The UK Registry of Rare Renal Disease (RaDaR) Enables Research Studies on a National Scale

被引:0
|
作者
McCarthy, H. [1 ]
Ansell, D. [2 ]
Braddon, F. [2 ]
Taylor, M. [3 ]
Saleem, M. [1 ]
机构
[1] Univ Bristol, Bristol, Avon, England
[2] UK Renal Registry, Bristol, Avon, England
[3] Birmingham Childrens Hosp, Birmingham, W Midlands, England
关键词
D O I
暂无
中图分类号
R72 [儿科学];
学科分类号
100202 ;
摘要
390
引用
收藏
页码:1872 / 1873
页数:2
相关论文
共 50 条
  • [31] RaDiCo, the French national research program on rare disease cohorts
    Amselem, Serge
    Gueguen, Sonia
    Weinbach, Jerome
    Clement, Annick
    Landais, Paul
    ORPHANET JOURNAL OF RARE DISEASES, 2021, 16 (01)
  • [32] The Occurrence of 275 Rare Diseases and 47 Rare Disease Groups in Italy. Results from the National Registry of Rare Diseases
    Taruscio, Domenica
    Vittozzi, Luciano
    Rocchetti, Adele
    Torreri, Paola
    Ferrari, Luca
    INTERNATIONAL JOURNAL OF ENVIRONMENTAL RESEARCH AND PUBLIC HEALTH, 2018, 15 (07)
  • [33] A national open-access research registry to improve recruitment to clinical studies
    Kotting, Piers
    Smith, Adam
    O'Hare, Megan B.
    Giebel, Clarissa
    Mendis, Lakshini
    Shaw, Clare
    Shillito, Imogen
    Rossor, Martin N.
    ALZHEIMERS & DEMENTIA-TRANSLATIONAL RESEARCH & CLINICAL INTERVENTIONS, 2021, 7 (01)
  • [34] National survey of palliative care in end-stage renal disease in the UK
    Gunda, S
    Thomas, M
    Smith, S
    NEPHROLOGY DIALYSIS TRANSPLANTATION, 2005, 20 (02) : 392 - 395
  • [35] Establishment of a web based research tool, information resource, and patient led support forum for rare paediatric respiratory disease in the UK (the BPOLD registry)
    Laverty, A
    Weller, P
    THORAX, 2005, 60 : II16 - II17
  • [36] Research investments for UK infectious disease research 1997-2013: A systematic analysis of awards to UK institutions alongside national burden of disease
    Head, Michael G.
    Brown, Rebecca J.
    Clarke, Stuart C.
    JOURNAL OF INFECTION, 2018, 76 (01) : 11 - 19
  • [37] COVID-19 in children with chronic kidney disease: findings from the UK renal registry
    Plumb, Lucy
    Benoy-Deeney, Fran
    Casula, Anna
    Braddon, Fiona E. M.
    Tse, Yincent
    Inward, Carol
    Marks, Stephen
    Steenkamp, Retha
    Medcalf, James
    Nitsch, Dorothea
    ARCHIVES OF DISEASE IN CHILDHOOD, 2021, 106 (03)
  • [38] The Canadian Neuromuscular Disease Registry: Connecting patients to national and international research opportunities
    Wei, Yi
    McCormick, Anna
    MacKenzie, Alex
    O'Ferrall, Erin
    Venance, Shannon
    Mah, Jean K.
    Selby, Kathryn
    McMillan, Hugh J.
    Smith, Garth
    Oskoui, Maryam
    Hogan, Gillian
    McAdam, Laura
    Mabaya, Gracia
    Hodgkinson, Victoria
    Lounsberry, Josh
    Korngut, Lawrence
    Campbell, Craig
    PAEDIATRICS & CHILD HEALTH, 2018, 23 (01) : 20 - 26
  • [39] UK Renal Registry 19th Annual Report: Chapter 2 UK Renal Replacement Therapy Prevalence in 2015: National and Centre-specific Analyses
    MacNeill, Stephanie J.
    Ford, Daniel
    NEPHRON, 2017, 137 : 45 - 71
  • [40] UK Renal Registry 18th Annual Report: Chapter 1 UK Renal Replacement Therapy Incidence in 2014: National and Centre-specific Analyses
    Gilg, Julie
    Caskey, Fergus
    Fogarty, Damian
    NEPHRON, 2016, 132 : 9 - 39