Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program

被引：0

作者：

Linda Kwakkenbos

Nora Østbø

Marie-Eve Carrier

Warren R. Nielson

Claire Fedoruk

Brooke Levis

Richard S. Henry

Janet Pope

Tracy Frech

Shadi Gholizadeh

Sindhu R. Johnson

Pamela Piotrowski

Lisa R. Jewett

Jessica Gordon

Lorinda Chung

Dan Bilsker

Lydia Tao

Kimberly A. Turner

Julie Cumin

Joep Welling

Catherine Fortuné

Catarina Leite

Karen Gottesman

Maureen Sauvé

Tatiana Sofia Rodriguez Reyna

Marie Hudson

Maggie Larche

Ward van Breda

Maria E. Suarez-Almazor

Susan J. Bartlett

Vanessa L. Malcarne

Maureen D. Mayes

Isabelle Boutron

Luc Mouthon

Andrea Benedetti

Brett D. Thombs

机构：

[1] Radboud University,Department of Clinical Psychology

[2] Lady Davis Institute of the Jewish General Hospital,Centre for Prognosis Research, School of Medicine

[3] St. Joseph’s Health Care,Department of Psychiatry

[4] Keele University,Department of Medicine

[5] McGill University,Department of Internal Medicine

[6] University of Western Ontario,Toronto Scleroderma Program

[7] University of Utah,Institute of Health Policy, Management, and Evaluation

[8] California School of Professional Psychology/Alliant,Department of Psychology, Institute of Community and Family Psychiatry

[9] Mount Sinai Hospital & Toronto Western Hospital,Department of Medicine

[10] University of Toronto,Department of Medicine

[11] Private practice – Nutrition,Faculty of Health Sciences

[12] Jewish General Hospital,Department of Psychiatry

[13] Hospital for Special Surgery,Department of Medicine

[14] Stanford University,Department of Medicine

[15] Department of Medicine Palo Alto VA Health Care System,Faculty of Behavioural and Movement Sciences

[16] Simon Fraser University,Department of General Internal Medicine

[17] University of British Columbia,Centre for Outcomes Research and Evaluation

[18] NVLE Dutch patient organization for Systemic Autoimmune Diseases,Department of Psychology

[19] Ottawa Scleroderma Support Group,Joint Doctoral Program in Clinical Psychology

[20] University of Minho,Department of Internal Medicine

[21] Scleroderma Foundation,Department of Epidemiology, Biostatistics, and Occupational Health

[22] Scleroderma Canada,Respiratory Epidemiology and Clinical Research Unit

[23] Scleroderma Society of Ontario,Department of Psychology

[24] Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán,Department of Educational and Counselling Psychology

[25] McGill University,Biomedical Ethics Unit

[26] McMaster University and St Joseph’s Healthcare,undefined

[27] Vrije University,undefined

[28] University of Texas MD Anderson Cancer Center,undefined

[29] Research Institute of the McGill University Health Centre,undefined

[30] San Diego State University,undefined

[31] San Diego State University/University of California San Diego,undefined

[32] University of Texas McGovern School of Medicine,undefined

[33] Université de Paris,undefined

[34] Centre of Research Epidemiology and Statistics (CRESS),undefined

[35] Inserm,undefined

[36] INRA,undefined

[37] Centre d’Épidémiologie Clinique,undefined

[38] Assistance Publique–Hôpitaux de Paris (AP-HP),undefined

[39] Hôpital Hôtel Dieu,undefined

[40] Service de Médecine Interne,undefined

[41] Centre de Référence Maladies Autoimmunes Systémiques Rares d’Ile de France,undefined

[42] Hôpital Cochin,undefined

[43] Assistance Publique-Hôpitaux de Paris (AP-HP),undefined

[44] APHP-CUP,undefined

[45] Hôpital Cochin,undefined

[46] Université de Paris,undefined

[47] McGill University,undefined

[48] McGill University Health Centre,undefined

[49] McGill University,undefined

[50] McGill University,undefined

来源：

Pilot and Feasibility Studies | / 8卷

关键词：

Feasibility trial; Scleroderma; Systemic sclerosis; Self-management; Internet intervention; Cohort multiple RCT;

D O I：

暂无

中图分类号：

学科分类号：

摘要：

引用

共 50 条

[41] Bridges self-management program for people with stroke in the community: A feasibility randomized controlled trial
McKenna, Suzanne
Jones, Fiona
Glenfield, Pauline
Lennon, Sheila
INTERNATIONAL JOURNAL OF STROKE, 2015, 10 (05) : 697 - 704
[42] Factors associated with patient-reported likelihood of using online self-care interventions: a Scleroderma Patient-centered Intervention Network (SPIN) cohort study
Kwakkenbos, Linda
Cumin, Julie
Carrier, Marie-Eve
Bartlett, Susan J.
Malcarne, Vanessa L.
Mouthon, Luc
Nielson, Warren R.
Rannou, Francois
Welling, Joep
Thombs, Brett D.
BMJ OPEN, 2019, 9 (10):
[43] Effect of Patient-Centered Self-Management Program on Blood Pressure, Renal Function Control, and the Quality of Life of Patients With Hypertensive Nephropathy: A Longitudinal Randomized Controlled Trial
Lee, Mei-Chen
Wu, Shu-Fang Vivienne
Lu, Kuo-Cheng
Wang, Wen-Hug
Chen, Yen-Yen
Tai, Chun-Yi
BIOLOGICAL RESEARCH FOR NURSING, 2022, 24 (02) : 216 - 225
[44] The Scleroderma Research Topics Survey for Patients and Health Care Professionals: A Scleroderma Patient-centered Intervention Network (SPIN) Project
Tao, Lydia
Cumin, Julie
Turner, Kimberly
Carrier, Marie-Eve
Fedoruk, Claire
Carboni-Jimenez, Andrea
Pepin, Mia
Kwakkenbos, Linda
Thombs, Brett
JOURNAL OF RHEUMATOLOGY, 2019, 46 (07) : 799 - 799
[45] Pain and Self-Efficacy Among Patients With Systemic Sclerosis A Scleroderma Patient-Centered Intervention Network Cohort Study
Wojeck, Robyn K.
Silva, Susan G.
Bailey, Donald E., Jr.
Knisely, Mitchell R.
Kwakkenbos, Linda
Carrier, Marie-Eve
Nielson, Warren R.
Bartlett, Susan J.
Pope, Janet
Thombs, Brett D.
NURSING RESEARCH, 2021, 70 (05) : 334 - 343
[46] Validation of the Self-Efficacy for Managing Chronic Disease Scale: A Scleroderma Patient-Centered Intervention Network Cohort Study
Riehm, Kira E.
Kwakkenbos, Linda
Carrier, Marie-Eve
Bartlett, Susan J.
Malcarne, Vanessa L.
Mouthon, Luc
Nielson, Warren R.
Poiraudeau, Serge
Nielsen, Karen
Baron, Murray
Frech, Tracy
Hudson, Marie
Pope, Janet
Sauve, Maureen
Suarez-Almazor, Maria E.
Wigley, Fredrick M.
Thombs, Brett D.
ARTHRITIS CARE & RESEARCH, 2016, 68 (08) : 1195 - 1200
[47] Effect of patient-centered self-management intervention on glycemic control, self-efficacy, and self-care behaviors in South Asian adults with type 2 diabetes mellitus: A multicenter randomized controlled trial
Asmat, Kainat
Sivarajan Froelicher, Erika
Dhamani, Khairunnisa Aziz
Gul, Raisa
Khan, Nazeer
JOURNAL OF DIABETES, 2024, 16 (09)
[48] Self-Management and Patient-Centered Care: A Response to Fawcett's 2020 Essay
Erickson, Jeanne M.
Polfuss, Michele
NURSING SCIENCE QUARTERLY, 2021, 34 (02) : 217 - 218
[49] Educating Patients about CKD: The Path to Self-Management and Patient-Centered Care
Narva, Andrew S.
Norton, Jenna M.
Boulware, L. Ebony
CLINICAL JOURNAL OF THE AMERICAN SOCIETY OF NEPHROLOGY, 2016, 11 (04): : 694 - 703
[50] Patient-Centered Self-Management in Patients with Chronic Kidney Disease: Challenges and Implications
Lin, Chiu-Chu
Hwang, Shang-Jyh
INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2020, 17 (24) : 1 - 13

← 1 2 3 4 5 →