The reporters' agreement in assessing the quality of life of young people with intellectual disabilities

被引:10
|
作者
Berastegui, Ana [1 ]
Santos, Angela [1 ]
Suarez, Graciela [1 ]
机构
[1] Univ Comillas, Univ Pontificia Comillas, Inst Univ Familia, Catedra & Familia Discapacidad,Fdn Repsol Down Ma, Madrid 28049, Spain
关键词
Informants; Intellectual disability; Quality of life; Family; Young adulthood; SELF-REPORT; TRANSITION; ADULTHOOD; INDIVIDUALS; ISSUES;
D O I
10.1016/j.ridd.2021.104026
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
A good evaluation of the quality of life (QoL) of young people with disability is essential to detect, monitor and report their support needs in research, and individual, institutional and policy planning. The aim of this study is to evaluate the reporters' agreement in the assessment of the QoL of young people with Intellectual Disabilities in transition to adulthood. Self and proxyreport version of INICO-FEAPS quality of life scale was used to assess 119 students of a postcompulsory educational program, being the proxy-report informed by one of their relatives. Results show poor intraclass correlations between informants. No discrepancies were found in the global QoL. However, small discrepancies were found for some dimensions. Young people's reports were higher for self-determination, personal development and interpersonal relationships. On the contrary, relatives' reports were higher for rights, material and physical wellbeing. The discrepancies in global QoL assessment were not related to student's severity, IQ, diagnosis or parent's gender. These findings underline the importance of young people's participation in the assessment of their QoL as well as the convenience of using both kind of informants when taking appropriate decisions in educational contexts during transition to adulthood.
引用
下载
收藏
页数:9
相关论文
共 50 条
  • [31] QUALITY OF LIFE OF SIBLINGS OF PEOPLE WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES: REVIEW OF THE LITERATURE
    Muries-Cantan, O.
    Blom-Yoo, H.
    Schippers, A.
    Gine, C.
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2019, 63 (07) : 844 - 844
  • [32] New technologies and people with intellectual disabilities: An alternative to improve quality of life
    Nieto, L.
    Groba, B.
    Pousada, T.
    Pereira, J.
    Pintos, J.
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2012, 56 (7-8) : 811 - 811
  • [33] Effects of psychological factors on the perceived quality of life of people with intellectual disabilities
    Matikka, LM
    JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 1996, 9 (02) : 115 - 128
  • [34] Aging and quality of life. Challenges and opportunities for people with intellectual disabilities
    Schaeper, S.
    Graumann, S.
    ZEITSCHRIFT FUR GERONTOLOGIE UND GERIATRIE, 2012, 45 (07): : 630 - 636
  • [35] Lazy Learning Methods for Quality of Life Assessment in People with Intellectual Disabilities
    Armengol, Eva
    Dellunde, Pilar
    Ratto, Carlo
    ARTIFICIAL INTELLIGENCE RESEARCH AND DEVELOPMENT, 2011, 232 : 41 - 50
  • [36] Assessing cognitive schemas in people with intellectual disabilities
    Lindsay, W.
    Langdon, P. E.
    Loyd, R.
    Ansari, D.
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2016, 60 (7-8) : 697 - 697
  • [37] QUALITY OF LIFE OF YOUNG ADULTS WITH INTELLECTUAL DISABILITIES WITH THE SUPPORT OF ASSISTIVE TECHNOLOGY
    Louw, J.
    Leader, G.
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2019, 63 (07) : 828 - 828
  • [38] What makes life better or worse: Quality of life according to people with intellectual disabilities
    Holmes, Holli M.
    Mortenson, W. Ben
    JOURNAL OF APPLIED RESEARCH IN INTELLECTUAL DISABILITIES, 2024, 37 (05)
  • [39] RESILIENCE OF CHILDREN AND YOUNG PEOPLE WITH INTELLECTUAL DISABILITIES
    Raghavan, R.
    JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, 2015, 59 : 82 - 83
  • [40] Affective manifestations in young people with intellectual disabilities
    Huaiquian Billeke, Claudia
    Arriagada Vega, Carolina
    Betanzo Briones, Ada
    Inostroza Soto, Hernan
    Llanquitruf Paillan, Karina
    INTERDISCIPLINARIA, 2018, 35 (01): : 69 - 86