Delivering Digital Health Solutions that Patients Need: A Call to Action

被引:0
|
作者
Veronica Popa
Jan Geissler
Rebecca Vermeulen
Elizabeth Priest
Katherine Capperella
Gözde Susuzlu
Sharon F. Terry
Nicholas Brooke
机构
[1] EURORDIS,
[2] Patvocates,undefined
[3] Roche,undefined
[4] The Synergist.Org and PFMD,undefined
[5] Johnson & Johnson,undefined
[6] Data Saves Lives,undefined
[7] Genetic Alliance,undefined
[8] The Synergist.Org and PFMD,undefined
关键词
Patient engagement; Digital health; Patient involvement; Digital data governance ; Patient-centric design;
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中图分类号
学科分类号
摘要
Digital health solutions have the potential to complement traditional healthcare approaches and deliver improved health outcomes, but there are system-wide challenges that need to be addressed. These include fragmentation of the digital health landscape, regulatory processes that lack the agility to accommodate the fast pace of digital health advances, and inadequate transparency around data sharing and data governance. All of these challenges have led to mistrust, limited understanding and sharing of best practices, a lack of digital education and awareness, and insufficient patient and public engagement and involvement. In this paper, we argue that for digital health solutions to fulfil their potential, there needs to be a significant increase in early, meaningful, and sustained engagement with the people they intend to benefit. The uptake as well as the impact of digital solutions created in partnership with patients for patients are greater and more relevant to the communities they address.
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页码:236 / 241
页数:5
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