Realizing optimal care for children with cardiovascular disease: Funding challenges and research approaches

被引:9
|
作者
Lipshultz, Steven E. [1 ,2 ,3 ]
机构
[1] Univ Miami Sch Med, Holtz Childrens Hosp, Jackson Mem Med Ctr, Dept Pediat, POB 016820, Miami, FL 33101 USA
[2] Sylvester Comprehens Canc Ctr, Miami, FL 33101 USA
[3] Univ Miami, Sch Med, Dept Pediat, Miami, FL 33136 USA
基金
美国国家卫生研究院;
关键词
Cardiovascular disease; Child care; Health care coverage; Pediatric clinical research;
D O I
10.1016/j.ppedcard.2005.02.001
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
Realizing optimal care for children with cardiovascular disease depends on organizing all the factors related to clinical care, research, education, and advocacy that have been reviewed in the 30 articles contained in these 3 issues of Progress in Pediatric Cardiology. The management of congenital heart disease has changed greatly over the past few decades and continues to evolve rapidly. More than ever, contemporary practice requires a collaborative effort by a large healthcare team comprised not only of pediatric cardiac surgeons but also pediatric cardiac nurses, pediatric cardiologists, perfusion and respiratory technicians, pediatric cardiac intensivists, pediatric cardiac anesthesiologists, ultrasonographers, and MRI and catheterization laboratory technicians. All of these individuals need to clearly understand the morphology and pathophysiology of congenital heart disease, as well as the associated surgical procedures. The successful team will be the one that has worked together for many years with an evidence-based approach to surgery and to patient communication about the risks, benefits, and potential complications. Here, I review the funding aspects of pediatric cardiovascular care and cite research that has improved our understanding of pediatric cardiovascular medicine and that has improved patient outcomes in this branch of medicine. (C) 2005 Elsevier Ireland Ltd. All rights reserved.
引用
收藏
页码:71 / 90
页数:20
相关论文
共 50 条
  • [41] Everyday technologies for Alzheimer's disease care: Research findings, directions, and challenges
    Carrillo, Maria C.
    Dishman, Eric
    Plowman, Tim
    ALZHEIMERS & DEMENTIA, 2009, 5 (06) : 479 - 488
  • [42] Advantages, Challenges and Opportunities in Working with Participatory Visual Approaches in Qualitative Research Involving Children and Youth in the Context of Cancer Research
    Woodgate, R.
    Tennent, P.
    Zurba, M.
    PEDIATRIC BLOOD & CANCER, 2017, 64 : S494 - S495
  • [43] Too Vulnerable to Participate? Challenges for Meaningful Participation in Research With Children in Alternative Care and Adoption
    Garcia-Quiroga, Manuela
    Salvo Agoglia, Irene
    INTERNATIONAL JOURNAL OF QUALITATIVE METHODS, 2020, 19
  • [44] Challenges in the Care of Clients with Established Cardiovascular Disease: Lessons Learned from Australian Community Pharmacists
    Puspitasari, Hanni P.
    Aslani, Parisa
    Krass, Ines
    PLOS ONE, 2014, 9 (11):
  • [45] Uniform data collection in routine clinical practice in cardiovascular patients for optimal care, quality control and research: The Utrecht Cardiovascular Cohort
    Asselbergs, Folkert W.
    Visseren, Frank L. J.
    Bots, Michiel L.
    de Borst, Gert J.
    Buijsrogge, Marc P.
    Dieleman, Jan M.
    van Dinther, Baukje G. F.
    Doevendans, Pieter A.
    Hoefer, Imo E.
    Hollander, Monika
    de Jong, Pim A.
    Koenen, Steven V.
    Pasterkamp, Gerard
    Ruigrok, Ynte M.
    van der Schouw, Yvonne T.
    Verhaar, Marianne C.
    Grobbee, Diederick E.
    EUROPEAN JOURNAL OF PREVENTIVE CARDIOLOGY, 2017, 24 (08) : 840 - 847
  • [46] Timely publication and sharing of trial data: opportunities and challenges for comparative effectiveness research in cardiovascular disease
    Naci, Huseyin
    Cooper, Jacob
    Mossialos, Elias
    EUROPEAN HEART JOURNAL-QUALITY OF CARE AND CLINICAL OUTCOMES, 2015, 1 (02) : 58 - 65
  • [47] Research Trends in Family-Centered Care for Children With Chronic Disease
    Im, YeoJin
    Jung, Sunyoung
    Park, YoungAh
    Eom, Jeong Hee
    CIN-COMPUTERS INFORMATICS NURSING, 2024, 42 (07) : 504 - 514
  • [48] Multidisciplinary Delphi consensus on challenges and key factors for an optimal care model in chronic kidney disease
    Luis Gorriz, Jose
    Alcazar Arroyo, Roberto
    Arribas, Patricia
    Artola, Sara
    Cinza-Sanjurjo, Sergio
    de la Espriella, Rafael
    Escalada, Javier
    Garcia-Matarin, Lisardo
    Martinez, Luis
    Carlos Julian, Juan
    Miramontes-Gonzalez, Jose Pablo
    Rubial, Felix
    Salgueira, Mercedes
    Jose Soler, Maria
    Luis Trillo, Jose
    NEFROLOGIA, 2024, 44 (05): : 678 - 688
  • [49] Primary Care Providers Can Help Prevent Cardiovascular Disease in Children-And Their Parents
    Washington, Reginald L.
    JOURNAL OF PEDIATRICS, 2012, 160 (04): : 539 - 540
  • [50] Implementation strategies of Systems Medicine in clinical research and home care for cardiovascular disease patients
    Montecucco, Fabrizio
    Carbone, Federico
    Dini, Frank Lloyd
    Fiuza, Manuela
    Pinto, Fausto J.
    Martelli, Antonietta
    Palombo, Domenico
    Sambuceti, Gianmario
    Mach, Francois
    De Caterina, Raffaele
    EUROPEAN JOURNAL OF INTERNAL MEDICINE, 2014, 25 (09) : 785 - 794