Recommendations for the development of national plans for rare diseases

被引:0
|
作者
Albert Van der Zeijden
Jolanda Huizer
机构
[1] Dutch Steering Committee OD,
关键词
Member State; Rare Disease; Policy Action; Guidance Document; Equal Access;
D O I
10.1186/1750-1172-5-S1-O3
中图分类号
学科分类号
摘要
引用
收藏
相关论文
共 50 条
  • [41] Recommendations to improve the National Development Plan for Health
    de Jager, Pieter
    Hofman, Karen
    Khan, Taskeen
    Volmink, Heinrich
    Jina, Ruxana
    SAMJ SOUTH AFRICAN MEDICAL JOURNAL, 2012, 102 (11): : 827 - 829
  • [42] Rare diseases in Tanzania: a National Call for Action to address policy and urgent needs of individuals with rare diseases
    Kaywanga, Frida
    Alimohamed, Mohamed Zahir
    David, Aneth Bella
    Maeda, Daniel
    Mbarak, Sharifa
    Mavura, Togolani
    Nkya, Siana
    Ishengoma, Deus S.
    ORPHANET JOURNAL OF RARE DISEASES, 2022, 17 (01)
  • [43] THE NATIONAL RECORD OF RARE DISEASES IN THE CONTEXT OF THE REGIONAL NETWORK OF RARE DISEASES OF FRIULLI-VENEZIA GIULIA
    Deroma, L.
    Sechi, A.
    Macor, D.
    Liva, G.
    Dardis, A.
    Bembi, B.
    EPIDEMIOLOGIA & PREVENZIONE, 2011, 35 (5-6): : 196 - 196
  • [44] Rare diseases in Tanzania: a National Call for Action to address policy and urgent needs of individuals with rare diseases
    Frida Kaywanga
    Mohamed Zahir Alimohamed
    Aneth Bella David
    Daniel Maeda
    Sharifa Mbarak
    Togolani Mavura
    Siana Nkya
    Deus S. Ishengoma
    Orphanet Journal of Rare Diseases, 17
  • [45] National human rights action plans: a roadmap to development
    ChalaBi, Azadeh
    DEVELOPMENT IN PRACTICE, 2014, 24 (08) : 989 - 1002
  • [46] A first description of the Colombian national registry for rare diseases
    Mateus H.E.
    Pérez A.M.
    Mesa M.L.
    Escobar G.
    Gálvez J.M.
    Montaño J.I.
    Ospina M.L.
    Laissue P.
    BMC Research Notes, 10 (1)
  • [47] National Policy for Rare Diseases, 2021 - A critical perspective
    Dubey, Manju
    Kumar, Mohan
    INDIAN JOURNAL OF COMMUNITY HEALTH, 2022, 34 (02) : 324 - 326
  • [49] Future Perspectives of the National Action Plan for Rare Diseases
    Voigtlaender, Till
    PAEDIATRIE UND PAEDOLOGIE, 2020, 55 (SUPPL 3): : 157 - 169
  • [50] National platform for Rare Diseases Data Registry of Japan
    Furusawa, Yoshihiko
    Yamaguchi, Izumi
    Yagishita, Naoko
    Tanzawa, Kazumasa
    Matsuda, Fumihiko
    Yamano, Yoshihisa
    Yamada, Ryo
    Tabara, Yasuharu
    Kamatani, Yoichiro
    Kawaguchi, Syuji
    Kosugi, Shinji
    Higasa, Koichiro
    Matsubara, Yoichi
    Matsumoto, Naomichi
    Aasano, Yoshihiro
    Nishino, Ichizo
    Nakamura, Harumasa
    Takano, Atsushi
    Iot, Motoi
    Sakai, Shinya
    LEARNING HEALTH SYSTEMS, 2019, 3 (03):