The UK Registry of Rare Renal Disease (RaDaR) Enables Research Studies on a National Scale

被引:0
|
作者
McCarthy, H. [1 ]
Ansell, D. [2 ]
Braddon, F. [2 ]
Taylor, M. [3 ]
Saleem, M. [1 ]
机构
[1] Univ Bristol, Bristol, Avon, England
[2] UK Renal Registry, Bristol, Avon, England
[3] Birmingham Childrens Hosp, Birmingham, W Midlands, England
关键词
D O I
暂无
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
390
引用
收藏
页码:1872 / 1873
页数:2
相关论文
共 50 条
  • [41] UK Renal Registry 17th Annual Report: Chapter 1 UK Renal Replacement Therapy Incidence in 2013: National and Centre-specific Analyses
    Gilg, Julie
    Pruthi, Rishi
    Fogarty, Damian
    NEPHRON, 2015, 129 : 1 - 29
  • [42] UK Renal Registry 17th Annual Report: Chapter 2 UK Renal Replacement Therapy Prevalence in 2013: National and Centre-specific Analyses
    Rao, Anirudh
    Casula, Anna
    Castledine, Clare
    NEPHRON, 2015, 129 : 31 - 56
  • [43] UK Renal Registry 16th Annual Report: Chapter 1 UK Renal Replacement Therapy Incidence in 2012: National and Centre- specific Analyses
    Gilg, Julie
    Rao, Anirudh
    Fogarty, Damian
    NEPHRON CLINICAL PRACTICE, 2013, 125 (1-4): : 1 - 27
  • [44] Time to listing on the UK National Transplant Waiting List: Follow up of the 1998-1999 cohort data from UK Renal Registry and UK Transplant
    Ansell, D
    Armstrong, S
    Dudley, C
    Bakran, A
    Johnson, R
    NEPHROLOGY DIALYSIS TRANSPLANTATION, 2005, 20 : V366 - V366
  • [45] UK Renal Registry 18th Annual Report: Chapter 2 UK Renal Replacement Therapy Prevalence in 2014: National and Centre-specific Analyses
    MacNeill, Stephanie J.
    Casula, Anna
    Shaw, Catriona
    Castledine, Clare
    NEPHRON, 2016, 132 : 41 - 67
  • [46] Structural congenital hearth disease (CHD) in neonates delivered to women with CHD: results from the national perinatal research consortium (NPRC) registry for adverse rare events (RARE)
    Manuck, Tracy
    Rubeo, Zachary
    Jauk, Victoria
    Barbour, Kelli
    Behnia, Fara
    Biggio, Joseph
    DiVito, Michelle
    Dorman, Karen
    Fan, Miaoying
    Horton, Christine
    Kuhlmann, Maggie Joe
    LeDuke, Rachel
    Lesher, Laurie
    Saade, George
    Salazar, Ashley
    Salmon, Shanna
    Stuebe, Alison
    Tita, Alan
    Wapner, Ronald
    Varner, Michael
    AMERICAN JOURNAL OF OBSTETRICS AND GYNECOLOGY, 2015, 212 (01) : S130 - S130
  • [47] Characterising FSHD and supporting national and international research projects: Eight years of the UK FSHD patient registry
    Porter, B.
    Orrell, R.
    Graham, A.
    Watt, S.
    Lunt, P.
    Norwood, F.
    Roberts, M.
    Willis, T.
    Matthews, E.
    Muni-Lofra, R.
    Marini-Bettolo, C.
    NEUROMUSCULAR DISORDERS, 2021, 31 : S98 - S99
  • [48] Renal replacement modality and stroke risk in end-stage renal disease-a national registry study
    Findlay, Mark
    MacIsaac, Rachael
    MacLeod, Mary Joan
    Metcalfe, Wendy
    Traynor, Amie P.
    Dawson, Jesse
    Mark, Patrick B.
    NEPHROLOGY DIALYSIS TRANSPLANTATION, 2018, 33 (09) : 1564 - 1571
  • [49] THE DEVELOPMENT OF A NATIONAL REGISTRY FOR RARE NEUROLOGICAL DISORDERS IN FINLAND - PILOTING EFFORTS WITH HUNTINGTON'S DISEASE
    Sipila, Jussi O. T.
    Ansakorpi, Hanna
    Gronroos, Mika
    Martikainen, Mika H.
    Majamaa, Kari
    JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY, 2022, 93 : A63 - A64
  • [50] Use of combined search criteria improved validity of rare disease (craniopharyngioma) diagnosis in a national registry
    Nielsen, Eigil H.
    Lindholm, Jorgen
    Laurberg, Peter
    JOURNAL OF CLINICAL EPIDEMIOLOGY, 2011, 64 (10) : 1118 - 1126