Patient-identified priorities for successful partnerships in patient-oriented research

被引:3
|
作者
Santana M.J. [1 ,2 ,3 ]
Duquette D.A. [4 ]
Fairie P. [2 ,3 ]
Nielssen I. [2 ,3 ]
Bele S. [1 ,3 ]
Ahmed S. [1 ,3 ]
Barbosa T. [2 ,3 ]
Zelinsky S. [2 ,3 ]
机构
[1] Department of Pediatrics, Cumming School of Medicine, University of Calgary, Calgary, AB
[2] Department of Community Health Sciences, Cumming School of Medicine, University of Calgary, Calgary, AB
[3] Alberta Strategy for Patient-Oriented Research Patient Engagement Team, Edmonton
[4] Patient Partner, Alberta SPOR SUPPORT Unit, Edmonton
基金
加拿大健康研究院;
关键词
Co-production; Patient and public involvement; Patient priorities;
D O I
10.1186/s40900-022-00384-4
中图分类号
学科分类号
摘要
Albertans4HealthResearch, supported by the Alberta Strategy for Patient-Oriented Research Patient Engagement Team, hosted a virtual round table discussion to develop a list of considerations for successful partnerships in patient-oriented research. The group, which consists of active patient partners across the Canadian province of Alberta and some research staff engaged in patient-oriented research, considered advice for academic researchers on how to best partner with patients and community members on health research projects. The group identified four main themes, aligned with the national strategy for patient-oriented research (SPOR) patient engagement framework, highlighting important considerations for researchers from the patient perspective, providing practical ways to implement SPOR’s key principles: inclusiveness, support, mutual respect, and co-building. This commentary considers the process behind this engagement exercise and offers advice directly from active patient research partners on how to fulfill the operational patient engagement mandate. Academic research teams can use this guidance when considering how to work together with patient partners and community members. © 2022, The Author(s).
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