Long-term evolution of patient-reported outcome measures in spinocerebellar ataxias

被引：0

作者：

Heike Jacobi

Sophie Tezenas du Montcel

Peter Bauer

Paola Giunti

Arron Cook

Robyn Labrum

Michael H. Parkinson

Alexandra Durr

Alexis Brice

Perrine Charles

Cecilia Marelli

Caterina Mariotti

Lorenzo Nanetti

Lidia Sarro

Maria Rakowicz

Anna Sulek

Anna Sobanska

Tanja Schmitz-Hübsch

Ludger Schöls

Holger Hengel

Laszlo Baliko

Bela Melegh

Alessandro Filla

Antonella Antenora

Jon Infante

José Berciano

Bart P. van de Warrenburg

Dagmar Timmann

Sandra Szymanski

Sylvia Boesch

Wolfgang Nachbauer

Jun-Suk Kang

Massimo Pandolfo

Jörg B. Schulz

Audrey Tanguy Melac

Alhassane Diallo

Thomas Klockgether

机构：

[1] German Center for Neurodegenerative Diseases (DZNE),Department of Neurology

[2] Heidelberg University Hospital,Institute of Medical Genetics and Applied Genomics

[3] Sorbonne Universités,Department of Molecular Neuroscience

[4] Université Pierre et Marie Curie (UPMC) Univ Paris 06,Neurogenetic Laboratory

[5] UMRS 1136,Département de Génétique

[6] INSERM U 1136,SOSD Genetics of Neurodegenerative and Metabolic Diseases

[7] Institut Pierre Louis d’Epidémiologie et de Santé Publique,Department of Clinical Neurophysiology

[8] AP-HP,Department of Genetics

[9] Biostatistics Unit,Department of Neurodegeneration and Hertie

[10] Groupe Hospitalier Pitié-Salpêtrière,Institute for Clinical Brain Research

[11] University of Tübingen,Department of Neurology

[12] CENTOGENE AG,Department of Medical Genetics, Medical School, and Szentagothai Research Center

[13] UCL,Department of Neuroscience, and Reproductive and Odontostomatological Sciences

[14] Institute of Neurology,Service of Neurology

[15] National Hospital of Neurology and Neurosurgery,Service of Neurology, University Hospital “Marqués de Valdecilla (IDIVAL)”, “Centro de Investigación Biomédica en Red de Enfermedades Neurodegenerativas (CIBERNED)”

[16] UCL,Department of Neurology, Donders Institute for Brain, Cognition, and Behaviour

[17] INSERM,Department of Neurology, University Clinic Essen

[18] U 1127,Department of Neurology, St. Josef Hospital

[19] CNRS,Department of Neurology

[20] UMR 7225,Department of Neurology

[21] Sorbonne Universités,Department of Neurology

[22] UPMC Univ Paris 06,JARA

[23] UMRS_1127,BRAIN Institute Molecular Neuroscience and Neuroimaging

[24] Institut du Cerveau et de la Moelle épinière,Department of Neurology

[25] ICM,undefined

[26] APHP,undefined

[27] Hôpital de la Pitié-Salpêtrière,undefined

[28] Service de Neurologie-CMRR,undefined

[29] CHRU Gui de Chauliac,undefined

[30] Fondazione-IRCCS Istituto Neurologico Carlo Besta,undefined

[31] Institute of Psychiatry and Neurology,undefined

[32] Institute of Psychiatry and Neurology,undefined

[33] Charité Universitätsmedizin Berlin,undefined

[34] NeuroCure Clinical Research Center,undefined

[35] University of Tübingen and Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE),undefined

[36] Zala County Hospital,undefined

[37] University of Pécs,undefined

[38] Federico II University Naples,undefined

[39] University Hospital Marqués de Valdecilla (IDIVAL),undefined

[40] University of Cantabria (UC) and Centro de Investigación Biomédica en Red de Enfermedades Neurodegenerativas (CIBERNED),undefined

[41] University of Cantabria (UC),undefined

[42] Radboud University Medical Center,undefined

[43] University of Duisburg-Essen,undefined

[44] University Hospital of Bochum,undefined

[45] Medical University,undefined

[46] Innsbruck,undefined

[47] University of Frankfurt,undefined

[48] Université Libre de Bruxelles (ULB),undefined

[49] Neurology Service-ULB Hôpital Erasme,undefined

[50] ULB Laboratory of Experimental Neurology,undefined

来源：

Journal of Neurology | 2018年 / 265卷

关键词：

Spinocerebellar ataxia; Depression; Quality of life; ADL; Natural history studies; Trinucleotide repeat diseases;

D O I：

暂无

中图分类号：

学科分类号：

摘要：

引用

页码：2040 / 2051

页数：11

共 50 条

[41] Patient-reported outcome measures in skin cancer
Black, N.
[J]. BRITISH JOURNAL OF DERMATOLOGY, 2013, 168 (06) : 1151 - 1151
[42] Patient-Reported Outcome Measures following Rhinoplasty
Barone, Mauro
Cogliandro, Annalisa
Persichetti, Paolo
[J]. PLASTIC AND RECONSTRUCTIVE SURGERY, 2018, 142 (04): : 585E - 585E
[43] Clinimetric Criteria for Patient-Reported Outcome Measures
Carrozzino, Danilo
Patierno, Chiara
Guidi, Jenny
Berrocal Montiel, Carmen
Cao, Jianxin
Charlson, Mary E.
Christensen, Kaj Sparle
Concato, John
De las Cuevas, Carlos
De Leon, Jose
Eory, Ajandek
Fleck, Marcelo Pio
Furukawa, Toshi A.
Horwitz, Ralph I.
Nierenberg, Andrew A.
Rafanelli, Chiara
Wang, Hongxing
Wise, Thomas N.
Sonino, Nicoletta
Fava, Giovanni A.
[J]. PSYCHOTHERAPY AND PSYCHOSOMATICS, 2021, : 222 - 232
[44] Methods for shortening patient-reported outcome measures
Harel, Daphna
Baron, Murray
Hudson, M.
Gyger, G.
Pope, J.
Larche, M.
Khalidi, N.
Masetto, A.
Sutton, E.
Robinson, D.
Rodriguez-Reyna, T. S.
Smith, D.
Thorne, C.
Fortin, P. R.
Fritzler, M.
[J]. STATISTICAL METHODS IN MEDICAL RESEARCH, 2019, 28 (10-11) : 2992 - 3011
[45] Validating Patient-Reported Outcome Measures in Dermatology
Hopkins, Zachary H.
Perez-Chada, Lourdes Maria
[J]. JAMA DERMATOLOGY, 2024, 160 (08) : 801 - 803
[46] Patient-reported Outcome Measures in Spine Surgery
McCormick, John D.
Werner, Brian C.
Shimer, Adam L.
[J]. JOURNAL OF THE AMERICAN ACADEMY OF ORTHOPAEDIC SURGEONS, 2013, 21 (02) : 99 - 107
[47] EVALUATION OF PATIENT-REPORTED OUTCOME MEASURES (PROMS)
Barnard, K.
[J]. DIABETES TECHNOLOGY & THERAPEUTICS, 2019, 21 : A7 - A7
[48] Orthopaedic registries with patient-reported outcome measures
Wilson, Ian
Bohm, Eric
Lubbeke, Anne
Lyman, Stephen
Overgaard, Soren
Rolfson, Ola
W-Dahl, Annette
Wilkinson, Mark
Dunbar, Michael
[J]. EFORT OPEN REVIEWS, 2019, 4 (06): : 357 - 367
[49] PATIENT-REPORTED OUTCOME MEASURES FOR WOMEN WITH VULVODYNIA
Joensson, L.
Yang, M.
Nash, P.
Duttagmta, S.
[J]. VALUE IN HEALTH, 2017, 20 (09) : A523 - A523
[50] Readability of Patient-reported Outcome Measures in Anesthesiology
Nosow, Lillian M.
Rao, Shambavi J.
Neubauer, Daniel J.
Madden, Lyndsay L.
[J]. ANESTHESIOLOGY, 2022, 136 (01) : 242 - 244

← 1 2 3 4 5 →