Survey of healthcare experiences of Australian adults living with rare diseases

被引：0
|
作者：
Caron Molster
Debra Urwin
Louisa Di Pietro
Megan Fookes
Dianne Petrie
Sharon van der Laan
Hugh Dawkins
机构：
[1] Office of Population Health Genomics,
[2] Department of Health,undefined
[3] Genetic Support Network Victoria,undefined
[4] Rare Voices Australia,undefined
[5] Genetic Alliance Australia,undefined
[6] Genetic and Rare Diseases Network,undefined
[7] Centre for Population Health Research,undefined
[8] Curtin University of Technology,undefined
[9] School of Pathology and Laboratory Medicine,undefined
[10] University of Western Australia,undefined
[11] Centre for Comparative Genomics,undefined
[12] Murdoch University,undefined
来源：
Orphanet Journal of Rare Diseases | / 11卷
关键词：
Healthcare; Survey; Australia; Experiences; Diagnosis; Health services; Rare diseases;
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