Qualitative exploration of the visual function impairments and impacts on vision-dependent activities of daily living in Retinitis Pigmentosa and Leber Congenital Amaurosis: content validation of the ViSIO-PRO and ViSIO-ObsRO measures

被引：0
|
作者：
Christine Kay
Isabelle Audo
Christel Naujoks
Claudio Spera
M. Dominik Fischer
Jane Green
Todd Durham
Nicola Williamson
Helena Bradley
Melissa Barclay
Joel Sims
Judit Banhazi
Francesco Patalano
机构：
[1] Vitreoretinal Associates,INSERM, CNRS, Institut de la Vision, CHNO des Quinze
[2] Sorbonne Université,Vingts, National Rare Disease Center REFERET and INSERM
[3] Novartis Pharma AG,DGOS CIC 1423
[4] University of Oxford,Department of Clinical Neurosciences
[5] Oxford Eye Hospital,Centre for Ophthalmology
[6] Oxford University Hospitals NHS Foundation Trust,Discipline of Genetics, Faculty of Medicine
[7] University Hospital Tuebingen,undefined
[8] Memorial University of Newfoundland,undefined
[9] Craig L Dobbin Genetics Research Centre,undefined
[10] Foundation Fighting Blindness,undefined
[11] Adelphi Values Ltd,undefined
来源：
Journal of Patient-Reported Outcomes | / 7卷
关键词：
Retinitis Pigmentosa; Leber Congenital Amaurosis; Visual function symptoms; Health-related quality of life; Observer-reported outcome; Patient-reported outcome; Clinical outcome assessment; Qualitative research; Content validity;
D O I：
暂无
中图分类号：
学科分类号：
摘要：
引用
下载
收藏
相关论文
共 8 条
  • [1] Qualitative exploration of the visual function impairments and impacts on vision-dependent activities of daily living in Retinitis Pigmentosa and Leber Congenital Amaurosis: content validation of the ViSIO-PRO and ViSIO-ObsRO measures
    Kay, Christine
    Audo, Isabelle
    Naujoks, Christel
    Spera, Claudio
    Fischer, M. Dominik
    Green, Jane
    Durham, Todd
    Williamson, Nicola
    Bradley, Helena
    Barclay, Melissa
    Sims, Joel
    Banhazi, Judit
    Patalano, Francesco
    JOURNAL OF PATIENT-REPORTED OUTCOMES, 2023, 7 (01)
  • [2] Psychometric Validation of the ViSIO-PRO and ViSIO-ObsRO in Retinitis Pigmentosa and Leber Congenital Amaurosis
    M. Dominik Fischer
    Francesco Patalano
    Christel Naujoks
    Judit Banhazi
    Christine Bouchet
    Paul O’Brien
    Christine Kay
    Jane Green
    Todd Durham
    Helena Bradley
    Nicola Williamson
    Melissa Barclay
    Joel Sims
    Isabelle Audo
    Ophthalmology and Therapy, 2023, 12 : 1359 - 1386
  • [3] Psychometric Validation of the ViSIO-PRO and ViSIO-ObsRO in Retinitis Pigmentosa and Leber Congenital Amaurosis
    Fischer, M. Dominik
    Patalano, Francesco
    Naujoks, Christel
    Banhazi, Judit
    Bouchet, Christine
    O'Brien, Paul
    Kay, Christine
    Green, Jane
    Durham, Todd
    Bradley, Helena
    Williamson, Nicola
    Barclay, Melissa
    Sims, Joel
    Audo, Isabelle
    OPHTHALMOLOGY AND THERAPY, 2023, 12 (02) : 1359 - 1386
  • [4] Generation of qualitative evidence to support the content validity of the ViSIO-PRO and ViSIO-ObsRO in Retinitis Pigmentosa and Leber Congenital Amaurosis
    Kay, Christine Nichols
    Audo, Isabelle S.
    Bradley, Helena
    Barclay, Melissa
    Sims, Joel
    Boparai, Kieran
    Patalano, Francesco
    Naujoks, Christel
    Spera, Claudio
    Viriato, Daniel
    Fischer, M. Dominik
    Green, Jane
    Durham, Todd
    Williamson, Nicola
    Banhazi, Judit
    INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, 2022, 63 (07)
  • [5] Development of Novel Patient-Reported Outcome (PRO) and Observer-Reported Outcome (ObsRO) Instruments in Retinitis Pigmentosa (RP) and Leber Congenital Amaurosis (LCA): ViSIO-PRO and ViSIO-ObsRO
    Audo, Isabelle
    Patalano, Francesco
    Naujoks, Christel
    Spera, Claudio
    Fischer, M. Dominik
    Green, Jane
    Kay, Christine
    Durham, Todd
    Williamson, Nicola
    Bradley, Helena
    Barclay, Melissa
    Boparai, Kieran
    Banhazi, Judit
    OPHTHALMOLOGY AND THERAPY, 2023, 12 (04) : 2069 - 2085
  • [6] Development of Novel Patient-Reported Outcome (PRO) and Observer-Reported Outcome (ObsRO) Instruments in Retinitis Pigmentosa (RP) and Leber Congenital Amaurosis (LCA): ViSIO-PRO and ViSIO-ObsRO
    Isabelle Audo
    Francesco Patalano
    Christel Naujoks
    Claudio Spera
    M. Dominik Fischer
    Jane Green
    Christine Kay
    Todd Durham
    Nicola Williamson
    Helena Bradley
    Melissa Barclay
    Kieran Boparai
    Judit Banhazi
    Ophthalmology and Therapy, 2023, 12 : 2069 - 2085
  • [7] Qualitative exploration of patient and caregiver experiences of visual function impairments and impacts on vision-dependent activities of daily living and health-related quality of life associated with Retinitis Pigmentosa and Leber Congenital Amaurosis in Germany and France
    Audo, Isabelle
    Williamson, Nicola
    Bradley, Helena
    Barclay, Melissa
    Sims, Joel
    Arbuckle, Rob
    Patalano, Francesco
    Spera, Claudio
    Naujoks, Christel
    Afroz, Nuzhat
    Fischer, M. Dominik
    Durham, Todd
    Banhazi, Judit
    INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, 2021, 62 (08)
  • [8] Qualitative interviews with patients and caregivers regarding visual function impairments and impacts on vision-dependent activities of daily living and health-related quality of life in RPE65-related Retinitis Pigmentosa and Leber Congenital Amaurosis
    Kay, Christine
    Williamson, Nicola
    Bradley, Helena
    Barclay, Melissa
    Sims, Joel
    Arbuckle, Rob
    Spera, Claudio
    Naujoks, Christel
    Afroz, Nuzhat
    Fischer, M. Dominik
    Audo, Isabelle
    Durham, Todd
    Patalano, Francesco
    Banhazi, Judit
    INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, 2021, 62 (08)
1