ENERCA: telemedicine platform for rare anaemias

被引:0
|
作者
Gulbis, Beatrice [1 ]
Manu Pereira, Maria del Mar [2 ]
Armaza Armaza, Emilio J. [3 ]
Nicolas, Pilar [3 ]
机构
[1] Univ Libre Bruxelles, Hop Erasme, Dept Clin Chem, Dept Clin Biol & Mol Genet, Brussels, Belgium
[2] Univ Barcelona, Hosp Clin, Barcelona, Spain
[3] Univ Deusto, Univ Pais Vasco Euskal Herriko Unibertsitatea, Catedra Interuniv Diputac Foral Bizkaia Derecho &, Bilbao, Spain
关键词
rare anaemias; telemedicine; ENERCA; patients; tele-expertise;
D O I
10.4081/thal.2014.4879
中图分类号
R5 [内科学];
学科分类号
1002 ; 100201 ;
摘要
The creation of a telemedicine, tele-expertise platform opens a new challenge within the European Network for Rare and Congenital Anaemias (ENERCA; www.enerca.org). This is a cornerstone in the field of rare anaemias, in which national expertise is usually scarce and a significant number of patients remain undiagnosed. Experts in rare diseases are specially needed of shared knowledge platforms offering the possibility of a faster and more accurate diagnosis and the availability of a better patients' follow-up. The platform developed by e-ENERCA will be user friendly and intuitive so it will be used by the majority of professionals without requiring a specific formation. The idea of inter professional consultation is to bring medical experts together for collaborative involvement in activities that maximize the benefits and improvement in patient care.
引用
收藏
页码:91 / 91
页数:1
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