Long-term evolution of patient-reported outcome measures in spinocerebellar ataxias

被引：0

作者：

Heike Jacobi

Sophie Tezenas du Montcel

Peter Bauer

Paola Giunti

Arron Cook

Robyn Labrum

Michael H. Parkinson

Alexandra Durr

Alexis Brice

Perrine Charles

Cecilia Marelli

Caterina Mariotti

Lorenzo Nanetti

Lidia Sarro

Maria Rakowicz

Anna Sulek

Anna Sobanska

Tanja Schmitz-Hübsch

Ludger Schöls

Holger Hengel

Laszlo Baliko

Bela Melegh

Alessandro Filla

Antonella Antenora

Jon Infante

José Berciano

Bart P. van de Warrenburg

Dagmar Timmann

Sandra Szymanski

Sylvia Boesch

Wolfgang Nachbauer

Jun-Suk Kang

Massimo Pandolfo

Jörg B. Schulz

Audrey Tanguy Melac

Alhassane Diallo

Thomas Klockgether

机构：

[1] German Center for Neurodegenerative Diseases (DZNE),Department of Neurology

[2] Heidelberg University Hospital,Institute of Medical Genetics and Applied Genomics

[3] Sorbonne Universités,Department of Molecular Neuroscience

[4] Université Pierre et Marie Curie (UPMC) Univ Paris 06,Neurogenetic Laboratory

[5] UMRS 1136,Département de Génétique

[6] INSERM U 1136,SOSD Genetics of Neurodegenerative and Metabolic Diseases

[7] Institut Pierre Louis d’Epidémiologie et de Santé Publique,Department of Clinical Neurophysiology

[8] AP-HP,Department of Genetics

[9] Biostatistics Unit,Department of Neurodegeneration and Hertie

[10] Groupe Hospitalier Pitié-Salpêtrière,Institute for Clinical Brain Research

[11] University of Tübingen,Department of Neurology

[12] CENTOGENE AG,Department of Medical Genetics, Medical School, and Szentagothai Research Center

[13] UCL,Department of Neuroscience, and Reproductive and Odontostomatological Sciences

[14] Institute of Neurology,Service of Neurology

[15] National Hospital of Neurology and Neurosurgery,Service of Neurology, University Hospital “Marqués de Valdecilla (IDIVAL)”, “Centro de Investigación Biomédica en Red de Enfermedades Neurodegenerativas (CIBERNED)”

[16] UCL,Department of Neurology, Donders Institute for Brain, Cognition, and Behaviour

[17] INSERM,Department of Neurology, University Clinic Essen

[18] U 1127,Department of Neurology, St. Josef Hospital

[19] CNRS,Department of Neurology

[20] UMR 7225,Department of Neurology

[21] Sorbonne Universités,Department of Neurology

[22] UPMC Univ Paris 06,JARA

[23] UMRS_1127,BRAIN Institute Molecular Neuroscience and Neuroimaging

[24] Institut du Cerveau et de la Moelle épinière,Department of Neurology

[25] ICM,undefined

[26] APHP,undefined

[27] Hôpital de la Pitié-Salpêtrière,undefined

[28] Service de Neurologie-CMRR,undefined

[29] CHRU Gui de Chauliac,undefined

[30] Fondazione-IRCCS Istituto Neurologico Carlo Besta,undefined

[31] Institute of Psychiatry and Neurology,undefined

[32] Institute of Psychiatry and Neurology,undefined

[33] Charité Universitätsmedizin Berlin,undefined

[34] NeuroCure Clinical Research Center,undefined

[35] University of Tübingen and Deutsches Zentrum für Neurodegenerative Erkrankungen (DZNE),undefined

[36] Zala County Hospital,undefined

[37] University of Pécs,undefined

[38] Federico II University Naples,undefined

[39] University Hospital Marqués de Valdecilla (IDIVAL),undefined

[40] University of Cantabria (UC) and Centro de Investigación Biomédica en Red de Enfermedades Neurodegenerativas (CIBERNED),undefined

[41] University of Cantabria (UC),undefined

[42] Radboud University Medical Center,undefined

[43] University of Duisburg-Essen,undefined

[44] University Hospital of Bochum,undefined

[45] Medical University,undefined

[46] Innsbruck,undefined

[47] University of Frankfurt,undefined

[48] Université Libre de Bruxelles (ULB),undefined

[49] Neurology Service-ULB Hôpital Erasme,undefined

[50] ULB Laboratory of Experimental Neurology,undefined

来源：

Journal of Neurology | 2018年 / 265卷

关键词：

Spinocerebellar ataxia; Depression; Quality of life; ADL; Natural history studies; Trinucleotide repeat diseases;

D O I：

暂无

中图分类号：

学科分类号：

摘要：

引用

页码：2040 / 2051

页数：11

共 50 条

[1] Long-term evolution of patient-reported outcome measures in spinocerebellar ataxias
Jacobi, Heike
du Montcel, Sophie Tezenas
Bauer, Peter
Giunti, Paola
Cook, Arron
Labrum, Robyn
Parkinson, Michael H.
Durr, Alexandra
Brice, Alexis
Charles, Perrine
Marelli, Cecilia
Mariotti, Caterina
Nanetti, Lorenzo
Sarro, Lidia
Rakowicz, Maria
Sulek, Anna
Sobanska, Anna
Schmitz-Huebsch, Tanja
Schoels, Ludger
Hengel, Holger
Baliko, Laszlo
Melegh, Bela
Filla, Alessandro
Antenora, Antonella
Infante, Jon
Berciano, Jose
Van De Warrenburg, Bart P.
Timmann, Dagmar
Szymanski, Sandra
Boesch, Sylvia
Nachbauer, Wolfgang
Kang, Jun-Suk
Pandolfo, Massimo
Schulz, Joerg B.
Melac, Audrey Tanguy
Diallo, Alhassane
Klockgether, Thomas
[J]. JOURNAL OF NEUROLOGY, 2018, 265 (09) : 2040 - 2051
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[J]. JOURNAL OF THE ROYAL SOCIETY OF MEDICINE, 2007, 100 (09) : 397 - 397
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