The reporters' agreement in assessing the quality of life of young people with intellectual disabilities

被引:10
|
作者
Berastegui, Ana [1 ]
Santos, Angela [1 ]
Suarez, Graciela [1 ]
机构
[1] Univ Comillas, Univ Pontificia Comillas, Inst Univ Familia, Catedra & Familia Discapacidad,Fdn Repsol Down Ma, Madrid 28049, Spain
关键词
Informants; Intellectual disability; Quality of life; Family; Young adulthood; SELF-REPORT; TRANSITION; ADULTHOOD; INDIVIDUALS; ISSUES;
D O I
10.1016/j.ridd.2021.104026
中图分类号
G76 [特殊教育];
学科分类号
040109 ;
摘要
A good evaluation of the quality of life (QoL) of young people with disability is essential to detect, monitor and report their support needs in research, and individual, institutional and policy planning. The aim of this study is to evaluate the reporters' agreement in the assessment of the QoL of young people with Intellectual Disabilities in transition to adulthood. Self and proxyreport version of INICO-FEAPS quality of life scale was used to assess 119 students of a postcompulsory educational program, being the proxy-report informed by one of their relatives. Results show poor intraclass correlations between informants. No discrepancies were found in the global QoL. However, small discrepancies were found for some dimensions. Young people's reports were higher for self-determination, personal development and interpersonal relationships. On the contrary, relatives' reports were higher for rights, material and physical wellbeing. The discrepancies in global QoL assessment were not related to student's severity, IQ, diagnosis or parent's gender. These findings underline the importance of young people's participation in the assessment of their QoL as well as the convenience of using both kind of informants when taking appropriate decisions in educational contexts during transition to adulthood.
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页数:9
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