Patient engagement;
Digital health;
Patient involvement;
Digital data governance
;
Patient-centric design;
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摘要:
Digital health solutions have the potential to complement traditional healthcare approaches and deliver improved health outcomes, but there are system-wide challenges that need to be addressed. These include fragmentation of the digital health landscape, regulatory processes that lack the agility to accommodate the fast pace of digital health advances, and inadequate transparency around data sharing and data governance. All of these challenges have led to mistrust, limited understanding and sharing of best practices, a lack of digital education and awareness, and insufficient patient and public engagement and involvement. In this paper, we argue that for digital health solutions to fulfil their potential, there needs to be a significant increase in early, meaningful, and sustained engagement with the people they intend to benefit. The uptake as well as the impact of digital solutions created in partnership with patients for patients are greater and more relevant to the communities they address.
机构:
Univ N Carolina, Dept Psychol Sci, 9201 Univ City Blvd, Charlotte, NC 28223 USA
Univ N Carolina, Hlth Psychol PhD Program, 9201 Univ City Blvd, Charlotte, NC 28223 USAUniv N Carolina, Dept Psychol Sci, 9201 Univ City Blvd, Charlotte, NC 28223 USA
Gil-Rivas, Virginia
Handrup, Cynthia Taylor
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机构:
Univ Illinois, Coll Nursing, Chicago, IL USAUniv N Carolina, Dept Psychol Sci, 9201 Univ City Blvd, Charlotte, NC 28223 USA
Handrup, Cynthia Taylor
Tanner, Elayne
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机构:
Elayne Tanner Social Work Profess Corp, Milton, ON, CanadaUniv N Carolina, Dept Psychol Sci, 9201 Univ City Blvd, Charlotte, NC 28223 USA
Tanner, Elayne
Walker, Deborah Klein
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机构:
Boston Univ, Sch Publ Hlth, Community Hlth Sci, Boston, MA 02215 USAUniv N Carolina, Dept Psychol Sci, 9201 Univ City Blvd, Charlotte, NC 28223 USA