Grieving Experiences of Parents with Children in End-of-Life Care-A Qualitative Review Protocol

被引:1
|
作者
Correia, Maria Eduarda [1 ,2 ]
Melo, Tania [3 ,4 ,5 ]
Nobre, Joana [2 ,6 ,7 ]
机构
[1] Nursing Res Innovat & Dev Ctr Lisbon CIDNUR, P-1990096 Lisbon, Portugal
[2] Polytech Inst Portalegre, Hlth Sch, P-7300555 Portalegre, Portugal
[3] Paediat Hosp Ctr Hosp, P-3000602 Coimbra, Portugal
[4] Univ Coimbra, P-3000602 Coimbra, Portugal
[5] Nursing Sch Coimbra, P-3000232 Coimbra, Portugal
[6] Polytech Inst Portalegre, VALORIZA Res Ctr Endogenous Resource Valorizat, P-7300555 Portalegre, Portugal
[7] Nursing Res Unit South & Isl NURSEIN, P-2914503 Setubal, Portugal
关键词
grief; grieving; bereavement; parents; experience; end-of-life care; palliative care; PALLIATIVE CARE; ADOLESCENTS;
D O I
10.3390/nursrep12030041
中图分类号
R47 [护理学];
学科分类号
1011 ;
摘要
Parents that accompany their children in end-of-life care until death go through a devastating, complex and vulnerable situation, which is experienced in a unique way and with individual needs, given the specificity of the palliative care setting in which it occurs. This qualitative review aims to identify and synthesize the best evidence available on the grieving experiences of parents with children in end-of-life care in a palliative care setting. This qualitative review protocol is according to the review method proposed by the Joanna Briggs Institute. The results will enable us to identify how parents of children in end-of-life care in a palliative care setting experience their grieving process. This review will broaden the horizon of understanding of the specificities of the grieving experience of parents who have accompanied their children in end-of-life care until their death in a palliative care setting and promote research in this context. The results of the review will also allow the construction of an "end-of-life grieving script", with the aim of identifying one's individuality in the grieving process. This protocol is registered at Open Science Framework.
引用
收藏
页码:426 / 430
页数:5
相关论文
共 50 条
  • [21] Infant end-of-life care: the parents' perspective
    C L Brosig
    R L Pierucci
    M J Kupst
    S R Leuthner
    Journal of Perinatology, 2007, 27 : 510 - 516
  • [22] Infant end-of-life care: the parents' perspective
    Brosig, C. L.
    Pierucci, R. L.
    Kupst, M. J.
    Leuthner, S. R.
    JOURNAL OF PERINATOLOGY, 2007, 27 (08) : 510 - 516
  • [23] BEREAVED PARENTS ASSESSMENT OF END-OF-LIFE CARE
    Robert, Rhonda
    Zhukovsky, Donna S.
    Gilmore, Katherine R.
    Mauricio, Rica
    Morrison, Shirley M.
    Palos, Guadalupe
    PEDIATRIC BLOOD & CANCER, 2011, 57 (05) : 840 - 840
  • [24] Decision aids available for parents making end-of-life or palliative care decisions for children: A scoping review
    Medeiros, Christina
    Buckley, Laura
    Metcalfe, Kelly
    Narayanan, Unni G.
    Widger, Kimberley
    JOURNAL OF PAEDIATRICS AND CHILD HEALTH, 2020, 56 (05) : 692 - 703
  • [25] Ethical frameworks for surrogates' end-of-life planning experiences: A qualitative systematic review
    Kim, Hyejin
    Deatrick, Janet A.
    Ulrich, Connie M.
    NURSING ETHICS, 2017, 24 (01) : 46 - 69
  • [26] Experiences of Parents and General Practitioners with End-of-Life Care in Adolescents and Young Adults with Cancer
    Kaal, Suzanne E. J.
    Kuijken, Noortje M. J.
    Verhagen, Constant A. H. H. V. M.
    Jansen, Rosemarie
    Servaes, Petra
    van der Graaf, Winette T. A.
    JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY, 2016, 5 (01) : 64 - 68
  • [27] Intensive care nurses' experiences of end-of-life care
    Kisorio, Leah C.
    Langley, Gayle C.
    INTENSIVE AND CRITICAL CARE NURSING, 2016, 33 : 30 - 38
  • [28] "Unaware and Unprepared" Experiences of Critical Care Nurses Providing End-of-Life Care; A Qualitative Study
    Wells, Celia
    Bressler, Toby
    JOURNAL OF HOSPICE & PALLIATIVE NURSING, 2023, 25 (02) : 105 - 113
  • [29] Critical Care Nurses' Qualitative Reports of Experiences With Family Behaviors as Obstacles in End-of-Life Care
    Beckstrand, Renea L.
    Mallory, Caitlin
    Macintosh, Janelle L. B.
    Luthy, Karlen E.
    DIMENSIONS OF CRITICAL CARE NURSING, 2018, 37 (05) : 251 - 258
  • [30] End-of-Life Experiences for Children with Complex Chronic Conditions and Their Bereaved Parents: Perspectives on Preparedness
    Bogetz, Jori
    Revette, Anna
    Rosenberg, Abby
    Wolfe, Joanne
    DeCourcey, Danielle
    JOURNAL OF PAIN AND SYMPTOM MANAGEMENT, 2020, 59 (02) : 428 - 429