Developmental Brain Research With Participants From Underprivileged Communities: Strategies for Recruitment, Participation, and Retention

被引:13
|
作者
Habibi, Assal [1 ]
Sarkissian, Alissa Der [1 ]
Gomez, Martha [1 ]
Ilari, Beatriz [2 ]
机构
[1] Univ So Calif, Brain & Creat Inst, Los Angeles, CA 90089 USA
[2] Univ So Calif, Thornton Sch Mus, Los Angeles, CA 90089 USA
关键词
INCIDENTAL FINDINGS; CLINICAL-TRIALS; TUSKEGEE; CHILDREN; PEOPLE; ISSUES;
D O I
10.1111/mbe.12087
中图分类号
G40 [教育学];
学科分类号
040101 ; 120403 ;
摘要
Challenges associated with recruitment and retention of participants from underprivileged social communities, in addition to neuroscience researchers' unfamiliarity with these communities, possibly explain the limited number of individuals from these communities who participate in neuroscience research studies. The consequence is a scarcity of data in this fast-growing segment of the population. In particular, developmental research involving children from ethnic minorities has yet to catch up with the number of studies available for middle-class White children (Flores et al., 2002). This underrepresentation can lead to disparities in health and social services for children from these communities, as well as to a nonrepresentative knowledge base of child neurodevelopment. Developing and utilizing innovative and culturally sensitive approaches to recruiting participants from underprivileged communities can maximize their participation in research, as behavioral researchers have known for some time. Here, based on our experience recruiting low-socioeconomic status (SES) Latino children from Los Angeles, we offer strategies to improve recruitment, involvement, and retention. We have a special focus on techniques relevant to recruiting for neuroimaging, which is associated with new challenges not faced to the same degree in research historically. Better inclusion of underrepresented children in research can ultimately lead to the development and improvement of effective public polices to support their needs, ranging from education to health care.
引用
收藏
页码:179 / 186
页数:8
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