Randomized feasibility trial of the Scleroderma Patient-centered Intervention Network Self-Management (SPIN-SELF) Program

被引:0
|
作者
Linda Kwakkenbos
Nora Østbø
Marie-Eve Carrier
Warren R. Nielson
Claire Fedoruk
Brooke Levis
Richard S. Henry
Janet Pope
Tracy Frech
Shadi Gholizadeh
Sindhu R. Johnson
Pamela Piotrowski
Lisa R. Jewett
Jessica Gordon
Lorinda Chung
Dan Bilsker
Lydia Tao
Kimberly A. Turner
Julie Cumin
Joep Welling
Catherine Fortuné
Catarina Leite
Karen Gottesman
Maureen Sauvé
Tatiana Sofia Rodriguez Reyna
Marie Hudson
Maggie Larche
Ward van Breda
Maria E. Suarez-Almazor
Susan J. Bartlett
Vanessa L. Malcarne
Maureen D. Mayes
Isabelle Boutron
Luc Mouthon
Andrea Benedetti
Brett D. Thombs
机构
[1] Radboud University,Department of Clinical Psychology
[2] Lady Davis Institute of the Jewish General Hospital,Centre for Prognosis Research, School of Medicine
[3] St. Joseph’s Health Care,Department of Psychiatry
[4] Keele University,Department of Medicine
[5] McGill University,Department of Internal Medicine
[6] University of Western Ontario,Toronto Scleroderma Program
[7] University of Utah,Institute of Health Policy, Management, and Evaluation
[8] California School of Professional Psychology/Alliant,Department of Psychology, Institute of Community and Family Psychiatry
[9] Mount Sinai Hospital & Toronto Western Hospital,Department of Medicine
[10] University of Toronto,Department of Medicine
[11] Private practice – Nutrition,Faculty of Health Sciences
[12] Jewish General Hospital,Department of Psychiatry
[13] Hospital for Special Surgery,Department of Medicine
[14] Stanford University,Department of Medicine
[15] Department of Medicine Palo Alto VA Health Care System,Faculty of Behavioural and Movement Sciences
[16] Simon Fraser University,Department of General Internal Medicine
[17] University of British Columbia,Centre for Outcomes Research and Evaluation
[18] NVLE Dutch patient organization for Systemic Autoimmune Diseases,Department of Psychology
[19] Ottawa Scleroderma Support Group,Joint Doctoral Program in Clinical Psychology
[20] University of Minho,Department of Internal Medicine
[21] Scleroderma Foundation,Department of Epidemiology, Biostatistics, and Occupational Health
[22] Scleroderma Canada,Respiratory Epidemiology and Clinical Research Unit
[23] Scleroderma Society of Ontario,Department of Psychology
[24] Instituto Nacional de Ciencias Médicas y Nutrición Salvador Zubirán,Department of Educational and Counselling Psychology
[25] McGill University,Biomedical Ethics Unit
[26] McMaster University and St Joseph’s Healthcare,undefined
[27] Vrije University,undefined
[28] University of Texas MD Anderson Cancer Center,undefined
[29] Research Institute of the McGill University Health Centre,undefined
[30] San Diego State University,undefined
[31] San Diego State University/University of California San Diego,undefined
[32] University of Texas McGovern School of Medicine,undefined
[33] Université de Paris,undefined
[34] Centre of Research Epidemiology and Statistics (CRESS),undefined
[35] Inserm,undefined
[36] INRA,undefined
[37] Centre d’Épidémiologie Clinique,undefined
[38] Assistance Publique–Hôpitaux de Paris (AP-HP),undefined
[39] Hôpital Hôtel Dieu,undefined
[40] Service de Médecine Interne,undefined
[41] Centre de Référence Maladies Autoimmunes Systémiques Rares d’Ile de France,undefined
[42] Hôpital Cochin,undefined
[43] Assistance Publique-Hôpitaux de Paris (AP-HP),undefined
[44] APHP-CUP,undefined
[45] Hôpital Cochin,undefined
[46] Université de Paris,undefined
[47] McGill University,undefined
[48] McGill University Health Centre,undefined
[49] McGill University,undefined
[50] McGill University,undefined
关键词
Feasibility trial; Scleroderma; Systemic sclerosis; Self-management; Internet intervention; Cohort multiple RCT;
D O I
暂无
中图分类号
学科分类号
摘要
引用
收藏
相关论文
共 50 条
  • [21] The Scleroderma Patient-centered Intervention Network (SPIN): Engaging Patients in Rheumatology Research
    Fedoruk, Claire
    Kwakkenbos, Linda
    Carrier, Marie-Eve
    Rice, Danielle
    Turner, Kimberly
    Canedo-Ayala, Mara
    Carboni-Jimenez, Andrea
    Tao, Lydia
    Harb, Sami
    Gholizadeh, Shadi
    Aguila, Kylene
    Thombs, Brett
    JOURNAL OF RHEUMATOLOGY, 2019, 46 (07) : 840 - 840
  • [22] Results on health-related quality of life and functionality of a patient-centered self-management program in hospitalized COPD: a randomized control trial
    Lopez-Lopez, Laura
    Carmen Valenza, Marie
    Rodriguez-Torres, Janet
    Torres-Sanchez, Irene
    Granados-Santiago, Maria
    Valenza-Demet, Gerald
    DISABILITY AND REHABILITATION, 2020, 42 (25) : 3687 - 3695
  • [23] Improving Self-Management Skills Through Patient-Centered Communication
    Johnson, Kiana R.
    McMorris, Barbara J.
    MapelLentz, Sarah
    Scal, Peter
    JOURNAL OF ADOLESCENT HEALTH, 2015, 57 (06) : 666 - 672
  • [24] Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial
    Kwakkenbos, Linda
    Carrier, Marie-Eve
    Welling, Joep
    Levis, Brooke
    Levis, Alexander
    Sauve, Maureen
    Turner, Kimberly
    Tao, Lydia
    Aguila, Kylene
    Carboni-Jimenez, Andrea
    Canedo-Ayala, Mara
    Harb, Sami
    van den Ende, Cornelia
    Hudson, Marie
    van Breda, Ward
    Nguyen, Christelle
    Boutron, Isabelle
    Rannou, Francois
    Thombs, Brett
    Mouthon, Luc
    TRIALS, 2022, 23 (01)
  • [25] Randomized controlled trial of an internet-based self-guided hand exercise program to improve hand function in people with systemic sclerosis: the Scleroderma Patient-centered Intervention Network Hand Exercise Program (SPIN-HAND) trial
    Linda Kwakkenbos
    Marie-Eve Carrier
    Joep Welling
    Brooke Levis
    Alexander W. Levis
    Maureen Sauve
    Kimberly A. Turner
    Lydia Tao
    Kylene Aguila
    Andrea Carboni-Jiménez
    Mara Cañedo-Ayala
    Sami Harb
    Cornelia van den Ende
    Marie Hudson
    Ward van Breda
    Christelle Nguyen
    Isabelle Boutron
    François Rannou
    Brett D. Thombs
    Luc Mouthon
    Trials, 23
  • [26] The effect of patient-centered empowerment program through telenursing on self-management in people with multiple sclerosis: a double-blinded randomized clinical trial
    Bayat, Fateme
    Negarandeh, Reza
    Pashaeypoor, Shahzad
    BMC NEUROLOGY, 2025, 25 (01)
  • [27] Protocol for a partially nested randomized controlled trial to evaluate the effectiveness of the Scleroderma Patient-centered Intervention Network Support Group Leader EDucation (SPIN-SSLED) Program
    Brett D. Thombs
    Kylene Aguila
    Laura Dyas
    Marie-Eve Carrier
    Claire Fedoruk
    Linda Horwood
    Mara Cañedo-Ayala
    Maureen Sauvé
    Linda Kwakkenbos
    Vanessa L. Malcarne
    Ghassan El-Baalbaki
    Sandra Peláez
    Kerri Connolly
    Marie Hudson
    Robert W. Platt
    Trials, 20
  • [28] Protocol for a partially nested randomized controlled trial to evaluate the effectiveness of the Scleroderma Patient-centered Intervention Network Support Group Leader EDucation (SPIN-SSLED) Program
    Thombs, Brett D.
    Aguila, Kylene
    Dyas, Laura
    Carrier, Marie-Eve
    Fedoruk, Claire
    Horwood, Linda
    Canedo-Ayala, Mara
    Sauve, Maureen
    Kwakkenbos, Linda
    Malcarne, Vanessa L.
    El-Baalbaki, Ghassan
    Pelaez, Sandra
    Connolly, Kerri
    Hudson, Marie
    Platt, Robert W.
    Elrod, Stephen
    Fortune, Catherine
    Gottesman, Karen
    Nielsen, Karen
    Guillot, Genevieve
    Rozee, Ken
    Gielzen, Amy
    Richard, Michelle
    Stephens, Nancy
    TRIALS, 2019, 20 (01)
  • [29] Self-Management Support Activities in Patient-Centered Medical Home Practices
    Cohen, Marya J.
    Morton, Suzanne
    Scholle, Sarah Hudson
    Solberg, Leif I.
    Kormos, William A.
    JOURNAL OF AMBULATORY CARE MANAGEMENT, 2014, 37 (04): : 349 - 358
  • [30] Online Self-Management in Rheumatoid Arthritis: A Patient-Centered Model Application
    Smarr, Karen L.
    Musser, Dale R.
    Shigaki, Cheryl L.
    Johnson, Rebecca
    Hanson, Kathleen Donovan
    Siva, Chokkalingam
    TELEMEDICINE AND E-HEALTH, 2011, 17 (02) : 104 - 110