Psychometric validation of patient-reported outcome (PRO) and observer-reported outcome (ObsRO) measures in Retinitis Pigmentosa and Leber Congenital Amaurosis

被引：0
|
作者：
Audo, Isabelle S. [1 ]
Williamson, Nicola [2 ]
Barclay, Melissa [2 ]
Sims, Joel [2 ]
Boparai, Kieran [2 ]
Patalano, Francesco [3 ]
Naujoks, Christel [3 ]
Spera, Claudio [3 ]
Banhazi, Judit [3 ]
O'Brien, Paul [4 ]
Kay, Christine [5 ]
Green, Jane [6 ]
Durham, Todd [7 ]
Bradley, Helena [2 ]
Fischer, M. Dominik [8 ,9 ]
机构：
[1] Sorbonne Univ, INSERM, CNRS,Inst Vis, CHNO Quinze Vingts REFERET Natl rare Dis Ctr, Paris, France
[2] Adelphi Mill, Adelphi, Cheshire, England
[3] Novartis Pharma AG, Basel, Basel Stadt, Switzerland
[4] Novartis Ireland Ltd, Dublin, Ireland
[5] Univ Florida, Gainesville, FL USA
[6] Mem Univ Newfoundland, Fac Med, Discipline Genet, St John, NF, Canada
[7] Fdn Fighting Blindness Inc, Columbia, MD USA
[8] Univ Tubingen, Ctr Ophthalmol, Tubingen, Germany
[9] Oxford Univ Hosp NHS Fdn Trust, Oxford Eye Hosp, Oxford, England
来源：
INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE | 2022年 / 63卷 / 07期
关键词：
D O I：
暂无
中图分类号：
R77 [眼科学];
学科分类号：
100212 ;
摘要：
2663
引用
收藏
页数：4
相关论文
共 50 条
  • [1] Development of Novel Patient-Reported Outcome (PRO) and Observer-Reported Outcome (ObsRO) Instruments in Retinitis Pigmentosa (RP) and Leber Congenital Amaurosis (LCA): ViSIO-PRO and ViSIO-ObsRO
    Audo, Isabelle
    Patalano, Francesco
    Naujoks, Christel
    Spera, Claudio
    Fischer, M. Dominik
    Green, Jane
    Kay, Christine
    Durham, Todd
    Williamson, Nicola
    Bradley, Helena
    Barclay, Melissa
    Boparai, Kieran
    Banhazi, Judit
    [J]. OPHTHALMOLOGY AND THERAPY, 2023, 12 (04) : 2069 - 2085
  • [2] Development of Novel Patient-Reported Outcome (PRO) and Observer-Reported Outcome (ObsRO) Instruments in Retinitis Pigmentosa (RP) and Leber Congenital Amaurosis (LCA): ViSIO-PRO and ViSIO-ObsRO
    Isabelle Audo
    Francesco Patalano
    Christel Naujoks
    Claudio Spera
    M. Dominik Fischer
    Jane Green
    Christine Kay
    Todd Durham
    Nicola Williamson
    Helena Bradley
    Melissa Barclay
    Kieran Boparai
    Judit Banhazi
    [J]. Ophthalmology and Therapy, 2023, 12 : 2069 - 2085
  • [3] DEVELOPMENT OF PATIENT-REPORTED OUTCOME (PRO) AND OBSERVER-REPORTED OUTCOME (OBSRO) MEASURES FOR ASSESSMENT OF SYMPTOM INTENSITY IN DENGUE ILLNESS
    Saretsky, T.
    Marks, M.
    Sinha, A.
    Cuesta, H.
    Coller, B. A.
    Lee, A. W. T.
    Wells, J. R.
    Gater, A.
    Morrison, A. C.
    Paz-Soldan, V. A.
    Endy, T.
    Thomas, S.
    Panter, C.
    [J]. VALUE IN HEALTH, 2019, 22 : S210 - S210
  • [4] A LANDSCAPE ASSESSMENT OF PATIENT-REPORTED OUTCOME (PRO) AND OBSERVER-REPORTED OUTCOME (OBSRO) MEASURES USED IN CLINICAL TRIALS FOR ATOPIC DERMATITIS (AD)
    Ruban, C.
    Tennant, L.
    Burgess, S. M.
    [J]. VALUE IN HEALTH, 2019, 22 : S176 - S176
  • [5] Psychometric Validation of the ViSIO-PRO and ViSIO-ObsRO in Retinitis Pigmentosa and Leber Congenital Amaurosis
    Fischer, M. Dominik
    Patalano, Francesco
    Naujoks, Christel
    Banhazi, Judit
    Bouchet, Christine
    O'Brien, Paul
    Kay, Christine
    Green, Jane
    Durham, Todd
    Bradley, Helena
    Williamson, Nicola
    Barclay, Melissa
    Sims, Joel
    Audo, Isabelle
    [J]. OPHTHALMOLOGY AND THERAPY, 2023, 12 (02) : 1359 - 1386
  • [6] Psychometric Validation of the ViSIO-PRO and ViSIO-ObsRO in Retinitis Pigmentosa and Leber Congenital Amaurosis
    M. Dominik Fischer
    Francesco Patalano
    Christel Naujoks
    Judit Banhazi
    Christine Bouchet
    Paul O’Brien
    Christine Kay
    Jane Green
    Todd Durham
    Helena Bradley
    Nicola Williamson
    Melissa Barclay
    Joel Sims
    Isabelle Audo
    [J]. Ophthalmology and Therapy, 2023, 12 : 1359 - 1386
  • [7] Patient-Reported Outcome and Observer-Reported Outcome Assessment in Rare Disease Trials
    Acaster, Sarah
    [J]. VALUE IN HEALTH, 2017, 20 (07) : 856 - 857
  • [8] DEVELOPMENT OF PATIENT-REPORTED OUTCOMES (PRO) AND OBSERVER-REPORTED OUTCOMES (OBSRO) MEASURES FOR PEDIATRIC ULCERATIVE COLITIS: CONCEPT ELICITATION FINDINGS
    Yen, L.
    Flood, E.
    Beusterien, K.
    Tucker, J.
    Stout, B.
    Ahmadi, A.
    Silberg, D. G.
    Erder, M.
    [J]. VALUE IN HEALTH, 2013, 16 (03) : A216 - A216
  • [9] Psychometric validation of patient-reported outcome measures assessing chronic constipation
    Nelson, Lauren M.
    Williams, Valerie S. L.
    Fehnel, Sheri E.
    Carson, Robyn T.
    MacDougall, James
    Baird, Mollie J.
    Tourkodimitris, Stavros
    Kurtz, Caroline B.
    Johnston, Jeffrey M.
    [J]. CLINICAL AND EXPERIMENTAL GASTROENTEROLOGY, 2014, 7 : 385 - 393
  • [10] PATIENT-REPORTED OUTCOMES AND OBSERVER-REPORTED OUTCOME ASSESSMENT FOR CHILDHOOD CHRONIC KIDNEY DISEASE
    Tain, Y.
    Hsu, C.
    [J]. VALUE IN HEALTH, 2018, 21 : S100 - S100
12345