Long-term follow-up of children with sickle cell disease diagnosed by newborn screening in the Netherlands: Overview of morbidity and mortality

被引：0

作者：

Vuong, Caroline ^{[1
]}

Eckhardt, Corien L. ^{[1
]}

Heijboer, Harriet ^{[1
]}

Suijker, Monique H. ^{[2
]}

de Ligt, Lydian A. ^{[1
]}

Voigt, Aimee L. A. ^{[1
]}

Leeflang, Mariska M. G. ^{[3
]}

Bartels, Marije ^{[2
]}

Brons, Paul ^{[4
]}

Hooimeijer, Louise ^{[5
]}

Rettenbacher, Eva ^{[1
]}

Smiers, Frans J. ^{[6
]}

Stein-Wit, Marjet A. ^{[5
]}

van Der Veer, Arian ^{[7
]}

Verbaan, Annemieke ^{[8
]}

Cnossen, Marjon H. ^{[9
]}

Fijnvandraat, Karin ^{[1
,10
]}

机构：

[1] Univ Amsterdam, Emma Childrens Hosp, Dept Pediat Hematol, Amsterdam UMC, Amsterdam, Netherlands

[2] Univ Med Ctr Utrecht, Wilhelmina Childrens Hosp, Ctr Benign Hematol Thrombosis & Hemostasis Van Cre, Utrecht, Netherlands

[3] Univ Amsterdam, Dept Epidemiol & Data Sci, Amsterdam UMC, Amsterdam, Netherlands

[4] Radboud Univ Nijmegen, Amalia Childrens Hosp, Nijmegen Med Ctr, Dept Pediat Hematol, Nijmegen, Netherlands

[5] Univ Med Ctr Groningen, Beatrix Childrens Hosp, Dept Pediat Hematol, Groningen, Netherlands

[6] Leiden Univ Med Ctr, Willem Alexander Childrens Hosp, Dept Pediat Hematol, Stem Cell Transplantat Unit, Leiden, Netherlands

[7] Mosakids Childrens Hosp, Dept Pediat Hematol, Maastricht UMC, Maastricht, Netherlands

[8] Juliana Childrens Hosp, Dept Pediat, Hagaziekenhuis, The Hague, Netherlands

[9] Erasmus MC Sophia Childrens Hosp, Univ Med Ctr Rotterdam, Dept Pediat Hematol & Oncol, Rotterdam, Netherlands

[10] Amsterdam UMC, Emma Childrens Hosp, Dept Pediat Hematol, Meibergdreef 9, NL-1105 AZ Amsterdam, Netherlands

来源：

AMERICAN JOURNAL OF HEMATOLOGY | 2024年 / 99卷 / 08期

关键词：

SURVIVAL;

D O I：

10.1002/ajh.27351

中图分类号：

R5 [内科学];

学科分类号：

1002 ; 100201 ;

摘要：

引用

页码：1606 / 1609

页数：4

共 50 条

[31] Malonic aciduria: long-term follow-up of new patients detected by newborn screening
Baertling, Fabian
Mayatepek, Ertan
Thimm, Eva
Schlune, Andrea
Kovacevic, Alexander
Distelmaier, Felix
Salomons, Gajja S.
Meissner, Thomas
EUROPEAN JOURNAL OF PEDIATRICS, 2014, 173 (12) : 1719 - 1722
[32] Long-term follow-up of patients diagnosed with celiac disease in early childhood
Wieneke, P
O'Leary, C
Healy, M
O'Halloran, T
Barry, R
Cronin, CC
O'Regan, P
Shanahan, FLJ
GASTROENTEROLOGY, 1999, 116 (04) : A946 - A946
[33] Long-term follow-up data collection and use in state newborn screening programs
Hoff, Timothy
Ayoob, Maria
Therrell, Bradford L.
ARCHIVES OF PEDIATRICS & ADOLESCENT MEDICINE, 2007, 161 (10): : 994 - 1000
[34] Long-term follow-up in newborn screening: A systems approach for improving health outcomes
Lloyd-Puryear, Michele A.
Brower, Amy
GENETICS IN MEDICINE, 2010, 12 (12) : S256 - S260
[35] Malonic aciduria: long-term follow-up of new patients detected by newborn screening
Fabian Baertling
Ertan Mayatepek
Eva Thimm
Andrea Schlune
Alexander Kovacevic
Felix Distelmaier
Gajja S. Salomons
Thomas Meissner
European Journal of Pediatrics, 2014, 173 : 1719 - 1722
[36] Practices and perceptions of long-term follow-up among state newborn screening programs
Hoff, Timothy
Hoyt, Adrienne
PEDIATRICS, 2006, 117 (06) : 1922 - 1929
[37] LONG-TERM FOLLOW-UP OF CHILDREN WITH EPENDYMOMAS
ROSTAD, S
ALVORD, EC
CANADIAN JOURNAL OF NEUROLOGICAL SCIENCES, 1988, 15 (02) : 178 - 178
[38] LONG-TERM FOLLOW-UP OF CHILDREN WITH CRANIOPHARYNGIOMA
STAHNKE, N
GRUBEL, G
LAGENSTEIN, I
WILLIG, RP
EUROPEAN JOURNAL OF PEDIATRICS, 1984, 142 (03) : 179 - 185
[39] Long-term follow-up of children with retinoblastoma
Nahum, MP
Gdal-On, M
Kuten, A
Herzl, G
Horovitz, Y
Ben Arush, MW
PEDIATRIC HEMATOLOGY AND ONCOLOGY, 2001, 18 (03) : 173 - 179
[40] LONG-TERM FOLLOW-UP OF CHILDREN WITH HYDRONEPHROSIS
Yilmaz, SongUl
OzCakar, Z. Birsin
CoSkun, Burcu Biral
Cakar, NilgUn
YalCinkaya, Fatma FatoS
PEDIATRIC NEPHROLOGY, 2022, 37 (11) : 2928 - 2928

← 1 2 3 4 5 →