Evidence-based practice forms an essential part of modern medicine, but many treatments widely used in palliative care have never been proven to be effective. Attempts at performing research in palliative care to improve the evidence base have often failed due to poor trial accrual. Many researchers perceive gatekeeping by professionals (i.e. a reluctance to contribute patients for research studies) to be a major reason for this poor accrual. This review considers the problem of gatekeeping from palliative care research trials, determines if this is a problem exclusive to palliative care, and identifies potential methods to reduce gatekeeping.
机构:
Yale Sch Med, Dept Pediat, New Haven, CT USA
Publ Policy & Effectiveness Res COPPER Ctr, Yale Canc Outcomes, New Haven, CT USAYale Sch Med, Dept Pediat, New Haven, CT USA
Ananth, Prasanna
Snaman, Jennifer M.
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Dana Farber Canc Inst, Dept Psychosocial Oncol & Palliat Care, Boston, MA 02215 USA
Boston Childrens Hosp, Dept Hematol Oncol, Boston, MA 02115 USAYale Sch Med, Dept Pediat, New Haven, CT USA
机构:
Childrens Hosp Philadelphia, Ingerman Ctr Pediat Palliat Care, Philadelphia, PA 19104 USAChildrens Hosp Philadelphia, Ingerman Ctr Pediat Palliat Care, Philadelphia, PA 19104 USA
Feudtner, Chris
Rosenberg, Abby R.
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Seattle Childrens Res Inst, Palliat Care & Resilience Program, Seattle, WA USA
Univ Washington, Sch Med, Dept Pediat, Seattle, WA 98195 USAChildrens Hosp Philadelphia, Ingerman Ctr Pediat Palliat Care, Philadelphia, PA 19104 USA
Rosenberg, Abby R.
Boss, Renee D.
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Johns Hopkins Sch Med, Dept Pediat, Baltimore, MD USA
Berman Inst Bioeth, Baltimore, MD USAChildrens Hosp Philadelphia, Ingerman Ctr Pediat Palliat Care, Philadelphia, PA 19104 USA
Boss, Renee D.
Wiener, Lori
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NCI, NIH, Bethesda, MD 20892 USAChildrens Hosp Philadelphia, Ingerman Ctr Pediat Palliat Care, Philadelphia, PA 19104 USA
Wiener, Lori
Lyon, Maureen E.
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机构:
Childrens Natl Hlth Syst, Ctr Translat Res, Washington, DC USA
George Washington Univ, Sch Med & Hlth Sci, Dept Pediat, Washington, DC USAChildrens Hosp Philadelphia, Ingerman Ctr Pediat Palliat Care, Philadelphia, PA 19104 USA
Lyon, Maureen E.
Hinds, Pamela S.
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机构:
Childrens Natl Hlth Syst, Dept Nursing Sci Profess Practice & Qual, Washington, DE USA
George Washington Univ, Sch Med & Hlth Sci, Washington, DC USAChildrens Hosp Philadelphia, Ingerman Ctr Pediat Palliat Care, Philadelphia, PA 19104 USA
Hinds, Pamela S.
Bluebond-Langner, Myra
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机构:
UCL, Louis Dundas Ctr Childrens Palliat Care, Great Ormond St Inst Child Hlth, London, England
Rutgers State Univ, Dept Sociol Anthropol & Criminal Justice, Camden, NJ USAChildrens Hosp Philadelphia, Ingerman Ctr Pediat Palliat Care, Philadelphia, PA 19104 USA
Bluebond-Langner, Myra
Wolfe, Joanne
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机构:
Dana Farber Canc Inst, Dept Psychosocial Oncol & Palliat Care, Boston, MA 02115 USA
Boston Childrens Hosp, Dept Pediat, Boston, MA USAChildrens Hosp Philadelphia, Ingerman Ctr Pediat Palliat Care, Philadelphia, PA 19104 USA
机构:
Univ Colorado, Sch Med, Dept Med, Aurora, CO USA
Univ Colorado, Sch Med, Dept Med, Aurora, CO 80045 USAUniv Colorado, Sch Med, Dept Med, Aurora, CO USA
Kutner, Jean S.
Pollak, Kathryn I.
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Duke Univ, Sch Med, Dept Populat Hlth Sci, Durham, NC USA
Duke Canc Inst, Canc Prevent & Control, Durham, NC USAUniv Colorado, Sch Med, Dept Med, Aurora, CO USA
Pollak, Kathryn I.
Kehl, Karen A.
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Natl Inst Nursing Res, Div Extramural Sci Programs, NIH, Bethesda, MD USAUniv Colorado, Sch Med, Dept Med, Aurora, CO USA
Kehl, Karen A.
Ritchie, Christine S.
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Massachusetts Gen Hosp, Dept Med, Boston, MA USA
Massachusetts Gen Hosp, Ctr Aging & Serious Illness, Boston, MA USA
Harvard Med Sch, Boston, MA USAUniv Colorado, Sch Med, Dept Med, Aurora, CO USA
机构:
NCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USANCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USA
Mollica, Michelle A.
Kent, Erin E.
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NCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USA
ICF Int Inc, Rockville, MD USANCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USA
Kent, Erin E.
Castro, Kathleen M.
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NCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USANCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USA
Castro, Kathleen M.
Ellis, Erin M.
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NCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USANCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USA
Ellis, Erin M.
Ferrer, Rebecca A.
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机构:
NCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USANCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USA
Ferrer, Rebecca A.
Falisi, Angela L.
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机构:
NCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USANCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USA
Falisi, Angela L.
Gaysynsky, Anna
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机构:
ICF Int Inc, Rockville, MD USANCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USA
Gaysynsky, Anna
Huang, Grace C.
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机构:
Westat Corp, Rockville, MD USANCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USA
Huang, Grace C.
Palan, Martha A.
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机构:
Westat Corp, Rockville, MD USANCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USA
Palan, Martha A.
Chou, Wen-Ying
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机构:
NCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USANCI, Div Canc Control & Populat Sci, NIH, Bethesda, MD 20892 USA