Psychological burden in spinal muscular atrophy patients and their families: a systematic review

被引:0
|
作者
Dian Marta Sari
Laurentia Cindy Gani Wijaya
Wintoro Duraman Roives Sitorus
Mia Milanti Dewi
机构
[1] Universitas Padjadjaran,Department of Physical Medicine and Rehabilitation, Faculty of Medicine
[2] Maranatha Christian University,Faculty of Medicine
[3] Universitas Padjadjaran,Faculty of Medicine
[4] Universitas Padjadjaran,Department of Child Health, Faculty of Medicine
关键词
Caregiver; Family; Psychological burden; Spinal muscular atrophy;
D O I
暂无
中图分类号
学科分类号
摘要
引用
收藏
相关论文
共 50 条
  • [41] Current evidence for treatment with nusinersen for spinal muscular atrophy: a systematic review
    Meylemans, Antoon
    De Bleecker, Jan
    ACTA NEUROLOGICA BELGICA, 2019, 119 (04) : 523 - 533
  • [42] Systematic Literature Review of Clinical and Economic Evidence for Spinal Muscular Atrophy
    Min Yang
    Hiroyuki Awano
    Satoru Tanaka
    Walter Toro
    Su Zhang
    Omar Dabbous
    Ataru Igarashi
    Advances in Therapy, 2022, 39 : 1915 - 1958
  • [43] Systematic Literature Review to Identify Utility Values in Patients with Spinal Muscular Atrophy (SMA) and Their Caregivers
    C. Simone Sutherland
    Pollyanna Hudson
    Stephen Mitchell
    Noman Paracha
    PharmacoEconomics, 2022, 40 : 39 - 67
  • [44] Systematic Literature Review to Identify Utility Values in Patients with Spinal Muscular Atrophy (SMA) and Their Caregivers
    Sutherland, C. Simone
    Hudson, Pollyanna
    Mitchell, Stephen
    Paracha, Noman
    PHARMACOECONOMICS, 2022, 40 (SUPPL 1) : 39 - 67
  • [45] CLINICAL AND ECONOMIC BURDEN OF SPINAL MUSCULAR ATROPHY IN FRANCE
    Beziz, D.
    Guye, S.
    Marchal, C.
    Belhassen, M.
    Nee, M.
    De Pouvourville, G.
    Servais, L.
    Vuillerot, C.
    VALUE IN HEALTH, 2022, 25 (01) : S44 - S45
  • [46] Disease and treatment burden of spinal muscular atrophy (SMA) on patients and caregivers in Canada
    McMillan, H.
    Gerber, B.
    Cowling, T.
    Khuu, W.
    Mayer, M.
    Wu, J.
    Maturi, B.
    Klein-Panneton, K.
    Cabalteja, C.
    Lochmueller, H.
    NEUROMUSCULAR DISORDERS, 2020, 30 : S100 - S101
  • [47] History review of spinal muscular atrophy
    Bieniaszewska, Aleksandra
    Gajewska, Ewa
    AKTUALNOSCI NEUROLOGICZNE, 2022, 22 (01): : 32 - 38
  • [48] Risdiplam: A Review in Spinal Muscular Atrophy
    Julia Paik
    CNS Drugs, 2022, 36 : 401 - 410
  • [49] Spinal Muscular Atrophy A Timely Review
    Kolb, Stephen J.
    Kissel, John T.
    ARCHIVES OF NEUROLOGY, 2011, 68 (08) : 979 - 984
  • [50] Risdiplam: A Review in Spinal Muscular Atrophy
    Paik, Julia
    CNS DRUGS, 2022, 36 (04) : 401 - 410