An interpretative phenomenological analysis of the lived experience of people with multimorbidity in low- and middle-income countries

被引:2
|
作者
Tran, Phuong Bich [1 ]
Ali, Ayaz [2 ]
Ayesha, Rubab [2 ]
Boehnke, Jan R. [3 ,4 ]
Ddungu, Charles [5 ]
Lall, Dorothy [6 ]
Pinkney-Atkinson, Victoria J. [7 ]
van Olmen, Josefien [1 ]
机构
[1] Univ Antwerp, Dept Family Med & Populat Hlth, Antwerp, Belgium
[2] Rawalpindi Med Univ, Inst Psychiat, Rawalpindi, Pakistan
[3] Univ Dundee, Sch Hlth Sci, Dundee, Scotland
[4] Univ York, Dept Hlth Sci, York, England
[5] Inst Trop Med, Dept Publ Hlth, Antwerp, Belgium
[6] Christian Med Coll & Hosp, Vellore, Tamil Nadu, India
[7] South African Noncommunicable Dis Alliance SANCDA, Johannesburg, South Africa
来源
BMJ GLOBAL HEALTH | 2024年 / 9卷 / 01期
关键词
Qualitative study; SHARED DECISION-MAKING; MENTAL-HEALTH; MODEL; INTERVENTIONS; PERSPECTIVES; CHALLENGES; DISEASES; CULTURE; CARE;
D O I
10.1136/bmjgh-2023-013606
中图分类号
R1 [预防医学、卫生学];
学科分类号
1004 ; 120402 ;
摘要
People living with multimorbidity (PLWMM) have multiple needs and require long-term personalised care, which necessitates an integrated people-centred approach to healthcare. However, people-centred care may risk being a buzzword in global health and cannot be achieved unless we consider and prioritise the lived experience of the people themselves. This study captures the lived experiences of PLWMM in low- and middle-income countries (LMICs) by exploring their perspectives, experiences, and aspirations.We analysed 50 semi-structured interview responses from 10 LMICs across three regions-South Asia, Latin America, and Western Africa-using an interpretative phenomenological analysis approach.The bodily, social, and system experiences of illness by respondents were multidirectional and interactive, and largely captured the complexity of living with multimorbidity. Despite expensive treatments, many experienced little improvements in their conditions and felt that healthcare was not tailored to their needs. Disease management involved multiple and fragmented healthcare providers with lack of guidance, resulting in repetitive procedures, loss of time, confusion, and frustration. Financial burden was exacerbated by lost productivity and extreme finance coping strategies, creating a vicious cycle. Against the backdrop of uncertainty and disruption due to illness, many demonstrated an ability to cope with their conditions and navigate the healthcare system. Respondents' priorities were reflective of their desire to return to a pre-illness way of life-resuming work, caring for family, and maintaining a sense of independence and normalcy despite illness. Respondents had a wide range of needs that required financial, health education, integrated care, and mental health support.In discussion with respondents on outcomes, it appeared that many have complementary views about what is important and relevant, which may differ from the outcomes established by clinicians and researchers. This knowledge needs to complement and be incorporated into existing research and treatment models to ensure healthcare remains focused on the human and our evolving needs.
引用
收藏
页数:15
相关论文
共 50 条
  • [31] Epidemiology of sepsis in low- and middle-income countries
    Ramasubramanian, V.
    INTERNATIONAL JOURNAL OF INFECTIOUS DISEASES, 2016, 45 : 63 - 63
  • [32] Cardiovascular Health in Low- and Middle-Income Countries
    Huffman, Mark D.
    CURRENT PROBLEMS IN CARDIOLOGY, 2014, 39 (11) : 399 - 419
  • [33] Precision Medicine in Low- and Middle-Income Countries
    Radich, Jerald P.
    Briercheck, Edward
    Chiu, Daniel T.
    Menon, Manoj P.
    Torra, Olga Sala
    Yeung, Cecilia C. S.
    Warren, Edus H.
    ANNUAL REVIEW OF PATHOLOGY-MECHANISMS OF DISEASE, 2022, 17 : 387 - 402
  • [34] Childhood obesity in low- and middle-income countries
    Poskitt, E. M. E.
    PAEDIATRICS AND INTERNATIONAL CHILD HEALTH, 2014, 34 (04) : 239 - 249
  • [35] Screening for Cancer in Low- and Middle-Income Countries
    Sankaranarayanan, R.
    ANNALS OF GLOBAL HEALTH, 2014, 80 (05): : 412 - 417
  • [36] MRI scarcity in low- and middle-income countries
    Jalloul, Mohammad
    Miranda-Schaeubinger, Monica
    Noor, Abass M.
    Stein, Joel M.
    Amiruddin, Raisa
    Derbew, Hermon Miliard
    Mango, Victoria L.
    Akinola, Adeyanju
    Hart, Kelly
    Weygand, Joseph
    Pollack, Erica
    Mohammed, Sharon
    Scheel, John R.
    Shell, Jessica
    Dako, Farouk
    Mhatre, Pradnya
    Kulinski, Lauren
    Otero, Hansel J.
    Mollura, Daniel J.
    NMR IN BIOMEDICINE, 2023, 36 (12)
  • [37] Burn Care in Low- and Middle-Income Countries
    Charles, Anthony G.
    Gallaher, Jared
    Cairns, Bruce A.
    CLINICS IN PLASTIC SURGERY, 2017, 44 (03) : 479 - +
  • [38] Anaesthetic research in low- and middle-income countries
    Bashford, T.
    Vercueil, A.
    ANAESTHESIA, 2019, 74 (02) : 143 - 146
  • [39] Kidney care in low- and middle-income countries
    Qarni, Bilal
    Osman, Mohamed A.
    Levin, Adeera
    Feehally, John
    Harris, David
    Jindal, Kailash
    Olanrewaju, Timothy O.
    Samimi, Arian
    Olah, Michelle E.
    Braam, Branko
    Sakajiki, Aminu Muhammad
    Lunney, Meaghan
    Wiebe, Natasha
    Ye, Feng
    Jha, Vivekanand
    Okpechi, Ikechi
    Courtney, Mark
    Klarenbach, Scott
    Johnson, David W.
    Bello, Aminu K.
    CLINICAL NEPHROLOGY, 2020, 93 (07) : S21 - S30
  • [40] Postsurgical pain in low- and middle-income countries
    Walters, J. L.
    Jackson, T.
    Byrne, D.
    McQueen, K.
    BRITISH JOURNAL OF ANAESTHESIA, 2016, 116 (02) : 153 - 155