Psychometric validation of patient-reported outcome (PRO) and observer-reported outcome (ObsRO) measures in Retinitis Pigmentosa and Leber Congenital Amaurosis

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作者
Audo, Isabelle S. [1 ]
Williamson, Nicola [2 ]
Barclay, Melissa [2 ]
Sims, Joel [2 ]
Boparai, Kieran [2 ]
Patalano, Francesco [3 ]
Naujoks, Christel [3 ]
Spera, Claudio [3 ]
Banhazi, Judit [3 ]
O'Brien, Paul [4 ]
Kay, Christine [5 ]
Green, Jane [6 ]
Durham, Todd [7 ]
Bradley, Helena [2 ]
Fischer, M. Dominik [8 ,9 ]
机构
[1] Sorbonne Univ, INSERM, CNRS,Inst Vis, CHNO Quinze Vingts REFERET Natl rare Dis Ctr, Paris, France
[2] Adelphi Mill, Adelphi, Cheshire, England
[3] Novartis Pharma AG, Basel, Basel Stadt, Switzerland
[4] Novartis Ireland Ltd, Dublin, Ireland
[5] Univ Florida, Gainesville, FL USA
[6] Mem Univ Newfoundland, Fac Med, Discipline Genet, St John, NF, Canada
[7] Fdn Fighting Blindness Inc, Columbia, MD USA
[8] Univ Tubingen, Ctr Ophthalmol, Tubingen, Germany
[9] Oxford Univ Hosp NHS Fdn Trust, Oxford Eye Hosp, Oxford, England
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R77 [眼科学];
学科分类号
100212 ;
摘要
2663
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页数:4
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