Palliative care for patients with motor neurone disease and their bereaved carers: a qualitative study

被引:0
|
作者
Clare Mc Veigh
Colette Donaghy
Briege Mc Laughlin
Alison Dick
Kiran Kaur
John Mc Conville
Max Watson
机构
[1] Queen’s University Belfast,School of Nursing and Midwifery
[2] Belfast Health and Social Care Trust,School of Medicine, Dentistry and Biomedical Sciences
[3] Western health and Social Care Trust,undefined
[4] Queen’s University Belfast,undefined
[5] Northern Ireland Hospice,undefined
[6] Ulster University,undefined
来源
关键词
Amyotrophic lateral sclerosis; Motor neurone disease; Palliative care; End of life; Qualitative; Bereaved carers;
D O I
暂无
中图分类号
学科分类号
摘要
引用
收藏
相关论文
共 50 条
  • [41] Service use and needs of people with motor neurone disease and their carers in Scotland
    van Teijlingen, ER
    Friend, E
    Kamal, AD
    HEALTH & SOCIAL CARE IN THE COMMUNITY, 2001, 9 (06) : 397 - 403
  • [42] Using the Concept of Health Literacy to Understand How People Living with Motor Neurone Disease and Carers Engage in Healthcare: A Longitudinal Qualitative Study
    Paynter, Camille
    Mathers, Susan
    Gregory, Heidi
    Vogel, Adam P.
    Cruice, Madeline
    HEALTHCARE, 2022, 10 (08)
  • [43] The need for support services for family carers of people with motor neurone disease (MND): views of current and former family caregivers a qualitative study
    O'Brien, Mary R.
    Whitehead, Bridget
    Jack, Barbara A.
    Mitchell, J. Douglas
    DISABILITY AND REHABILITATION, 2012, 34 (03) : 247 - 256
  • [44] Community-based palliative care for Bangladeshi patients in east London. Accounts of bereaved carers
    Spruyt, O
    PALLIATIVE MEDICINE, 1999, 13 (02) : 119 - 129
  • [45] Bereaved carers' accounts of the end of life and the role of care providers in a "good death': A qualitative study
    Holdsworth, Laura M.
    PALLIATIVE MEDICINE, 2015, 29 (09) : 834 - 841
  • [46] Access to palliative care for people with motor neurone disease in New Zealand: a patient's perspective
    Williams, Barbara
    NEW ZEALAND MEDICAL JOURNAL, 2005, 118 (1224) : 89 - 90
  • [47] Family caregivers bereaved by voluntary-assisted dying with a focus on motor neurone disease: the hidden patients
    Sealey, Margaret
    Aoun, Samar M.
    PALLIATIVE CARE & SOCIAL PRACTICE, 2023, 17
  • [48] Assisting patients with motor neurone disease to make decisions about their care
    Gale, Caroline
    International Journal of Palliative Nursing, 2015, 21 (05) : 251 - 255
  • [49] MOTOR NEURONE DISEASE. EXPERIENCE AND EXPECTATIONS OF PATIENTS AND CARE GIVERS
    Gutiez, M. Tanaka
    Nevin, B.
    Stewart, J.
    Jarrett, L.
    Weatherby, S. J. M.
    JOURNAL OF NEUROLOGY NEUROSURGERY AND PSYCHIATRY, 2010, 81 (11): : E63 - E63
  • [50] MOTOR NEURONE DISEASE - A PATIENTS VIEW
    HENKE, E
    BRITISH MEDICAL JOURNAL, 1968, 4 (5633): : 765 - &