Why would a disabled child require palliative care? A palliative care professional's experience

Why would disabled children require palliative care? To this provocative question, the authors answer from their own professional experience, as a member of a French paediatric palliative care team. We propose to deconstruct palliative care representations and to work with uncertainty, a concept that seems particularly relevant to support children with multiple disabilities, their families and professional teams. We develop the idea that taming uncertainty allows being closer to the needs of children to the extent that it is constitutive of our status of being alive. (C) 2018 Elsevier Masson SAS. All rights reserved.