Quality-of-life concerns of African American breast cancer survivors within rural North Carolina:: Blending the techniques of photovoice and grounded theory

被引:122
|
作者
López, EDS
Eng, E
Randall-David, E
Robinson, N
机构
[1] Univ Florida, Coll Publ Hlth & Hlth Profess, Dept Clin & Hlth Psychol, Gainesville, FL 32610 USA
[2] Univ N Carolina, Sch Publ Hlth, Dept Hlth Behav & Hlth Educ, Chapel Hill, NC 27515 USA
[3] Ctr Creat Educ, Durham, NC USA
[4] Surviving Angels Eastern N Carolina Witness Life, Williamston, NC USA
关键词
cancer survivorship; photovoice; grounded theory; African American; participatory action research; quality of life;
D O I
10.1177/1049732304270766
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
Social norms imposing a prevailing silence around breast cancer in rural African American communities have made it difficult for survivors to express their quality-of-life (QOL) concerns. In this article, the authors describe how they blended the photovoice method (providing participants with cameras so they can record, discuss, and relate the realities of their lives) with grounded theory techniques to assist 13 African American breast cancer survivors from rural eastern North Carolina in (a) exploring how they perceive and address their QOL within their own social context and (b) developing a conceptual framework of survivorship QOL. The framework that emerged reveals that three social forces (racism, stigmas regarding cancer, and cultural expectations of African American women) drive four QOL concerns (seeking safe sources of support, adjusting to the role of cancer survivor, feeling comfortable about the future, and serving as role models) and that survivors address these concerns by relying on spiritual faith and devising strategies to maintain social standing.
引用
收藏
页码:99 / 115
页数:17
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  • [21] Quality of Life for African-American Breast Cancer Survivors: A Population-Based Study of 210 Patients
    Howard-McNatt, Marissa
    Stewart, John H.
    Clark, Clancy J.
    [J]. ANNALS OF SURGICAL ONCOLOGY, 2015, 22 : 61 - 62
  • [22] Contextual factors influencing health-related quality of life in African American and Latina breast cancer survivors
    Aria M. Miller
    Kimlin Tam Ashing
    Naomi N. Modeste
    R. Patti Herring
    Diadrey-Anne T. Sealy
    [J]. Journal of Cancer Survivorship, 2015, 9 : 441 - 449
  • [23] Understanding the relationship between positive and negative social support and the quality of life among African American breast cancer survivors
    Strayhorn, Shaila M.
    Bergeron, Nyahne Q.
    Strahan, Desmona C.
    Villines, Dana
    Fitzpatrick, Veronica
    Watson, Karriem S.
    Khanna, Aditya
    Molina, Yamile
    [J]. SUPPORTIVE CARE IN CANCER, 2021, 29 (09) : 5219 - 5226
  • [24] Quality of life and psychosocial outcomes in long-term survivors of breast cancer: A focus on African-American women
    Ashing-Giwa, K
    [J]. JOURNAL OF PSYCHOSOCIAL ONCOLOGY, 1999, 17 (3-4) : 47 - 62
  • [25] PERCEPTIONS ABOUT FAMILY CRISIS COPING AMONG AFRICAN-AMERICAN BREAST CANCER SURVIVORS: IMPLICATIONS FOR QUALITY OF LIFE
    Shaw, Mary
    McInvale, Kathleen
    Gabbidon, Kemesha
    [J]. JOURNAL OF WOMENS HEALTH, 2017, 26 (04) : A49 - A50
  • [26] Understanding the relationship between positive and negative social support and the quality of life among African American breast cancer survivors
    Shaila M. Strayhorn
    Nyahne Q. Bergeron
    Desmona C. Strahan
    Dana Villines
    Veronica Fitzpatrick
    Karriem S. Watson
    Aditya Khanna
    Yamilé Molina
    [J]. Supportive Care in Cancer, 2021, 29 : 5219 - 5226
  • [27] Understanding Racial Differences in Health-Related Quality of Life in a Diverse, Population-Based Cohort of Breast Cancer Survivors in North Carolina
    Pinheiro, Laura C.
    Samuel, Cleo A.
    Reeder-Hayes, Katherine E.
    Wheeler, Stephanie B.
    Olshan, Andrew F.
    Reeve, Bryce B.
    [J]. CANCER EPIDEMIOLOGY BIOMARKERS & PREVENTION, 2017, 26 (02)
  • [28] Elucidating emotional closeness within the Theory of Health-Related Family Quality of Life: evidence from breast cancer survivors
    Radina, M. Elise
    Deer, Briana L.
    Herriman, Rachael A.
    Jagpal, Anjana
    Dodd, Mallory M.
    Kawamura, Kaylie L.
    Clark, Lindsay C.
    [J]. BMC RESEARCH NOTES, 2019, 12 (1)
  • [29] Elucidating emotional closeness within the Theory of Health-Related Family Quality of Life: evidence from breast cancer survivors
    M. Elise Radina
    Briana L. Deer
    Rachael A. Herriman
    Anjana Jagpal
    Mallory M. Dodd
    Kaylie L. Kawamura
    Lindsay C. Clark
    [J]. BMC Research Notes, 12
  • [30] Psychosocial protective interventions associated with a better quality of life and psychological wellbeing for African American/Black female breast cancer survivors: an integrative review
    Gordon, Talya
    Lee, Lena J.
    Tchangalova, Nedelina
    Brooks, Alyssa T.
    [J]. SUPPORTIVE CARE IN CANCER, 2022, 30 (02) : 1093 - 1114