Patient engagement in health implementation research: A logic model

被引:6
|
作者
Bisson, Mathieu [1 ]
Aubrey-Bassler, Kris [2 ]
Chouinard, Maud-Christine [3 ]
Doucet, Shelley [4 ]
Ramsden, Vivian R. [5 ]
Dumont-Samson, Olivier [1 ]
Howse, Dana [2 ]
Lambert, Mireille [1 ]
Schwarz, Charlotte [4 ]
Luke, Alison [4 ]
Rabbitskin, Norma
Gaudreau, Andre
Porter, Jude
Rubenstein, Donna
Taylor, Jennifer
Warren, Mike
Hudon, Catherine [1 ]
机构
[1] Univ Sherbrooke, Dept Med Famille & Med Urgence, Sherbrooke, PQ, Canada
[2] Mem Univ, Fac Med, Primary Healthcare Res Unit, St John, NF, Canada
[3] Univ Montreal, Fac Nursing, Montreal, PQ, Canada
[4] Univ New Brunswick, Dept Nursing & Hlth Sci, Fredericton, NB, Canada
[5] Univ Saskatchewan, Dept Acad Family Med, Saskatoon, SK, Canada
基金
加拿大健康研究院;
关键词
health implementation research; logic model; patient engagement; patient involvement; patient partnership in research; STAKEHOLDER ENGAGEMENT; PUBLIC INVOLVEMENT; CARE RESEARCH;
D O I
10.1111/hex.13782
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
IntroductionGrowing evidence supports patient engagement (PE) in health implementation research to improve the quality, relevance and uptake of research. However, more guidance is needed to plan and operationalize PE before and throughout the research process. The aim of the study was to develop a logic model illustrating the causal links between context, resources, activities, outcomes and impact of PE in an implementation research programme. MethodsThe Patient Engagement in Health Implementation Research Logic Model (hereafter the Logic Model) was developed using a descriptive qualitative design with a participatory approach, in the context of the PriCARE programme. This programme aims to implement and evaluate case management for individuals who frequently use healthcare services in primary care clinics across five Canadian provinces. Participant observation of team meetings was performed by all team members involved in the programme and in-depth interviews were conducted by two external research assistants with team members (n = 22). A deductive thematic analysis using components of logic models as coding categories was conducted. Data were pooled in the first version of the Logic Model, which was refined in research team meetings with patient partners. The final version was validated by all team members. ResultsThe Logic Model highlights the importance of integrating PE into the project before its commencement, with appropriate support in terms of funding and time allocation. The governance structure and leadership of both principal investigators and patient partners have significant effects on PE activities and outcomes. As an empirical and standardized illustration that facilitates a shared understanding, the Logic Model provides guidance for maximizing the impact of patient partnership in various contexts for research, patients, providers and health care. ConclusionThe Logic Model will help academic researchers, decision makers and patient partners plan, operationalize, and assess PE in implementation research for optimal outcomes. Patient or Public ContributionPatient partners from the PriCARE research programme contributed to developing the research objectives and designing, developing and validating data collection tools, producing data, developing and validating the Logic Model and reviewing the manuscript.
引用
收藏
页码:1854 / 1862
页数:9
相关论文
共 50 条
  • [1] Patient engagement in a Canadian health research funding institute: implementation and impact
    Richards, Dawn P.
    Twomey, Rosie
    Flynn, Trudy
    Hunter, Linda
    Lui, Eunice
    Stordy, Allan
    Thomas, Christine
    Khan, Karim
    [J]. BMJ OPEN, 2024, 14 (07):
  • [2] Patient research partner engagement in OMERACT: Enhancing engagement through the implementation of patient engagement in research tools
    Hofstetter, Catherine
    Grosskleg, Shawna
    Hamilton, Clayon B.
    Hoens, Alison M.
    Shea, Beverley
    Tugwell, Peter
    Beaton, Dorcas
    [J]. SEMINARS IN ARTHRITIS AND RHEUMATISM, 2024, 67
  • [3] Patient research partner engagement in OMERACT: Enhancing engagement through the implementation of patient engagement in research tools (vol 67, 152447, 2024)
    Hofstetter, Catherine
    Grosskleg, Shawna
    Hamilton, Clayon B.
    Hoens, Alison M.
    Shea, Beverley
    Tugwell, Peter
    Beaton, Dorcas
    [J]. SEMINARS IN ARTHRITIS AND RHEUMATISM, 2024, 68
  • [4] Development of a Taxonomy of Patient Engagement in Health Research
    Hamilton, Clayon
    Tran, Bao Chau
    Yoo, Ju Young
    Leese, Jenny
    Li, Linda
    [J]. ARTHRITIS & RHEUMATOLOGY, 2016, 68
  • [5] A logic model for precision medicine implementation research
    Scheuner, Maren
    Peredo, Jane
    Chanfreau, Catherine
    [J]. IMPLEMENTATION SCIENCE, 2018, 13
  • [6] A logic model for precision medicine implementation research
    Scheuner, Maren
    Peredo, Jane
    Chanfreau, Catherine
    [J]. IMPLEMENTATION SCIENCE, 2017, 13
  • [7] Patient engagement in Canada: a scoping review of the 'how' and 'what' of patient engagement in health research
    Manafo, Elizabeth
    Petermann, Lisa
    Mason-Lai, Ping
    Vandall-Walker, Virgnia
    [J]. HEALTH RESEARCH POLICY AND SYSTEMS, 2018, 16
  • [8] Patient Engagement in Health Research: Perspectives from Patient Participants
    Easley, Julie
    Wassersug, Richard
    Matthias, Sharon
    Tompson, Margaret
    Schneider, Nancy D.
    O'Brien, Mary Ann
    Vick, Bonnie
    Fitch, Margaret
    [J]. CURRENT ONCOLOGY, 2023, 30 (03) : 2770 - 2780
  • [9] Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research
    Elizabeth Manafo
    Lisa Petermann
    Ping Mason-Lai
    Virginia Vandall-Walker
    [J]. Health Research Policy and Systems, 16
  • [10] Supporting the evaluation of public and patient engagement in health system organizations: Results from an implementation research study
    Abelson, Julia
    Tripp, Laura
    Kandasamy, Sujane
    Burrows, Kristen
    Acton, Jenny
    Breton, Eric
    Bridge, Erica
    Brosseau, Mireille
    Chandani, Samira
    Humphrey, Anya
    Kouri, Christine
    Lang, Amy
    Moody, Lesley
    Moriyama, Susan
    Rowland, Paula
    Scane, Kerseri
    Shields, Kristin
    Sidenberg, Dawn
    Weir, Mark
    Westover, Pam
    Williams, Laura
    [J]. HEALTH EXPECTATIONS, 2019, 22 (05) : 1132 - 1143