Palliative care for children with neuromuscular diseases. Cooperative experience between paediatric palliative care team and neuropediatric unit

被引：2

作者：

Alberge, Marie-Claire ^{[1
,2
]}

Brocq, Helene ^{[3
]}

Richelme, Christian ^{[3
]}

Chappuis, Viviane ^{[4
]}

Lanteri-Minet, Michel ^{[1
,2
]}

Desnuelle, Claude ^{[3
]}

机构：

[1] CHU Nice, Hop Pasteur, Dept Evaluat, 30,Voie Romaine, F-06002 Nice, France

[2] CHU Nice, Hop Pasteur, Med Palliat, F-06002 Nice, France

[3] CHU Nice, Ctr Reference DHOS Malad Neuromusculaires & SLA, F-06002 Nice, France

[4] HAD Nice, F-06200 Nice, France

来源：

MEDECINE PALLIATIVE | 2010年 / 9卷 / 06期

关键词：

Neuromuscular diseases; Palliative care; Children; Neuropaediatrics; Collegial care;

D O I：

10.1016/j.medpal.2010.09.009

中图分类号：

R19 [保健组织与事业（卫生事业管理）];

学科分类号：

摘要：

The medical teams of neuropaediatric units have no culture of early cooperation with the palliative care team, around the children affected by neuromuscular diseases. We deliver here, an example of coordination between the hospital department of neuropaediatrics of the CHU of Nice, the team of pain and pediatric palliative care, and the nursing of the place of residence. We describe the essential points of this accompaniment, since the diagnostic phase, of both the child and his family. (C) 2010 Elsevier Masson SAS. All rights reserved.

引用

页码：297 / 302

页数：6

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