"It Defines Who I Am" or "It's Something I Have": What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?

被引：227
|
作者：
Bury, Simon M. [1 ]
Jellett, Rachel [1 ]
Spoor, Jennifer R. [2 ]
Hedley, Darren [1 ]
机构：
[1] La Trobe Univ, Olga Tennison Autism Res Ctr, Sch Psychol & Publ Hlth, Melbourne, Vic 3086, Australia
[2] La Trobe Univ, Coll Arts Social Sci & Commerce, La Trobe Business Sch, Melbourne, Vic, Australia
来源：
JOURNAL OF AUTISM AND DEVELOPMENTAL DISORDERS | 2023年 / 53卷 / 02期
关键词：
Autism; Terminology; Autism identity; Label preference; Person-first; Identity-first; PERSON-1ST LANGUAGE; DISORDER; DSM-5;
D O I：
10.1007/s10803-020-04425-3
中图分类号：
B844 [发展心理学（人类心理学）];
学科分类号：
040202 ;
摘要：
There has been a recent shift from person-first to identity-first language to describe autism. In this study, Australian adults who reported having a diagnosis of autism (N = 198) rated and ranked autism-terms for preference and offensiveness, and explained their choice in free-text. 'Autistic', 'Person on the Autism Spectrum', and 'Autistic Person' were rated most preferred and least offensive overall. Ranked-means showed 'person on the autism spectrum' was the most preferred term overall. Six qualitative themes reflected (1) autism as core to, or (2) part of one's identity, (3) 'spectrum' reflecting diversity, (4) the rejection of stigmatising and (5) medicalised language, and (6) pragmatics. These findings highlight the importance of inclusive dialogue regarding individual language preference.
引用
收藏
页码：677 / 687
页数：11
相关论文
共 50 条
  • [1] “It Defines Who I Am” or “It’s Something I Have”: What Language Do [Autistic] Australian Adults [on the Autism Spectrum] Prefer?
    Simon M. Bury
    Rachel Jellett
    Jennifer R. Spoor
    Darren Hedley
    [J]. Journal of Autism and Developmental Disorders, 2023, 53 : 677 - 687
  • [2] What I am? Am I autistic, hyperactive or I have anorexia?
    Munoz Martinez, V.
    Jimenez Londono, G.
    Ramirez Espadas, C.
    Jurado Galan, A.
    [J]. EUROPEAN CHILD & ADOLESCENT PSYCHIATRY, 2015, 24 : S175 - S175
  • [3] 'I am who I am': Reputation concerns in adolescents on the autism spectrum
    Cage, Eilidh
    Bird, Geoffrey
    Pellicano, Liz
    [J]. RESEARCH IN AUTISM SPECTRUM DISORDERS, 2016, 25 : 12 - 23
  • [4] On what I do not understand (and have something to say): Part I
    Shelah, S
    [J]. FUNDAMENTA MATHEMATICAE, 2000, 166 (1-2) : 1 - 82
  • [5] Feminist Practice: Who I am or What I do?
    Seymour, Kate
    [J]. AUSTRALIAN SOCIAL WORK, 2012, 65 (01) : 21 - 38
  • [6] Is my arthritis part of who I am or something I have? Age of onset makes a difference
    Beesley, Richard P.
    Beesley, Rebecca M.
    Middleton, Kate
    McBride, Andrea
    [J]. RHEUMATOLOGY, 2024, 63
  • [7] I Am Worried I Have Sciatica-What Do I Need to Know?
    Zhang, Grace Y.
    Incze, Michael A.
    [J]. JAMA INTERNAL MEDICINE, 2024, 184 (01) : 122 - 122
  • [8] I Am What I Do, Not What I Have: The Differential Centrality of Experiential and Material Purchases to the Self
    Carter, Travis J.
    Gilovich, Thomas
    [J]. JOURNAL OF PERSONALITY AND SOCIAL PSYCHOLOGY, 2012, 102 (06) : 1304 - 1317
  • [9] Am I Autistic? Utility of the Girls Questionnaire for Autism Spectrum Condition as an Autism Assessment in Adult Women
    Brown, Claire M.
    Attwood, Tony
    Garnett, Michelle
    Stokes, Mark A.
    [J]. AUTISM IN ADULTHOOD, 2020, 2 (03): : 216 - 226
  • [10] I have a student in my class who has cancer - what do I do?
    Saevig, BI
    Trandum, SE
    [J]. INTERNATIONAL JOURNAL OF CANCER, 2002, : 474 - 474
12345