Experiences of Parents and General Practitioners with End-of-Life Care in Adolescents and Young Adults with Cancer

被引：8
|
作者：
Kaal, Suzanne E. J. [1 ]
Kuijken, Noortje M. J. [1 ]
Verhagen, Constant A. H. H. V. M. [1 ,2 ]
Jansen, Rosemarie [1 ]
Servaes, Petra [3 ]
van der Graaf, Winette T. A. [1 ]
机构：
[1] Radboud Univ Nijmegen, Med Ctr, Dept Med Oncol, Nijmegen, Netherlands
[2] Radboud Univ Nijmegen, Med Ctr, Dept Anaesthesiol Pain & Palliat Care, Nijmegen, Netherlands
[3] Radboud Univ Nijmegen, Med Ctr, Dept Med Psychol, Nijmegen, Netherlands
来源：
JOURNAL OF ADOLESCENT AND YOUNG ADULT ONCOLOGY | 2016年 / 5卷 / 01期
关键词：
palliative care; end-of-life; PALLIATIVE CARE; INFORMAL CAREGIVERS; HOSPITAL ANXIETY; DEPRESSION SCALE; NEEDS; CHILDREN; FAMILIES; SUPPORT; GRIEF; DIE;
D O I：
10.1089/jayao.2015.0009
中图分类号：
R73 [肿瘤学];
学科分类号：
100214 ;
摘要：
This study aims to analyze the experiences of Dutch bereaved parents and general practitioners (GPs) with palliative care of AYAs (18-35 years) in the terminal stage. Fifteen parents and nine GPs involved with nine deceased AYAs filled out questionnaires and were interviewed by telephone, respectively. In general, the parents were satisfied with the emotional care they themselves received and the medical care that their child received. The GPs were very satisfied with the cooperation with the palliative team. Gaps are present in the areas of symptom control, communication between hospital professionals and parents, aftercare, and transition between hospital and GP.
引用
收藏
页码：64 / 68
页数：5
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