A National Network of Safe Havens: Scottish Perspective

被引:8
|
作者
Gao, Chuang [1 ]
McGilchrist, Mark [1 ]
Mumtaz, Shahzad [1 ]
Hall, Christopher [1 ]
Anderson, Lesley Ann [2 ]
Zurowski, John [3 ]
Gordon, Sharon [4 ]
Lumsden, Joanne [4 ]
Munro, Vicky [4 ]
Wozniak, Artur [4 ]
Sibley, Michael [5 ]
Banks, Christopher [5 ]
Duncan, Chris [6 ]
Linksted, Pamela [6 ]
Hume, Alastair [7 ]
Stables, Catherine L. [8 ]
Mayor, Charlie [9 ]
Caldwell, Jacqueline [5 ]
Wilde, Katie [4 ]
Cole, Christian [1 ]
Jefferson, Emily [1 ]
机构
[1] Univ Dundee, Ninewells Hosp & Med Sch, Hlth Informat Ctr, Mail Box 15, Dundee DD1 9SY, Scotland
[2] Univ Aberdeen, Ctr Hlth Data Sci, Aberdeen, Scotland
[3] Queen Elizabeth Univ Hosp, Imaging Ctr Excellence, Glasgow, Lanark, Scotland
[4] Univ Aberdeen, Aberdeen Ctr Hlth Data Sci, Grampian Data Safe Haven, Aberdeen, Scotland
[5] Publ Hlth Scotland, Elect Data Res & Innovat Serv, Edinburgh, Midlothian, Scotland
[6] Natl Hlth Serv Lothian, Lothian Res Safe Haven, Dept Publ Hlth & Hlth Policy, Edinburgh, Midlothian, Scotland
[7] Univ Edinburgh, EPCC, Edinburgh, Midlothian, Scotland
[8] Univ Edinburgh, Usher Inst, DataLoch, Edinburgh, Midlothian, Scotland
[9] Natl Hlth Serv Greater Glasgow & Clyde, Res & Dev Div, Glasgow Safe Haven, Glasgow, Lanark, Scotland
基金
英国经济与社会研究理事会; 英国工程与自然科学研究理事会; 英国惠康基金; 英国医学研究理事会;
关键词
electronic health records; Safe Haven; data governance;
D O I
10.2196/31684
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
For over a decade, Scotland has implemented and operationalized a system of Safe Havens, which provides secure analytics platforms for researchers to access linked, deidentified electronic health records (EHRs) while managing the risk of unauthorized reidentification. In this paper, a perspective is provided on the state-of-the-art Scottish Safe Haven network, including its evolution, to define the key activities required to scale the Scottish Safe Haven network's capability to facilitate research and health care improvement initiatives. A set of processes related to EHR data and their delivery in Scotland have been discussed. An interview with each Safe Haven was conducted to understand their services in detail, as well as their commonalities. The results show how Safe Havens in Scotland have protected privacy while facilitating the reuse of the EHR data. This study provides a common definition of a Safe Haven and promotes a consistent understanding among the Scottish Safe Haven network and the clinical and academic research community. We conclude by identifying areas where efficiencies across the network can be made to meet the needs of population-level studies at scale.
引用
收藏
页数:16
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