Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study

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作者
Svenja Litzkendorf
Martin Frank
Ana Babac
Daniel Rosenfeldt
Franziska Schauer
Tobias Hartz
J.-Matthias Graf von der Schulenburg
机构
[1] Leibniz University Hannover,Center for Health Economics Research Hannover (CHERH)
[2] Ostfalia University of Applied Science,Faculty of Public Health Services
[3] University of Freiburg,Department of Dermatology, Medical Center
[4] Faculty of Medicine,undefined
[5] University of Freiburg,undefined
[6] Clinical Cancer Registry of Lower Saxony,undefined
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关键词
Rare diseases; Information sources; Informants; Health information seeking; Qualitative research; Content analysis; Self-help; Online information; Written information;
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