Consensus guidelines into the management of epilepsy in adults with an intellectual disability

被引:58
|
作者
Kerr, M. [1 ]
Scheepers, M. [2 ]
Arvio, M. [3 ]
Beavis, J.
Brandt, C. [4 ]
Brown, S. [5 ]
Huber, B. [6 ]
Iivanainen, M. [7 ,8 ]
Louisse, A. C. [9 ]
Martin, P. [10 ]
Marson, A. G. [11 ]
Prasher, V. [12 ]
Singh, B. K. [13 ]
Veendrick, M. [14 ]
Wallace, R. A. [15 ]
机构
[1] Cardiff Univ, Sch Med, Welsh Ctr Learning Disabil, Cardiff CF14 1YS, S Glam, Wales
[2] Heathfield, Gloucester, England
[3] Paijat Hame Cent Hosp, Lahti, Finland
[4] Bethel Epilepsy Ctr, Dept Gen Epileptol, Bielefeld, Germany
[5] Peninsula Med Sch, Cornwall Partnership NHS Trust, Neuropsychiat Epilepsy & Memory Serv, Plymouth, Cornwall, England
[6] Bethel Epilepsy Ctr, Bielefeld, Germany
[7] Univ Helsinki, Dept Child Neurol, Helsinki, Finland
[8] Rinnekoti Res Ctr, Espoo, Finland
[9] Ipse Bruggen, Zwammerdam, Netherlands
[10] Epilepsy Ctr, Seguin Clin Adults Severe Intellectual Disabil, Kork, Kehl Kork, Germany
[11] Univ Liverpool, Unit Neurol Sci, Liverpool L69 3BX, Merseyside, England
[12] Monyhull Birmingham & John Moores Univ, Liverpool, Merseyside, England
[13] New York Med Coll, Westchester Inst Human Dev, Valhalla, NY 10595 USA
[14] Kempenhaage, Heeze, Netherlands
[15] Specialist Healthcare Adults Intellectual Disabil, Hobart, Tas, Australia
关键词
epilepsy; intellectual disability guidelines consensus; ANTIEPILEPTIC DRUGS; LEARNING-DISABILITY; OUTCOME MEASURES; DOUBLE-BLIND; SEIZURES; TRIAL; TOPIRAMATE; STATEMENT;
D O I
10.1111/j.1365-2788.2009.01182.x
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
Background Epilepsy has a pervasive impact on the lives of people with intellectual disability and their carers. The delivery of high-quality care is impacted on by the complexity and diversity of epilepsy in this population. This article presents the results of a consensus clinical guideline process. Results A Delphi process identified a list of priority areas for the development of evidence-based guidelines. All guidelines were graded and consensus on scoring was achieved across the guideline group. Conclusion There is a dearth of high-quality evidence from well-constructed studies on which to base guidance. However, the development of internationally derived consensus guidelines may further support the management of epilepsy in adults with an intellectual disability.
引用
收藏
页码:687 / 694
页数:8
相关论文
共 50 条
  • [41] The IDSA/ATS consensus guidelines on the management of CAP in adults
    Piffer, F.
    Tardini, F.
    Cosentini, R.
    BREATHE, 2007, 4 (02) : 110 - 115
  • [42] Dutch consensus on diagnosis and treatment of hearing impairment in children and adults with intellectual disability
    Evenhuis, HM
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 1996, 40 : 451 - 456
  • [43] Anti-epileptics, psychotropic drugs and seizures in adults with epilepsy and intellectual disability
    Monaghan, Rosemary
    O'Dwyer, Maire
    Luus, Retha
    Mulryan, Niamh
    McCallion, Philip
    McCarron, Mary
    Henman, Martin Charles
    JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2021, 34 (05) : 1316 - 1317
  • [44] Nitric oxide and interlukin-6 levels in intellectual disability adults with epilepsy
    Carmeli, Eli
    Beiker, Reut
    Morad, Mohammed
    RESEARCH IN DEVELOPMENTAL DISABILITIES, 2009, 30 (03) : 567 - 571
  • [45] The phenotypic and genotypic spectrum of epilepsy and intellectual disability in adults: Implications for genetic testing
    von Brauchitsch, Sophie
    Haslinger, Denise
    Lindlar, Silvia
    Thiele, Holger
    Bernsen, Natalie
    Zahnert, Felix
    Reif, Philipp S.
    Balcik, Yunus
    Au, Ping Yee Billie
    Josephson, Colin B.
    Altmueller, Janine
    Strzelczyk, Adam
    Knake, Susanne
    Rosenow, Felix
    Chiocchetti, Andreas
    Klein, Karl Martin
    EPILEPSIA OPEN, 2023, 8 (02) : 497 - 508
  • [46] A prospective case control study of psychiatric disorders in adults with epilepsy and intellectual disability
    Turky, Amna
    Felce, David
    Jones, Glyn
    Kerr, Mike
    EPILEPSIA, 2011, 52 (07) : 1223 - 1230
  • [47] Impact of intellectual and developmental disability on quality-of-life priorities in adults with epilepsy
    Chiang, Sharon
    Moss, Robert
    Meskis, Mary Anne
    Vogel-Farley, Vanessa
    Sullivan, Joseph E.
    Patel, Anup D.
    Rao, Vikram R.
    EPILEPSY & BEHAVIOR, 2021, 123
  • [48] Epidemiology of Epilepsy in Older Adults With an Intellectual Disability in Ireland: Associations and Service Implications
    McCarron, Mary
    O'Dwyer, Marie
    Burke, Eilish
    McGlinchey, Eimear
    McCallion, Philip
    AJIDD-AMERICAN JOURNAL ON INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, 2014, 119 (03): : 253 - 260
  • [49] PREVALENT AND INCIDENT MORPHOMETRIC VERTEBRAL FRACTURES IN ADULTS WITH REFRACTORY EPILEPSY AND INTELLECTUAL DISABILITY
    Berkvens, J. J. L.
    Majoie, H. J. M.
    Beerhorst, K.
    Mergler, S.
    Verschuure, P.
    Tan, I. Y.
    van den Bergh, J. P. W.
    OSTEOPOROSIS INTERNATIONAL, 2019, 30 : S639 - S639
  • [50] New anticonvulsants in the treatment of epilepsy in adolescents and adults suffering from an intellectual disability
    Froescher, W.
    Uhlmann, C.
    NERVENHEILKUNDE, 2009, 28 (08) : 540 - 547