Addressing caregiver needs of brain injury survivors through telehealth: A pilot qualitative study

被引:0
|
作者
Roberson, C. Jean [1 ,4 ]
Hagues, Rachel [1 ]
White, Bethany [2 ]
Robbins, David [3 ]
机构
[1] Samford Univ, Social Work Dept, Birmingham, AL USA
[2] Alabama Head Injury Fdn, Birmingham, AL USA
[3] Samford Univ, Hlth Informat & Informat Management, Birmingham, AL USA
[4] 800 Lakeshore Dr, Birmingham, AL 35229 USA
关键词
caregivers; informal caregivers; telehealth; traumatic brain injury; PERSPECTIVES;
D O I
10.1111/fare.12971
中图分类号
D669 [社会生活与社会问题]; C913 [社会生活与社会问题];
学科分类号
1204 ;
摘要
ObjectiveThis study sought to identify effective means for delivering services to address the unique needs of caregivers for traumatic brain injury (TBI) survivors.BackgroundCaregivers for TBI survivors face unique and intense challenges, including deep isolation. When these caregivers fail to thrive, the entire family system suffers.MethodEmploying a pilot study utilizing qualitative methods, we explored the effectiveness of an intervention piloting telehealth counseling to address some of the unique caregiving challenges for the TBI survivor's caregiver. We conducted two focus groups of four participants to obtain qualitative data.ResultsQualitative analysis identified key themes: isolation, boundary issues, challenges of therapy, and the benefits of telehealth counseling.ConclusionsResults indicate an improvement in overall functioning of caregivers when accessing telehealth services.ImplicationsOn a micro level, results demonstrate that telehealth services can help TBI caregivers prevent boundary enmeshment. On a macro level, results have implications for increased investment and resources for those who serve the TBI population through an online format as well as proposed best practices for the method of service delivery.
引用
收藏
页码:1920 / 1932
页数:13
相关论文
共 50 条
  • [31] A Telehealth Approach to Caregiver Self-Management Following Traumatic Brain Injury: A Randomized Controlled Trial
    Powell, Janet M.
    Fraser, Robert
    Brockway, Jo Ann
    Temkin, Nancy
    Bell, Kathleen R.
    JOURNAL OF HEAD TRAUMA REHABILITATION, 2016, 31 (03) : 180 - 190
  • [32] Identifying and Addressing Language Needs in Primary Care: a Pilot Implementation Study
    Murphy, Jessica E.
    Washington, David
    Xuan, Ziming
    Paasche-Orlow, Michael K.
    Drainoni, Mari-Lynn
    JOURNAL OF RACIAL AND ETHNIC HEALTH DISPARITIES, 2019, 6 (03) : 505 - 516
  • [33] Identifying and Addressing Language Needs in Primary Care: a Pilot Implementation Study
    Jessica E. Murphy
    David Washington
    Ziming Xuan
    Michael K. Paasche-Orlow
    Mari-Lynn Drainoni
    Journal of Racial and Ethnic Health Disparities, 2019, 6 : 505 - 516
  • [34] Balancing needs as a family caregiver in Huntington's disease: a qualitative interview study
    Rothing, Merete
    Malterud, Kirsti
    Frich, Jan C.
    HEALTH & SOCIAL CARE IN THE COMMUNITY, 2015, 23 (05) : 569 - 576
  • [35] Can a Couples' Intervention Reduce Unmet Needs and Caregiver Burden After Brain Injury?
    Graham, Kristin M.
    Kreutzer, Jeffrey S.
    Marwitz, Jennifer H.
    Sima, Adam P.
    Hsu, Nancy H.
    REHABILITATION PSYCHOLOGY, 2020, 65 (04) : 409 - 417
  • [36] Traumatic Brain Injury Caregiver Focus Groups, Needs Assessment, Survey Results and Implications
    Dillahunt-Aspillaga, Christina
    Monroe, Douglas
    JOURNAL OF HEAD TRAUMA REHABILITATION, 2012, 27 (05) : E5 - E6
  • [37] Cognitive rehabilitation for brain tumor survivors: A pilot study
    Richard, Nadine M.
    Bernstein, Lori J.
    Mason, Warren P.
    Laperriere, Normand
    Chung, Caroline
    Millar, Barbara Ann
    Maurice, Catherine
    Edelstein, Kim
    JOURNAL OF CLINICAL ONCOLOGY, 2016, 34 (03)
  • [38] The role of routine follow-up visits of prostate cancer survivors in addressing supportive care and information needs: a qualitative observational study
    Barbara M. Wollersheim
    Ellis Helweg
    Corinne N. Tillier
    H. A. M. van Muilekom
    Willem de Blok
    Henk G. van der Poel
    Kristel M. van Asselt
    Annelies H. Boekhout
    Supportive Care in Cancer, 2021, 29 : 6449 - 6457
  • [39] The role of routine follow-up visits of prostate cancer survivors in addressing supportive care and information needs: a qualitative observational study
    Wollersheim, Barbara M.
    Helweg, Ellis
    Tillier, Corinne N.
    van Muilekom, H. A. M.
    de Blok, Willem
    van der Poel, Henk G.
    van Asselt, Kristel M.
    Boekhout, Annelies H.
    SUPPORTIVE CARE IN CANCER, 2021, 29 (11) : 6449 - 6457
  • [40] Peer support experiences and needs across the continuum of trauma care: A qualitative study of traumatic injury survivor, caregiver, and provider perspectives
    Wasilewski, Marina
    Reis, Logan
    Vijayakumar, Abirami
    Leighton, Jaylyn
    Hitzig, Sander L.
    Simpson, Robert
    Mayo, Amanda L.
    Leslie, Gotlib Conn
    Vogt, Kelly
    Mcfarlan, Amanda
    Haas, Barbara
    Kuluski, Kerry
    Mackay, Crystal
    Robinson, Larry
    Fowler, Rob
    Sheppard, Christine L.
    Cassin, Monica
    Guo, David
    Lisa, Di Prospero
    Legere, Laurie
    INJURY-INTERNATIONAL JOURNAL OF THE CARE OF THE INJURED, 2025, 56 (04):