Consensus guidelines into the management of epilepsy in adults with an intellectual disability

被引:58
|
作者
Kerr, M. [1 ]
Scheepers, M. [2 ]
Arvio, M. [3 ]
Beavis, J.
Brandt, C. [4 ]
Brown, S. [5 ]
Huber, B. [6 ]
Iivanainen, M. [7 ,8 ]
Louisse, A. C. [9 ]
Martin, P. [10 ]
Marson, A. G. [11 ]
Prasher, V. [12 ]
Singh, B. K. [13 ]
Veendrick, M. [14 ]
Wallace, R. A. [15 ]
机构
[1] Cardiff Univ, Sch Med, Welsh Ctr Learning Disabil, Cardiff CF14 1YS, S Glam, Wales
[2] Heathfield, Gloucester, England
[3] Paijat Hame Cent Hosp, Lahti, Finland
[4] Bethel Epilepsy Ctr, Dept Gen Epileptol, Bielefeld, Germany
[5] Peninsula Med Sch, Cornwall Partnership NHS Trust, Neuropsychiat Epilepsy & Memory Serv, Plymouth, Cornwall, England
[6] Bethel Epilepsy Ctr, Bielefeld, Germany
[7] Univ Helsinki, Dept Child Neurol, Helsinki, Finland
[8] Rinnekoti Res Ctr, Espoo, Finland
[9] Ipse Bruggen, Zwammerdam, Netherlands
[10] Epilepsy Ctr, Seguin Clin Adults Severe Intellectual Disabil, Kork, Kehl Kork, Germany
[11] Univ Liverpool, Unit Neurol Sci, Liverpool L69 3BX, Merseyside, England
[12] Monyhull Birmingham & John Moores Univ, Liverpool, Merseyside, England
[13] New York Med Coll, Westchester Inst Human Dev, Valhalla, NY 10595 USA
[14] Kempenhaage, Heeze, Netherlands
[15] Specialist Healthcare Adults Intellectual Disabil, Hobart, Tas, Australia
关键词
epilepsy; intellectual disability guidelines consensus; ANTIEPILEPTIC DRUGS; LEARNING-DISABILITY; OUTCOME MEASURES; DOUBLE-BLIND; SEIZURES; TRIAL; TOPIRAMATE; STATEMENT;
D O I
10.1111/j.1365-2788.2009.01182.x
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
Background Epilepsy has a pervasive impact on the lives of people with intellectual disability and their carers. The delivery of high-quality care is impacted on by the complexity and diversity of epilepsy in this population. This article presents the results of a consensus clinical guideline process. Results A Delphi process identified a list of priority areas for the development of evidence-based guidelines. All guidelines were graded and consensus on scoring was achieved across the guideline group. Conclusion There is a dearth of high-quality evidence from well-constructed studies on which to base guidance. However, the development of internationally derived consensus guidelines may further support the management of epilepsy in adults with an intellectual disability.
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页码:687 / 694
页数:8
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