Human capabilities of South African parents who have children with developmental disabilities

被引:1
|
作者
Magidigidi, Lumka [1 ]
Roman, Nicolette, V [1 ]
Sonn, Inge K. [1 ]
机构
[1] Univ Western Cape, Fac Community & Hlth Sci, Ctr Interdisciplinary Studies Children Families &, Cape Town, South Africa
基金
新加坡国家研究基金会;
关键词
human capabilities; freedoms; opportunities; developmental disability; parents; children with disabilities; family; capabilities approach; South Africa; ATTENTION; HEALTH;
D O I
10.4102/ajod.v12i0.1155
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Parenting a child with a developmental disability (DD) has a substantial influence on the lives of the parents or caregivers, as well as on how the family operates. This is frequently because of the adjustments in some daily practices that are crucial for parents' or caregivers' human capabilities to provide for childcare. There is not enough research done on human capabilities of parents or children with DD in South Africa.Objectives: This study investigated the available support in improving the human capabilities of parents or caregivers with children with DD and the bodily health and bodily integrity human capabilities of parents or caregivers with children with DD. Method: Qualitative interviews were conducted with 11 parents or caregivers of children aged between 1 and 8 years old with DD. This study used snowball sampling. Thematic data analysis was chosen to analyse the data collected.Results: The results of the study indicate that participants have difficulties bringing up their children because of the emotional strain that goes along with parenting a child with DD. In addition, participants were not able to afford decent and satisfactory shelter and had limited access to good quality food because they could not afford it. Conclusion: A lack of social support and care burden influences parents' or caregivers' ability to raise their child with developmental disability.Contribution: The study contains helpful information about families of children with DD in under-resourced locations. The information may be of significance to policymakers who are accountable for designing and executing policies that are targeted at assisting parents or caregivers of children with DD.
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页数:10
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