Quality-of-life concerns of African American breast cancer survivors within rural North Carolina:: Blending the techniques of photovoice and grounded theory

被引:122
|
作者
López, EDS
Eng, E
Randall-David, E
Robinson, N
机构
[1] Univ Florida, Coll Publ Hlth & Hlth Profess, Dept Clin & Hlth Psychol, Gainesville, FL 32610 USA
[2] Univ N Carolina, Sch Publ Hlth, Dept Hlth Behav & Hlth Educ, Chapel Hill, NC 27515 USA
[3] Ctr Creat Educ, Durham, NC USA
[4] Surviving Angels Eastern N Carolina Witness Life, Williamston, NC USA
关键词
cancer survivorship; photovoice; grounded theory; African American; participatory action research; quality of life;
D O I
10.1177/1049732304270766
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Social norms imposing a prevailing silence around breast cancer in rural African American communities have made it difficult for survivors to express their quality-of-life (QOL) concerns. In this article, the authors describe how they blended the photovoice method (providing participants with cameras so they can record, discuss, and relate the realities of their lives) with grounded theory techniques to assist 13 African American breast cancer survivors from rural eastern North Carolina in (a) exploring how they perceive and address their QOL within their own social context and (b) developing a conceptual framework of survivorship QOL. The framework that emerged reveals that three social forces (racism, stigmas regarding cancer, and cultural expectations of African American women) drive four QOL concerns (seeking safe sources of support, adjusting to the role of cancer survivor, feeling comfortable about the future, and serving as role models) and that survivors address these concerns by relying on spiritual faith and devising strategies to maintain social standing.
引用
收藏
页码:99 / 115
页数:17
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