Advances in spina bifida care: from the womb to adulthood

被引:0
|
作者
Houtrow A. [1 ]
Dicianno B.E. [2 ]
机构
[1] Department of Physical Medicine and Rehabilitation, Children’s Hospital of Pittsburgh of UPMC, University of Pittsburgh, 4401 Penn Ave, Pittburgh, 15224, PA
[2] Department of Physical Medicine and Rehabilitation, University of Pittsburgh, Kaufmann Medical Bldg, Suite 202, 3471 5th Avenue, Pittsburgh, 15213, PA
关键词
Care coordination; Fetal repair; Myelomeningocele; Obesity; Spina bifida; Transition;
D O I
10.1007/s40141-014-0046-1
中图分类号
学科分类号
摘要
The care of the individual with spina bifida has changed substantially in recent years. Major advances and shifts in the prenatal and neonatal management of patients with myelomeningocele has led to improved survivability and outcomes. Most notable of these is the option for fetal repair of the spina bifida lesion. As more and more children with spina bifida are aging into adulthood, there is a growing recognition of the issues faced by adults with spina bifida, including the difficult transition to adult-based health care. Physiatrists should be aware of recent trends and advancements to help optimize outcomes for individuals across the lifespan. This article will review prenatal and neonatal advances and controversies, and will then shift gears to address issues facing adults with spina bifida. © 2014, Springer Science + Business Media New York.
引用
收藏
页码:71 / 78
页数:7
相关论文
共 50 条
  • [1] Transition of Care of the Spina Bifida Patient from Childhood to Adulthood
    Tomei, Krystal L.
    Zhou, Xiaofei
    JOURNAL OF PEDIATRIC NEUROLOGY, 2020, 18 (06) : 292 - 296
  • [2] Fractures in spina bifida from childhood to young adulthood
    Trinh, A.
    Wong, P.
    Brown, J.
    Hennel, S.
    Ebeling, P. R.
    Fuller, P. J.
    Milat, F.
    OSTEOPOROSIS INTERNATIONAL, 2017, 28 (01) : 399 - 406
  • [3] Ambulatory Care Use among Patients with Spina Bifida: Change in Care from Childhood to Adulthood
    Shepard, Courtney L.
    Doerge, Ella J.
    Eickmeyer, Adam B.
    Kraft, Kate H.
    Wan, Julian
    Stoffel, John T.
    JOURNAL OF UROLOGY, 2018, 199 (04): : 1050 - 1055
  • [4] Fractures in spina bifida from childhood to young adulthood
    A. Trinh
    P. Wong
    J. Brown
    S. Hennel
    P. R. Ebeling
    P. J. Fuller
    F. Milat
    Osteoporosis International, 2017, 28 : 399 - 406
  • [5] Growing up with spina bifida: bridging the gaps in the transition of care from childhood to adulthood
    Patel, Smruti K.
    Staarmann, Brittany
    Heilman, Alexander
    Mains, Allie
    Woodward, Jason
    Bierbrauer, Karin S.
    NEUROSURGICAL FOCUS, 2019, 47 (04)
  • [6] The impact of the dependent care provision on individuals with spina bifida transitioning to adulthood
    Loftus, Christopher J.
    Ahn, Jennifer
    Hagedorn, Judith C.
    Cain, Mark
    Holt, Sarah
    Merguerian, Paul
    Shnorhavorian, Margarett
    JOURNAL OF PEDIATRIC UROLOGY, 2021, 17 (03) : 289.e1 - 289.e9
  • [7] Memory in Spina Bifida, from Childhood to Adulthood: A Systematic Review
    Amayra, Imanol
    de Lazcano, Aitana Ruiz
    Salgueiro, Monika
    Anguiano, Samuel
    Urena, Malena
    Martinez, Oscar
    JOURNAL OF CLINICAL MEDICINE, 2024, 13 (17)
  • [8] Update on Urological Management of Spina Bifida from Prenatal Diagnosis to Adulthood
    Snow-Lisy, Devon C.
    Yerkes, Elizabeth B.
    Cheng, Earl Y.
    JOURNAL OF UROLOGY, 2015, 194 (02): : 288 - 296
  • [9] Care of the Adolescent with Spina Bifida
    Rowe, Dale E.
    Jadhav, Avinash L.
    PEDIATRIC CLINICS OF NORTH AMERICA, 2008, 55 (06) : 1359 - +
  • [10] Transition to adulthood in spina bifida: Changing roles and expectations
    Mukherjee, Shubhra
    THESCIENTIFICWORLDJOURNAL, 2007, 7 : 1890 - 1895