A Real-Life Laboratory Setting for Clinical Practice, Education,and Research in Family Systems Care:Protocol for aTransformational Action Research Study

被引:0
|
作者
Huber, Evelyn [1 ]
Harju, Erika
Stark, Elisabeth [1 ]
Fringer, Andre [1 ]
Preusse-Bleuler, Barbara [1 ]
机构
[1] ZHAW Zurich Univ Appl Sci, Inst Nursing, Sch Hlth Sci, Winterthur, Switzerland
来源
JMIR RESEARCH PROTOCOLS | 2024年 / 13卷
关键词
family systems care; family nursing; family health; family well-being; therapeutic conversation; real-life laboratory; transformationalaction research; case study research; qualitative research; vicarious learning; CHRONIC ILLNESS; CENTERED CARE; HEALTH-CARE; INTERVENTIONS; PATIENT; NURSES; MODEL;
D O I
10.2196/53090
中图分类号
R19 [保健组织与事业(卫生事业管理)];
学科分类号
摘要
Background: Burdening health and illness issues such as physical or mental illnesses, accidents, disabilities, and life eventssuch as birth or death influence the health and functioning of families and contribute to the complexity of care and health carecosts. Considerable research has confirmed the benefits of a family systems-centered care approach for patients, family caregivers,families, and health care professionals. However, health care professionals face barriers in working with families, such as feelingunprepared. Family systems-centered therapeutic conversations support families'day-to-day coping, resilience, and health. Afamily systems care unit (FSCU) was recently established as a real-life laboratory at one of the Swiss Universities of AppliedSciences. In this unit, health care professionals offer therapeutic conversations to families and individual family members tosupport daily symptom management and functioning, soften suffering, and increase health and well-being. These conversationsare observed in real time through a 1-way window by other health care professionals, students, and trainees and are recorded withvideo for research and education. Little is known about how therapeutic conversations contribute to meaningful changes inburdened families and the benefits of vicarious learning in a real-life laboratory setting for family systems care.Objective: In this research program, we aim to deepen our understanding of how therapeutic conversations support familiesand individuals experiencing burdening health and illness issues and how the FSCU laboratory setting supports the learning ofstudents, clinical trainees, and health care professionals.Methods: Here we apply a transformational action research design, including parallel and subsequent substudies, to advanceknowledge and practice in family systems care. Qualitative multiple-case study designs will be used to explore the benefits oftherapeutic conversations by analyzing recordings of the therapeutic conversations. The learning processes of students, trainees,and professionals will be investigated with descriptive qualitative study designs based on single and focus group interviews. Thedata will be analyzed with established coding methods.Results: Therapeutic conversations have been investigated in 3 single-case studies, each involving a sequence of 3 therapeuticconversation units. Data collection regarding the second research question is planned.Conclusions: Preliminary results confirm the therapeutic conversations to support families'coping. This renders the FSCU asetting for ethically sensitive research. This program will not only support the health and well-being of families, but also contributeto relieving the financial and workforce burdens in the health and social care system
引用
收藏
页数:12
相关论文
共 50 条
  • [21] Recruiting general practitioners for palliative care research in primary care: real-life barriers explained
    B. Leysen
    B. Van den Eynden
    A. Janssens
    J. Wens
    BMC Family Practice, 20
  • [22] Recruiting general practitioners for palliative care research in primary care: real-life barriers explained
    Leysen, B.
    Van den Eynden, B.
    Janssens, A.
    Wens, J.
    BMC FAMILY PRACTICE, 2019, 20 (1)
  • [23] The Enduring Effects of COVID for Cancer Care: Learning from Real-Life Clinical Practice
    Broom, Alex
    Williams Veazey, Leah
    Kenny, Katherine
    Harper, Imogen
    Peterie, Michelle
    Page, Alexander
    Cort, Nicole
    Durling, Jennifer
    Lipp, Eric S.
    Tan, Aaron C.
    Walsh, Kyle M.
    Hanks, Brent A.
    Johnson, Margaret
    Van Swearingen, Amanda E. D.
    Anders, Carey K.
    Ashley, David M.
    Khasraw, Mustafa
    CLINICAL CANCER RESEARCH, 2023, 29 (09) : 1670 - 1677
  • [24] Clinical Decision Support Systems in Hospitalized Older Patients: An Exploratory Analysis in a Real-Life Clinical Setting
    Linkens, Aimee E. M. J. H.
    Kurstjens, Dennis
    Zwietering, N. Anne
    Milosevic, Vanja
    Hurkens, Kim P. G. M.
    van Nie, Noemi
    van de Loo, Bob P. A.
    van der Kuy, P. Hugo M.
    Spaetgens, Bart
    DRUGS-REAL WORLD OUTCOMES, 2023, 10 (03) : 363 - 370
  • [25] Clinical Decision Support Systems in Hospitalized Older Patients: An Exploratory Analysis in a Real-Life Clinical Setting
    Aimée E. M. J. H. Linkens
    Dennis Kurstjens
    N. Anne Zwietering
    Vanja Milosevic
    Kim P. G. M. Hurkens
    Noémi van Nie
    Bob P. A. van de Loo
    P. Hugo M. van der Kuy
    Bart Spaetgens
    Drugs - Real World Outcomes, 2023, 10 : 363 - 370
  • [26] Action research in action: reflections on a project to introduce Clinical Practice Facilitators to an acute hospital setting
    Kelly, D
    Simpson, S
    JOURNAL OF ADVANCED NURSING, 2001, 33 (05) : 652 - 659
  • [27] The yield of a comprehensive investigation protocol for the diagnosis of true idiopathic ventricular fibrillation in a real-life clinical setting
    Lietava, Samuel
    Sepsi, Milan
    Zidkova, Jana
    Synkova, Iva
    Kozak, Milan
    Krivan, Lubomir
    Vlasinova, Jitka
    Richter, Svatopluk
    Rehor, Jan
    Kala, Petr
    Bebarova, Marketa
    Novotny, Tomas
    SCIENTIFIC REPORTS, 2024, 14 (01):
  • [28] Finerenone in real-life clinical practice: first results from a pilot study
    Piko, Nejc
    Petreski, Tadej
    Kukovic, Aleksandra
    Tramsek, Nika Aleksandra Kravos
    Hojs, Radovan
    Ekart, Robert
    Bevc, Sebastjan
    NEPHROLOGY DIALYSIS TRANSPLANTATION, 2024, 39
  • [29] Finerenone in real-life clinical practice: first results from a pilot study
    Piko, Nejc
    Petreski, Tadej
    Kukovic, Aleksandra
    Tramsek, Nika Aleksandra Kravos
    Hojs, Radovan
    Ekart, Robert
    Bevc, Sebastjan
    NEPHROLOGY DIALYSIS TRANSPLANTATION, 2024, 39 : I2764 - I2765
  • [30] Spontaneous Scaling of a Primary Care Innovation in Real-Life Conditions: Protocol for a Case Study
    Legare, France
    Mochcovitch, Diogo G., V
    Coroa, Roberta de Carvalho
    Gogovo, Amede
    Ben Charif, Ali
    Cameron, Cynthia
    Plamondon, Annie
    Cimon, Marie
    Guay-Belanger, Sabrina
    Roch, Genevieve
    Pilon, Maxine Dumas
    Paquette, Jean-Sebastien
    McLean, Robert K. D.
    Milat, Andrew
    JMIR RESEARCH PROTOCOLS, 2023, 12