson, Nicola
    Barclay, Melissa
    Sims, Joel
    Boparai, Kieran
    Patalano, Francesco
    Naujoks, Christel
    Spera, Claudio
    Banhazi, Judit
    O'Brien, Paul
    Kay, Christine
    Green, Jane
    Durham, Todd
    Bradley, Helena
    Fischer, M. Dominik
    INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, 2022, 63 (07)
  • [8] Leber's Congenital Amaurosis and Retinitis Pigmentosa mutations in the domestic cat
    Lyons, Leslie A.
    Reilly, Christopher M.
    Ofri, Ron
    Maggs, David J.
    Gandolfi, Barbara
    Alhaddad, Hasan
    Grahn, Robert A.
    INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, 2015, 56 (07)
  • [9] The Prevalence of Cystoid Macular Edema in Children with Retinitis Pigmentosa and Leber Congenital Amaurosis
    Ben-Avi, Ravid
    Rivera, Antonio
    Hendler, Karen
    Sharon, Dror
    Banin, Eyal
    Yahalom, Claudia
    INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, 2021, 62 (08)
  • [10] Mutation screen of the TUB gene in patients with retinitis pigmentosa and Leber congenital amaurosis
    Xi, Quansheng
    Pauer, Gayle J. T.
    Traboulsi, Elias I.
    Hagstrom, Stephanie A.
    EXPERIMENTAL EYE RESEARCH, 2006, 83 (03) : 569 - 573
12345