Consensus guidelines into the management of epilepsy in adults with an intellectual disability

被引：58

作者：

Kerr, M. ^{[1
]}

Scheepers, M. ^{[2
]}

Arvio, M. ^{[3
]}

Beavis, J.

Brandt, C. ^{[4
]}

Brown, S. ^{[5
]}

Huber, B. ^{[6
]}

Iivanainen, M. ^{[7
,8
]}

Louisse, A. C. ^{[9
]}

Martin, P. ^{[10
]}

Marson, A. G. ^{[11
]}

Prasher, V. ^{[12
]}

Singh, B. K. ^{[13
]}

Veendrick, M. ^{[14
]}

Wallace, R. A. ^{[15
]}

机构：

[1] Cardiff Univ, Sch Med, Welsh Ctr Learning Disabil, Cardiff CF14 1YS, S Glam, Wales

[2] Heathfield, Gloucester, England

[3] Paijat Hame Cent Hosp, Lahti, Finland

[4] Bethel Epilepsy Ctr, Dept Gen Epileptol, Bielefeld, Germany

[5] Peninsula Med Sch, Cornwall Partnership NHS Trust, Neuropsychiat Epilepsy & Memory Serv, Plymouth, Cornwall, England

[6] Bethel Epilepsy Ctr, Bielefeld, Germany

[7] Univ Helsinki, Dept Child Neurol, Helsinki, Finland

[8] Rinnekoti Res Ctr, Espoo, Finland

[9] Ipse Bruggen, Zwammerdam, Netherlands

[10] Epilepsy Ctr, Seguin Clin Adults Severe Intellectual Disabil, Kork, Kehl Kork, Germany

[11] Univ Liverpool, Unit Neurol Sci, Liverpool L69 3BX, Merseyside, England

[12] Monyhull Birmingham & John Moores Univ, Liverpool, Merseyside, England

[13] New York Med Coll, Westchester Inst Human Dev, Valhalla, NY 10595 USA

[14] Kempenhaage, Heeze, Netherlands

[15] Specialist Healthcare Adults Intellectual Disabil, Hobart, Tas, Australia

来源：

JOURNAL OF INTELLECTUAL DISABILITY RESEARCH | 2009年 / 53卷

关键词：

epilepsy; intellectual disability guidelines consensus; ANTIEPILEPTIC DRUGS; LEARNING-DISABILITY; OUTCOME MEASURES; DOUBLE-BLIND; SEIZURES; TRIAL; TOPIRAMATE; STATEMENT;

D O I：

10.1111/j.1365-2788.2009.01182.x

中图分类号：

G76 [特殊教育];

学科分类号：

040109 ;

摘要：

Background Epilepsy has a pervasive impact on the lives of people with intellectual disability and their carers. The delivery of high-quality care is impacted on by the complexity and diversity of epilepsy in this population. This article presents the results of a consensus clinical guideline process. Results A Delphi process identified a list of priority areas for the development of evidence-based guidelines. All guidelines were graded and consensus on scoring was achieved across the guideline group. Conclusion There is a dearth of high-quality evidence from well-constructed studies on which to base guidance. However, the development of internationally derived consensus guidelines may further support the management of epilepsy in adults with an intellectual disability.

引用

页码：687 / 694

页数：8

共 50 条

[21] EPILEPSY IN ADULTS WITH CHALLENGING BEHAVIOUR AND INTELLECTUAL DISABILITY: AN EXPLORATORY STUDY
Blickwedel, J.
Walker, M.
Hassiotis, A.
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2015, 59 : 93 - 93
[22] Prevalence of copy number variation in adults with epilepsy and intellectual disability
Borlot, Felippe
Bassett, Anne
Regan, Brigid
Stavropoulos, James
Andrade, Danielle
NEUROLOGY, 2017, 88
[23] Use of topiramate for refractory epilepsy in adults and children with intellectual disability
Sullivan, H
Hooper, M
Brown, S
EPILEPSIA, 2005, 46 : 218 - 218
[24] Consensus statement: Menstrual and contraceptive management in women with an intellectual disability
Atkinson, E
Bennett, MJ
Dudley, J
Grover, S
Matthews, K
Moore, P
Quinlivan, J
Walters, T
AUSTRALIAN & NEW ZEALAND JOURNAL OF OBSTETRICS & GYNAECOLOGY, 2003, 43 (02): : 109 - 110
[25] INTERNATIONAL CONSENSUS GUIDELINES: REASONABLE ADJUSTMENTS IN THE MANAGEMENT OF TYPE 2 DIABETES IN ADULTS WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES
Truesdale, M.
Taggart, L.
Trip, H.
Conder, J.
Whitehead, L.
Scott, J.
Rouse, L.
Lunsky, Y.
Redquest, B.
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2019, 63 (07) : 813 - 813
[26] Mood, anxiety, and perceived quality of life in adults with epilepsy and intellectual disability
Snoeijen-Schouwenaars, Francesca M.
van Ool, Jans S.
Tan, In Y.
Aldenkamp, Albert P.
Schelhaas, Helenius J.
Hendriksen, Jos G. M.
ACTA NEUROLOGICA SCANDINAVICA, 2019, 139 (06): : 519 - 525
[27] Clinical utility of multigene panel testing in adults with epilepsy and intellectual disability
Borlot, Felippe
de Almeida, Bruno Ivo
Combe, Shari L.
Andrade, Danielle M.
Filloux, Francis M.
Myers, Kenneth A.
EPILEPSIA, 2019, 60 (08) : 1661 - 1669
[28] Features of epilepsy in a population-based cohort of adults with intellectual disability
Deb, S
Joyce, J
JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2000, 44 : 259 - 260
[29] Use of levomepromazine in the management of aggression in adults with intellectual disability
Devapriam, John
Gibbons, Simon
Pannu, Harrashpal
Bhaumik, Sabyasachi
BRITISH JOURNAL OF DEVELOPMENTAL DISABILITIES, 2008, 54 (106): : 11 - 17
[30] Epilepsy in Older Adults with an Intellectual Disability in Ireland: Associations and Service Implications
McCarron, M.
McGlinchey, E.
Burke, E.
O'Dwyer, M.
McCallion, P.
IRISH JOURNAL OF MEDICAL SCIENCE, 2013, 182 : S263 - S263

← 1 2 3 4 5 →