Long-term follow-up of children with sickle cell disease diagnosed by newborn screening in the Netherlands: Overview of morbidity and mortality

被引：0

作者：

Vuong, Caroline ^{[1
]}

Eckhardt, Corien L. ^{[1
]}

Heijboer, Harriet ^{[1
]}

Suijker, Monique H. ^{[2
]}

de Ligt, Lydian A. ^{[1
]}

Voigt, Aimee L. A. ^{[1
]}

Leeflang, Mariska M. G. ^{[3
]}

Bartels, Marije ^{[2
]}

Brons, Paul ^{[4
]}

Hooimeijer, Louise ^{[5
]}

Rettenbacher, Eva ^{[1
]}

Smiers, Frans J. ^{[6
]}

Stein-Wit, Marjet A. ^{[5
]}

van Der Veer, Arian ^{[7
]}

Verbaan, Annemieke ^{[8
]}

Cnossen, Marjon H. ^{[9
]}

Fijnvandraat, Karin ^{[1
,10
]}

机构：

[1] Univ Amsterdam, Emma Childrens Hosp, Dept Pediat Hematol, Amsterdam UMC, Amsterdam, Netherlands

[2] Univ Med Ctr Utrecht, Wilhelmina Childrens Hosp, Ctr Benign Hematol Thrombosis & Hemostasis Van Cre, Utrecht, Netherlands

[3] Univ Amsterdam, Dept Epidemiol & Data Sci, Amsterdam UMC, Amsterdam, Netherlands

[4] Radboud Univ Nijmegen, Amalia Childrens Hosp, Nijmegen Med Ctr, Dept Pediat Hematol, Nijmegen, Netherlands

[5] Univ Med Ctr Groningen, Beatrix Childrens Hosp, Dept Pediat Hematol, Groningen, Netherlands

[6] Leiden Univ Med Ctr, Willem Alexander Childrens Hosp, Dept Pediat Hematol, Stem Cell Transplantat Unit, Leiden, Netherlands

[7] Mosakids Childrens Hosp, Dept Pediat Hematol, Maastricht UMC, Maastricht, Netherlands

[8] Juliana Childrens Hosp, Dept Pediat, Hagaziekenhuis, The Hague, Netherlands

[9] Erasmus MC Sophia Childrens Hosp, Univ Med Ctr Rotterdam, Dept Pediat Hematol & Oncol, Rotterdam, Netherlands

[10] Amsterdam UMC, Emma Childrens Hosp, Dept Pediat Hematol, Meibergdreef 9, NL-1105 AZ Amsterdam, Netherlands

来源：

AMERICAN JOURNAL OF HEMATOLOGY | 2024年 / 99卷 / 08期

关键词：

SURVIVAL;

D O I：

10.1002/ajh.27351

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

引用

页码：1606 / 1609

页数：4

共 50 条

[41] Follow-up after initial screening of pulmonary hypertension in children with sickle cell disease
Lee, M. T.
Rosenzweig, E. Berman
Licursi, M.
Cairo, M. S.
Barst, R.
PEDIATRIC BLOOD & CANCER, 2007, 48 (06) : 614 - 614
[42] NEWBORN SCREENING FOR SICKLE-CELL SYNDROMES AND FOLLOW-UP IN A UNIVERSITY HOSPITAL
BALLAS, SK
PARK, D
MOSHANG, JM
BLOOD, 1993, 82 (10) : A469 - A469
[43] Long-term follow-up of gastroesophageal reflux disease in children.
Ruuska, T
Ashorn, M
Koivu, H
Aine, L
Karikoski, R
Mäki, M
GASTROENTEROLOGY, 1998, 114 (04) : A272 - A272
[44] LONG-TERM FOLLOW-UP OF STARGARDT DISEASE
ITABASHI, R
KATSUMI, O
TAMAI, M
HIROSE, T
INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, 1991, 32 (04) : 1227 - 1227
[45] A long-term follow-up of Eales' disease
Atmaca, LS
Batioglu, F
Sonmez, PA
OCULAR IMMUNOLOGY AND INFLAMMATION, 2002, 10 (03) : 213 - 221
[46] Long-term follow-up to ensure quality care of individuals diagnosed with newborn screening conditions: Early experience in New England
Sahai, Inderneel
Eaton, Roger B.
Hale, Jaime E.
Mulcahy, Eleanor A.
Comeau, Anne Marie
GENETICS IN MEDICINE, 2010, 12 (12) : S220 - S227
[47] Langerhans cell histiocytosis of the spine in children - Long-term follow-up
Garg, S
Mehta, S
Dormans, JP
JOURNAL OF BONE AND JOINT SURGERY-AMERICAN VOLUME, 2004, 86A (08): : 1740 - 1750
[48] Understanding Gaps in Current Practices of Newborn Screening Follow-up for Sickle Cell Disease in the United States
Galadanci, Najibah
Phillips, Shannon
Schlenz, Alyssa M.
Ivankova, Nataliya
Kanter, Julie
BLOOD, 2023, 142
[49] Disease burden in primary sclerosing cholangitis in the Netherlands: A long-term follow-up study
van Munster, Kim N.
Mol, Bregje
Goet, Jorn C.
van Munster, Sanne N.
Weersma, Rinse K.
de Vries, Annemarie C.
van der Meer, Adriaan J.
Inderson, Akin
Drenth, Joost P.
van Erpecum, Karel J.
Boonstra, Kirsten
Beuers, Ulrich
Dijkgraaf, Marcel G. W.
Ponsioen, Cyriel Y.
LIVER INTERNATIONAL, 2023, 43 (03) : 639 - 648
[50] Long-term morbidity and mortality after spinal cord injury: 50 years of follow-up
G Zeilig
M Dolev
H Weingarden
N Blumen
Y Shemesh
A Ohry
Spinal Cord, 2000, 38 : 563 - 566

← 1 2 3 4 5 →