Developing a Framework of Cost Elements of Socioeconomic Burden of Rare Disease: A Scoping Review

被引：0
|
作者：
Gillian R. Currie
Brittany Gerber
Diane Lorenzetti
Karen MacDonald
Susanne M. Benseler
Francois P. Bernier
Kym M. Boycott
K. Vanessa Carias
Bettina Hamelin
Robin Z. Hayeems
Claire LeBlanc
Marinka Twilt
Gijs van Rooijen
Durhane Wong-Rieger
Rae S. M. Yeung
Deborah A. Marshall
机构：
[1] University of Calgary,Department of Pediatrics, Health Research Innovation Centre
[2] University of Calgary,Department of Community Health Sciences
[3] University of Calgary,Alberta Children’s Hospital Research Institute
[4] University of Calgary,Health Sciences Library
[5] Alberta Health Services,Department of Medical Genetics
[6] Alberta Children’s Hospital,Department of Genetics
[7] Children’s Hospital of Eastern Ontario,Children’s Hospital of Eastern Ontario Research Institute
[8] University of Ottawa,Institute of Health Policy Management and Evaluation
[9] Genome Alberta,Department of Pediatrics, Faculty of Medicine
[10] Ontario Genomics Institute,Department of Pediatrics, Cumming School of Medicine, McCaig Institute for Bone and Joint Health, and the Alberta Children’s Hospital Research Institute
[11] Child Health Evaluative Sciences,Departments of Paediatrics, Immunology and Medical Science, The Hospital for Sick Children
[12] Hospital for Sick Children,McCaig Institute for Bone and Joint Health
[13] University of Toronto,O’Brien Institute for Public Health
[14] McGill University,undefined
[15] University of Calgary,undefined
[16] Canadian Organization for Rare Disorders (CORD),undefined
[17] University of Toronto,undefined
[18] University of Calgary,undefined
[19] University of Calgary,undefined
来源：
PharmacoEconomics | 2023年 / 41卷
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页码：803 / 818
页数：15
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