Developmental Brain Research With Participants From Underprivileged Communities: Strategies for Recruitment, Participation, and Retention

被引:13
|
作者
Habibi, Assal [1 ]
Sarkissian, Alissa Der [1 ]
Gomez, Martha [1 ]
Ilari, Beatriz [2 ]
机构
[1] Univ So Calif, Brain & Creat Inst, Los Angeles, CA 90089 USA
[2] Univ So Calif, Thornton Sch Mus, Los Angeles, CA 90089 USA
关键词
INCIDENTAL FINDINGS; CLINICAL-TRIALS; TUSKEGEE; CHILDREN; PEOPLE; ISSUES;
D O I
10.1111/mbe.12087
中图分类号
G40 [教育学];
学科分类号
040101 ; 120403 ;
摘要
Challenges associated with recruitment and retention of participants from underprivileged social communities, in addition to neuroscience researchers' unfamiliarity with these communities, possibly explain the limited number of individuals from these communities who participate in neuroscience research studies. The consequence is a scarcity of data in this fast-growing segment of the population. In particular, developmental research involving children from ethnic minorities has yet to catch up with the number of studies available for middle-class White children (Flores et al., 2002). This underrepresentation can lead to disparities in health and social services for children from these communities, as well as to a nonrepresentative knowledge base of child neurodevelopment. Developing and utilizing innovative and culturally sensitive approaches to recruiting participants from underprivileged communities can maximize their participation in research, as behavioral researchers have known for some time. Here, based on our experience recruiting low-socioeconomic status (SES) Latino children from Los Angeles, we offer strategies to improve recruitment, involvement, and retention. We have a special focus on techniques relevant to recruiting for neuroimaging, which is associated with new challenges not faced to the same degree in research historically. Better inclusion of underrepresented children in research can ultimately lead to the development and improvement of effective public polices to support their needs, ranging from education to health care.
引用
收藏
页码:179 / 186
页数:8
相关论文
共 50 条
  • [31] Research with Severely Mentally Ill Latinas: Successful Recruitment and Retention Strategies
    Loue, Sana
    Sajatovic, Martha
    JOURNAL OF IMMIGRANT AND MINORITY HEALTH, 2008, 10 (02) : 145 - 153
  • [32] Innovative Proven Clinical-Research Strategies for Participant Recruitment and Retention
    Tong, Shao Chuen
    Tin, Aung Soe
    Lim, Jeremy Fung Yen
    Chow, Wai Leng
    PROCEEDINGS OF SINGAPORE HEALTHCARE, 2010, 19 (01) : 64 - 68
  • [33] Research with Severely Mentally Ill Latinas: Successful Recruitment and Retention Strategies
    Sana Loue
    Martha Sajatovic
    Journal of Immigrant and Minority Health, 2008, 10 : 145 - 153
  • [34] Recruitment and retention of adolescent participants in HIV research: Findings from the REACH (Reaching for Excellence in Adolescent Care and Health) project
    Stanford, PD
    Monte, DA
    Briggs, FM
    Flynn, PM
    Tanney, M
    Ellenberg, JH
    Clingan, KL
    Rogers, AS
    JOURNAL OF ADOLESCENT HEALTH, 2003, 32 (03) : 192 - 203
  • [35] RECRUITMENT AND RETENTION STRATEGIES OF ETHNICALLY DIVERSE OLDER ADULTS IN COGNITIVE AGING RESEARCH
    Simpson, G. M.
    Harris, M.
    Kerssens, C.
    GERONTOLOGIST, 2014, 54 : 154 - 154
  • [36] Strategies for recruitment and retention of adolescent and young adult cancer patients in research studies
    Wang, Ruixiao Rachel
    Schweitzer, Julie B.
    Hernandez, Samantha
    Molina, Silvia C.
    Keegan, Theresa H. M.
    JOURNAL OF CLINICAL AND TRANSLATIONAL SCIENCE, 2023, 7 (01)
  • [37] Recruitment and retention of participants from socioeconomically deprived communities: lessons from the Awareness and Beliefs About Cancer (ABACus3) Randomised Controlled Trial
    Kolovou, Vasiliki
    Moriarty, Yvonne
    Gilbert, Stephanie
    Quinn-Scoggins, Harriet
    Townson, Julia
    Padgett, Louise
    Owen, Sioned
    Buckle, Peter
    Edwards, Adrian
    Hepburn, Julie
    Lau, Mandy
    Matthews, Maura
    Mitchell, Caroline
    Neal, Richard
    Playle, Rebecca
    Robling, Mike
    Smits, Stephanie
    Trubey, Rob
    Wood, Fiona
    Brain, Kate
    BMC MEDICAL RESEARCH METHODOLOGY, 2020, 20 (01)
  • [38] Recruitment and retention of participants from socioeconomically deprived communities: lessons from the Awareness and Beliefs About Cancer (ABACus3) Randomised Controlled Trial
    Vasiliki Kolovou
    Yvonne Moriarty
    Stephanie Gilbert
    Harriet Quinn-Scoggins
    Julia Townson
    Louise Padgett
    Sioned Owen
    Peter Buckle
    Adrian Edwards
    Julie Hepburn
    Mandy Lau
    Maura Matthews
    Caroline Mitchell
    Richard Neal
    Rebecca Playle
    Mike Robling
    Stephanie Smits
    Rob Trubey
    Fiona Wood
    Kate Brain
    BMC Medical Research Methodology, 20
  • [39] Social Media Use in Research: Engaging Communities in Cohort Studies to Support Recruitment and Retention
    Farina-Henry, Eva
    Waterston, Leo B.
    Blaisdell, Laura L.
    JMIR RESEARCH PROTOCOLS, 2015, 4 (03):
  • [40] Recruitment strategies should not be randomly selected: empirically improving recruitment success and diversity in developmental psychology research
    Sugden, Nicole A.
    Moulson, Margaret C.
    FRONTIERS IN PSYCHOLOGY, 2015, 6